Language-Concordant Mobile Health Training and Support for Behavioral Management of Urinary Incontinence for Women with Limited English Proficiency

为英语水平有限的女性提供语言一致的移动健康培训和尿失禁行为管理支持

• 批准号: 10772574
• 负责人: Alison Huang
• 金额: $ 22.56万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-02-15 至 2027-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10772574
• 关键词: Address; Adult; Age; Anti-Cholinergics; Behavioral; Bladder; California; Caring; Cellular Phone; Chinese; Chinese American; Clinical; Communication; Communities; Community Healthcare; Dedications; Education; Electronics; Ethnic Origin; Ethnic Population; Event; Exercise; Face; Feedback; Female; Follow-Up Studies; Funding; Future; Goals; Health; Health Personnel; Healthcare Systems; Improve Access; Incontinence; Language; Latina; Learning; Life Style; Limited English Proficiency; Mainstreaming; Mental Depression; Minority Women; Online Systems; Outcome Measure; Patients; Pelvic Floor Muscle; Pelvic floor structure; Pharmaceutical Preparations; Population; Process Measure; Research; Social isolation; Spanish Americans; System; Techniques; Testing; Training; Training Programs; Training Technics; Translating; Underrepresented Populations; Underserved Population; United States; United States National Institutes of Health; Urinary Incontinence; Woman; Women' s Health; Work; Writing; care systems; community organizations; demographic disparity; design; disparity reduction; ethnic minority; ethnic minority population; experience; follow-up; functional decline; health training; improved; mHealth; marginalization; marginalized population; member; middle age; minority health; older women; physical inactivity; pilot test; programs; prototype; recruit

PROJECT SUMMARY One out of three midlife and older women suffer from urinary incontinence, a condition leading to depression, social isolation, functional decline, and loss of ability to live independently. Although behavioral management strategies such as bladder training and pelvic floor exercises are effective in controlling incontinence, many women with incontinence never receive appropriate training in these first-line behavioral techniques. Furthermore, the usual barriers to engaging in behavioral incontinence management faced by mainstream U.S women are greatly magnified for ethnic minority women with limited English proficiency, who struggle to find healthcare providers who can provide education or support for incontinence in languages other than English. Our research addresses the critical lack of access to training or support for first-line behavioral management of incontinence among ethnic minority women with limited English proficiency. Rather than relying on scarce clinicians who combine clinical expertise in incontinence with fluency in languages other than English, we propose to adapt an interactive, web-based, patient-facing program for behavioral incontinence management (MyHealtheBladder) previously developed by a member of our study team. Designed for smartphones with pictorial, written, and limited audio content, this program offers a potentially accessible, scalable platform for providing language-concordant education and support to diverse women with incontinence in the community. With support from the NIH Office of Research in Women’s Health, we propose to adapt this mobile health program for women from the two largest ethnic minority groups with high rates of limited English proficiency in the United States: Latina women whose preferred language is Spanish, and Chinese American women whose preferred language is Chinese. We will recruit midlife and older women from these backgrounds from the community and obtain their iterative, substantive feedback on the content and format of the mobile health program. Based on pilot-testing of initial language-concordant program versions as well as input from local community organizations focused on Latina and Chinese American health, we will refine program prototypes to pave the way for future follow-up studies that can evaluate feasibility, acceptability, and eventually efficacy of mobile health training in behavioral incontinence management in these populations. If the adapted mobile health program is eventually found to be effective in larger-scale trials, it can be widely disseminated by healthcare systems and community organizations to reduce the burden of incontinence among Spanish- and Chinese-speaking women nationwide, as well as adapted for additional language and ethnic groups in the future. As a result, this research has great potential to decrease disparities in incontinence for demographically important groups who have been marginalized from existing systems of incontinence care.

项目概要 三分之一的中年和老年女性患有尿失禁，这种情况会导致抑郁症， 社会孤立、功能衰退和独立生活能力丧失。虽然行为管理 膀胱训练和盆底运动等策略可有效控制尿失禁，许多 失禁的女性从未接受过这些一线行为技巧的适当培训。 此外，美国主流人群参与行为失禁管理所面临的常见障碍 对于英语水平有限的少数族裔女性来说，女性的影响被大大放大，她们很难找到工作。 可以用英语以外的语言提供失禁教育或支持的医疗保健提供者。 我们的研究解决了一线行为管理严重缺乏培训或支持的问题 英语水平有限的少数民族妇女的失禁问题。而不是依赖稀缺 临床医生将失禁方面的临床专业知识与英语以外语言的流利性结合起来，我们 建议采用交互式、基于网络、面向患者的行为失禁管理程序 (MyHealtheBladder) 之前由我们研究团队的一名成员开发。专为智能手机设计 图片、书面和有限的音频内容，该程序提供了一个潜在的可访问、可扩展的平台 为社区中患有失禁的不同妇女提供语言一致的教育和支持。 在 NIH 女性健康研究办公室的支持下，我们建议调整这种移动医疗 针对英语水平有限的两个最大少数民族妇女的计划 美国：首选语言是西班牙语的拉丁裔女性，以及首选语言是西班牙语的华裔美国女性 首选语言是中文。我们将从这些背景中招募中年和老年女性 社区并获得他们对移动医疗的内容和格式的迭代、实质性反馈 程序。基于初始语言一致程序版本的试点测试以及当地的输入 专注于拉丁美洲和华裔美国人健康的社区组织，我们将完善计划原型 为未来的后续研究铺平道路，这些研究可以评估可行性、可接受性和最终的功效 针对这些人群的行为失禁管理的移动健康培训。 如果最终发现改编后的移动医疗计划在更大规模的试验中有效，则可以广泛推广 由医疗保健系统和社区组织传播，以减轻失禁的负担 面向全国讲西班牙语和中文的女性，并针对其他语言和内容进行了改编 未来的族群。因此，这项研究具有减少失禁差异的巨大潜力 对于在现有失禁护理系统中被边缘化的人口重要群体。