ANTIPHOSPHOLIPID SYNDROME COLLABORATIVE REGISTRY

这个子项目是众多研究子项目之一

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. OBJECTIVE: The purpose of this study is to establish a national registry for Antiphospholipid Syndrome (APS). The registry will collect and update clinical, demographic, and update clinical, demographic, and laboratory data on individuals with APS and asymptomatic patients with antiphospholipid antibodies. RESEARCH PLAN AND METHODS: Each of the eight sites are expected to enroll 50 patients per year of the 5-year study. Participants will be interviewed for approximately 30-45 minutes to get detailed information about medical history and features of APS. A blood sample will be obtained and stored for confirmation of the presence of antiphospholipid antibodies. Once the participant has been approved for enrollment they may be contacted about future studies involving the registry. Participants are under no obligation to participate in these studies.