Developing a reproductive health curriculum for adolescent girls with physical disabilities

为身体残疾的少女制定生殖健康课程

• 批准号: 10709529
• 负责人: Courtney S Streur
• 金额: $ 16.96万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-30 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10709529
• 关键词: Address; Adolescent; Adoption; Adult; Age; American; Caring; Child; Childhood; Clinical Trials; Cognitive; Congenital Abnormality; Contraceptive Usage; Contraceptive methods; Contracture; Data; Development Plans; Diagnosis; Disabled Children; Education; Educational Curriculum; Educational Intervention; Effectiveness; Ensure; Evaluation; Feedback; Female; Female Adolescents; Frequencies; Funding; Future; Gatekeeping; Goals; Gynecologic; Health Services; Health education; Healthy People 2020; Hydrocephalus; Hypersensitivity; Impairment; Incontinence; Intervention; Interview; Knowledge; Knowledge Management; Latex; Learning; Life Expectancy; Maintenance; Medical; Mentors; Methods; National Institute of Child Health and Human Development; Neural Tube Defects; Outcome; Parents; Pilot Projects; Population; Precocious Puberty; Pregnancy Complications; Provider; Puberty; Public Health; Reach, Effectiveness, Adoption, Implementation, and Maintenance; Reproductive Health; Research; Research Personnel; Research Priority; Risk; Self Management; Sexual Development; Sexual Health; Sexual abuse; Sexually Transmitted Diseases; Spinal Dysraphism; Surveys; Testing; Time; Training; Urologist; Women' s Group; Work; Writing; career; career development; cognitive development; cognitive disability; cohort; comorbidity; condoms; design; disability; disability impact; dissemination science; effective intervention; executive function; experience; girls; health goals; health knowledge; implementation framework; implementation measures; implementation outcomes; implementation science; improved; intimate partner violence; neglect; novel; online intervention; peer; physically handicapped; post intervention; prototype; sexual coercion; sexual health intervention; skill acquisition; skills; therapy design; unintended pregnancy; usability

PROJECT SUMMARY/ABSTRACT Candidate: Courtney Streur, MD, MS is a pediatric urologist and junior health services researcher focused on understanding the sexual health and education of adolescents with physical disabilities. Dr. Streur’s long-term career goal is to become an independent clinician investigator who develops, implements, and disseminates interventions that promote the healthy sexual development of adolescent girls with physical disabilities to improve their long-term sexual health outcomes. Research Context: Adolescent girls with physical disabilities are not educated about their sexual health, which has led to unintended pregnancies, low contraceptive use, and sexual coercion and abuse. Aspects of their physical disability and medical comorbidities impact their sexual health (e.g., precocious puberty, incontinence during intercourse). Additionally, the cognitive disability frequently associated with their physical disability (e.g., executive functioning impairment) impacts their ability to learn and develop new skills. Therefore, adolescent girls with disabilities need tailored sexual health education. The goal of this study is to create and refine a novel, user-centered online sexual health curriculum. This will be tailored to girls with spina bifida and expanded to other girls with disabilities, implemented, and disseminated as a subsequent R01. Specific Aims: 1) Discover and rigorously define the highest-priority sexual health knowledge and skill attainment needs and learning style of adolescent girls with spina bifida. 2) Design and beta-test an online sexual health intervention prototype targeted to adolescent girls with spina bifida that improves their sexual health knowledge and self-management skill development. 3) Perform a pilot evaluation of the intervention prototype on key implementation outcomes. Research Plan: This uses a mixed methods implementation science approach. First we will build on existing preliminary data from adolescent girls with spina bifida, parents of girls with spina bifida, and experts in the field regarding the educational needs and learning style of the girls to inform creation of best-worst scaling surveys. The surveys will be administered to females with spina bifida ages 10-19 and parents of girls with spina bifida to identify the highest priority learning needs and best format of the intervention. This information will be used to create the first version of the curriculum, which will be refined through beta testing on dyads of adolescent girls with spina bifida and their parents. Finally, using the RE-AIM framework, we will conduct a pilot study on dyads of girls with spina bifida and their parents to evaluate key implementation measures, including reach, effectiveness, adoption, implementation, and maintenance. Career Development Plan: In parallel with this research plan and under the guidance of experienced mentors, Dr. Streur will develop expertise in intervention design and implementation and dissemination science.

项目总结/摘要 候选人：Courtney Streur，MD，MS是一名儿科泌尿科医生和初级卫生服务研究员，专注于 了解身体残疾青少年的性健康和教育。斯特勒医生的长期 职业目标是成为一名独立的临床研究者，开发，实施和传播 促进身体残疾少女健康性发育的干预措施， 改善他们的长期性健康结果。 研究背景：身体残疾的青春期女孩没有接受关于性健康的教育， 导致意外怀孕、避孕药具使用率低以及性胁迫和性虐待。方面的 身体残疾和医学共病影响他们的性健康（例如，性早熟、尿失禁 在性交期间）。此外，认知障碍往往与他们的身体残疾有关， (e.g.,执行功能障碍）影响他们学习和发展新技能的能力。因此，我们认为， 残疾少女需要有针对性的性健康教育。本研究的目标是创建并 完善一个新颖的、以用户为中心的在线性健康课程。这将是专门为患有脊柱裂的女孩和 扩大到其他残疾女孩，作为后续的R 01实施和传播。 具体目标：1）发现并严格定义最优先的性健康知识和技能 青少年脊柱裂女孩的学业需要和学习风格。2)设计并测试一个在线 针对脊柱裂少女的性健康干预原型， 健康知识和自我管理技能发展。3)对干预措施进行试点评估 关键执行成果的原型。 研究计划：这使用了一种混合的方法实施科学的方法。首先，我们将建立在现有的 来自脊柱裂少女、脊柱裂女孩的父母和脊柱裂专家的初步数据 关于女孩教育需求和学习方式的实地调查，为制定最佳-最差比例提供信息 调查。这些调查将对10-19岁的女性脊柱裂患者和 脊柱裂，以确定最优先的学习需求和最佳干预形式。这些信息 将被用于创建第一个版本的课程，这将是通过测试版测试的二人组， 患有脊柱裂的少女和她们的父母。最后，使用RE-AIM框架，我们将进行 对患有脊柱裂的女孩及其父母进行试点研究，以评估关键的执行措施， 包括覆盖范围、有效性、采用、实施和维护。 职业发展计划：与本研究计划并行，并在经验丰富的导师的指导下， 博士Streur将发展干预设计和实施以及传播科学方面的专业知识。

项目成果

"They had the lunch lady coming up to assist": The experiences of menarche and menstrual management for adolescents with physical disabilities.

“他们请了午餐女士来帮忙”：身体残疾青少年的初潮和月经管理经历。

• DOI: 10.1016/j.dhjo.2023.101510
• 发表时间: 2023
• 期刊: Disability and health journal
• 影响因子: 4.5
• 作者: Streur,CourtneyS;Kreschmer,JodiM;Ernst,SusanD;Quint,ElisabethH;Rosen,MonicaW;Wittmann,Daniela;Kalpakjian,ClaireZ
• 通讯作者: Kalpakjian,ClaireZ