Relationships- Race, Ethnicity, Ancestry, and Genomics

关系——种族、民族、血统和基因组学

• 批准号: 7208399
• 负责人: Vence L Bonham
• 金额: --
• 依托单位: NATIONAL HUMAN GENOME RESEARCH INSTITUTE
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/7208399
• 关键词: behavioral /social science research tag; belief; comprehension; data collection; decision making; family genetics; health behavior; health care personnel; human population genetics; human subject; interview; measurement; public health; questionnaires; racial /ethnic difference; technology /technique development

This project examines patients? and health professionals? understanding of the relationships between race, ethnicity and genetics. The project utilizes three broad approaches to address these issues: (1) development of a scale to assess individual?s understanding of race, ethnicity and genetics; and (2) qualitative and quantitative data collection to understand the current beliefs, use and knowledge of the relationships between race, ethnicity and genetics; and (3) development of a theoretical framework for science policy and medical education on race, ethnicity, ancestry and genetics. One branch of this study will develop a scale entitled ?the Human Genetic Variation Knowledge and Beliefs Scale? (HGVB) to measure physicians? knowledge of human genetic variation, beliefs about biologic and genetic differences based upon their patients? race and ethnicity and the use of these constructs in clinical decision making. The second branch of this project focuses on the collection of empirical data on patients? and health professionals?

这个项目检查病人吗和卫生专业人员？了解种族、民族和遗传之间的关系。该项目利用三个广泛的方法来解决这些问题：（1）发展的规模，以评估个人？本研究的主要目的是：（1）研究种族、民族和遗传学的知识;（2）定性和定量数据收集，以了解种族、民族和遗传学之间关系的当前信念、使用和知识;（3）为种族、民族、祖先和遗传学的科学政策和医学教育制定理论框架。 本研究的一个分支将开发一个名为？人类遗传变异知识和信念量表（HGVB）来衡量医生？人类遗传变异的知识，基于患者的生物和遗传差异的信念？种族和民族以及这些结构在临床决策中的使用。 本项目的第二个分支集中于收集患者的经验数据？和卫生专业人员？