Language-Concordant Mobile Health Training and Support for Behavioral Management of Urinary Incontinence for Women with Limited English Proficiency

为英语水平有限的女性提供语言一致的移动健康培训和尿失禁行为管理支持

• 批准号: 10772574
• 负责人: Alison Huang
• 金额: $ 22.56万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-02-15 至 2027-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10772574
• 关键词: Address; Adult; Age; Anti-Cholinergics; Behavioral; Bladder; California; Caring; Cellular Phone; Chinese; Chinese American; Clinical; Communication; Communities; Community Healthcare; Dedications; Education; Electronics; Ethnic Origin; Ethnic Population; Event; Exercise; Face; Feedback; Female; Follow-Up Studies; Funding; Future; Goals; Health; Health Personnel; Healthcare Systems; Improve Access; Incontinence; Language; Latina; Learning; Life Style; Limited English Proficiency; Mainstreaming; Mental Depression; Minority Women; Online Systems; Outcome Measure; Patients; Pelvic Floor Muscle; Pelvic floor structure; Pharmaceutical Preparations; Population; Process Measure; Research; Social isolation; Spanish Americans; System; Techniques; Testing; Training; Training Programs; Training Technics; Translating; Underrepresented Populations; Underserved Population; United States; United States National Institutes of Health; Urinary Incontinence; Woman; Women' s Health; Work; Writing; care systems; community organizations; demographic disparity; design; disparity reduction; ethnic minority; ethnic minority population; experience; follow-up; functional decline; health training; improved; mHealth; marginalization; marginalized population; member; middle age; minority health; older women; physical inactivity; pilot test; programs; prototype; recruit

PROJECT SUMMARY One out of three midlife and older women suffer from urinary incontinence, a condition leading to depression, social isolation, functional decline, and loss of ability to live independently. Although behavioral management strategies such as bladder training and pelvic floor exercises are effective in controlling incontinence, many women with incontinence never receive appropriate training in these first-line behavioral techniques. Furthermore, the usual barriers to engaging in behavioral incontinence management faced by mainstream U.S women are greatly magnified for ethnic minority women with limited English proficiency, who struggle to find healthcare providers who can provide education or support for incontinence in languages other than English. Our research addresses the critical lack of access to training or support for first-line behavioral management of incontinence among ethnic minority women with limited English proficiency. Rather than relying on scarce clinicians who combine clinical expertise in incontinence with fluency in languages other than English, we propose to adapt an interactive, web-based, patient-facing program for behavioral incontinence management (MyHealtheBladder) previously developed by a member of our study team. Designed for smartphones with pictorial, written, and limited audio content, this program offers a potentially accessible, scalable platform for providing language-concordant education and support to diverse women with incontinence in the community. With support from the NIH Office of Research in Women’s Health, we propose to adapt this mobile health program for women from the two largest ethnic minority groups with high rates of limited English proficiency in the United States: Latina women whose preferred language is Spanish, and Chinese American women whose preferred language is Chinese. We will recruit midlife and older women from these backgrounds from the community and obtain their iterative, substantive feedback on the content and format of the mobile health program. Based on pilot-testing of initial language-concordant program versions as well as input from local community organizations focused on Latina and Chinese American health, we will refine program prototypes to pave the way for future follow-up studies that can evaluate feasibility, acceptability, and eventually efficacy of mobile health training in behavioral incontinence management in these populations. If the adapted mobile health program is eventually found to be effective in larger-scale trials, it can be widely disseminated by healthcare systems and community organizations to reduce the burden of incontinence among Spanish- and Chinese-speaking women nationwide, as well as adapted for additional language and ethnic groups in the future. As a result, this research has great potential to decrease disparities in incontinence for demographically important groups who have been marginalized from existing systems of incontinence care.

项目摘要 三分之一的中年和老年妇女患有尿失禁，这种情况导致抑郁症， 社会隔离，功能下降和独立生活的能力丧失。虽然行为管理 膀胱训练和骨盆底演习等策略有效控制尿失禁，许多 失禁的妇女从未接受过这些一线行为技术的适当培训。 此外，美国主流面临的行为尿失禁管理的通常障碍 女性对英语水平有限的少数民族妇女大大放大，她们很难找到 可以为英语以外的其他语言提供教育或支持的医疗保健提供者。 我们的研究涉及对培训或支持一线行为管理的严重访问 英语能力有限的少数民族妇女的尿失禁。而不是依靠稀缺 在英语以外的其他语言中尿失禁的临床专业知识的临床医生，我们 提议适应一个基于网络的，基于网络的，面向患者的针对行为尿失禁管理的计划 （MyHealtheBladder）以前是由我们的研究团队成员开发的。专为智能手机设计 图形，书面和有限的音频内容，该程序为您提供了一个潜在的可访问，可扩展的平台 在社区中为有尿失禁的妇女提供语言协同教育和支持。 在NIH妇女健康研究办公室的支持下，我们建议适应这种移动健康 来自两个最大少数民族的女性计划，英语水平较高 美国：拉丁裔女性的首选语言是西班牙语，而美国的美国女性则 首选语言是中文。我们将从这些背景中招募中年和老年妇女 社区并获得有关移动健康的内容和格式的迭代，实质性的反馈 程序。基于初始语言符合程序版本的试点测试以及本地的输入 社区组织专注于拉丁美洲和美国美国人健康，我们将完善计划原型 为将来的后续研究铺平道路，这些研究可以评估可行性，可接受性和最终有效 这些人群的行为尿失禁管理中的移动健康培训。 如果最终发现改编的移动健康计划在大型试验中有效，则可以很广泛 由医疗保健系统和社区组织传播，以减少尿失禁的燃烧 在全国范围内讲西班牙语和中文的女性中，以及适应其他语言和 将来的种族。结果，这项研究具有降低失禁差异的巨大潜力 对于从现有的失禁护理系统中被边缘化的人口重要的群体。