STRESS BUSTING PROGRAM FOR CAREGIVERS OF PTS WITH CHRONIC NEUROLOGIC DISEASES

慢性神经系统疾病患者护理人员的减压计划

• 批准号: 7627517
• 负责人: SHARON L. LEWIS
• 金额: $ 2.45万
• 依托单位: UNIVERSITY OF TEXAS HLTH SCIENCE CENTER
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-01 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7627517
• 关键词: Acute; Adult Children; Aging; Alzheimer' s Disease; Behavioral; Biological; Blood Pressure; Blood Volume; Caregivers; Caring; Chronic; Cognitive; Computer Retrieval of Information on Scientific Projects Database; Disease; Educational process of instructing; Effectiveness; Effectiveness of Interventions; Emotional; Family Caregiver; Feeling; Funding; Future; Galvanic Skin Response; Goals; Grant; Health; Health Promotion; Healthcare Systems; Home environment; Hour; Immune; Immune response; Immunocompetence; Institution; Institutionalization; Laboratories; Life; Longevity; Measurement; Measures; Mental Depression; Multiple Sclerosis; Muscle Tension; Outcome; Parkinson Disease; Patients; Personal Satisfaction; Physiologic pulse; Pulse taking; Quality of life; Randomized Clinical Trials; Relative (related person); Relaxation; Research; Research Personnel; Resources; Science; Services; Skin Temperature; Source; Spouse Caregiver; Standards of Weights and Measures; Stress; Stroke; Support Groups; System; Techniques; Technology; Testing; Thinking; Time; United States National Institutes of Health; Week; Weight; base; caregiving; chronic neurologic disease; clinically significant; compare effectiveness; coping; cost; cost effective; design; experience; follow-up; improved; instrument; nervous system disorder; programs; psychosocial; response; stress management; stressor; theories

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. Aging baby boomers, long life spans, and rising levels of chronic, debilitating disease will result in a major caregiver crisis in the near future. Although family caregivers perform an incredibly valuable service for their relatives and the formal health care system, they do so at a considerable cost to themselves both emotionally and physically. If the caregiving system collapses under the weight of unsupported responsibilities, increased acute care and institutionalization of the patients will be likely outcomes. New programs are vitally needed to support and sustain family caregivers. Effective stress management techniques can 1) help to decrease the caregivers' feelings of burden and stress, 2) improve the emotional and physical health of caregivers, and 3) empower caregivers to gain control of their lives. The overall goal of this randomized clinical trial is to determine the effectiveness of a stress-busting program (SBP) for caregivers of patients with chronic neurological diseases including stroke, Alzheimer's disease, multiple sclerosis, and Parkinson's disease. Specific research objectives include: 1. Prospectively determine the effects of a SBP compared to a standard support group (SSG) on quality of life and immune response in caregivers of patients with chronic neurological diseases. Subjects will be tested at baseline, at completion of 6 weeks of SBP or SSG, and at 2- and 4-month follow-up sessions. 2. Determine subjects' relaxation response as well as their response to acute laboratory stressors using bioinstrumentation. Muscle tension, electrodermal response, skin temperature, blood volume pulse, and blood pressure will be measured. Subjects will be tested at baseline, at completion of 6 weeks of a SBP or SSG, and at 2- and 4-month follow-up sessions. 3. Compare the effectiveness of SBP or SSG for adult children caregivers as compared to spousal caregivers based on quality of life measurements, immune parameters, and relaxation response. The proposed multimodal SBP will focus on a variety of approaches based on cognitive behavioral and relaxation response theories. SBP will consist of a 6-week program with 1 1/2-hour sessions per week. The setting will be an educational support group with topics related to stress, stress and challenges of caregiving, depression, coping strategies, positive thinking, and taking time for oneself. In addition, subjects will be taught simple relaxation strategies that they can practice at home. The SSG will meet for 6 weeks for 1 1/2 hours per session. A repeated measures design will be used to determine the effectiveness of SBP compared to SSG. Outcomes will be measured using psychosocial instruments as well as state-of-the science technology including bioinstrumentation and immune parameters to measure biological responses. Follow-up testing will be done 2 and 4 months after the end of the SBP or SSG to determine the long-term effectiveness of the intervention. The SBP is proposed as a way to decrease the level of stress experienced by caregivers and teach them effective coping strategies. The hypothesized outcome is an improvement in emotional and physical well-being. If SBP is found to be more effective than SSG in decreasing stress, improving quality of life, promoting relaxation, and/or enhancing immunocompetence in family caregivers, these findings could have important clinical significance for providing a cost effective health promotion strategy for a group of people who experience tremendous ongoing stress.

该副本是利用众多研究子项目之一 由NIH/NCRR资助的中心赠款提供的资源。子弹和 调查员（PI）可能已经从其他NIH来源获得了主要资金， 因此可以在其他清晰的条目中代表。列出的机构是 对于中心，这不一定是调查员的机构。 衰老的婴儿潮一代，长寿跨度以及慢性衰弱疾病的不断增长将导致不久的将来发生重大的照顾者危机。 尽管家庭护理人员为亲戚和正式的医疗保健系统提供了令人难以置信的宝贵服务，但他们在情感和身体上都以相当大的代价来做。 如果护理系统在不受支持的责任的重量下崩溃，则可能会导致患者的急性护理和制度化增加。 需要新计划来支持和维持家庭护理人员。 有效的压力管理技术可以1）有助于减轻看护人的负担和压力的感觉，2）改善照料者的情绪和身体健康，3）赋予照顾者能够控制他们的生活。 这项随机临床试验的总体目标是确定慢性神经系统疾病患者的护理人员（包括中风，阿尔茨海默氏病，多发性硬化症和帕金森病）的护理人员的有效性。 具体研究目标包括： 1。与标准支持组（SSG）相比，SBP对慢性神经系统疾病患者的护理人员的生活质量和免疫反应相比，确定了SBP的影响。 受试者将在基线，6周的SBP或SSG以及2个月和4个月的随访时进行测试。 2。确定受试者的放松反应以及他们使用生物启示对急性实验室压力源的反应。 将测量肌肉张力，电肌反应，皮肤温度，血液体积脉冲和血压。 受试者将在基线，SBP或SSG的6周完成时进行测试，并在2个月和4个月的随访课程中进行测试。 3。根据生活质量测量，免疫参数和放松反应，比较了SBP或SSG对成年儿童护理人员的有效性。 提出的多模式SBP将重点放在基于认知行为和放松响应理论的各种方法上。 SBP将包括一个为期6周的计划，每周1 1/2小时的课程。 该环境将是一个教育支持小组，其主题与压力，压力和挑战有关，抑郁，应对策略，积极思考和抽出时间为自己。 此外，将教会受试者可以在家练习的简单放松策略。 SSG每次会议将开会6周，持续1 1/2小时。 与SSG相比，将使用重复的措施设计来确定SBP的有效性。 结果将使用社会心理仪器以及最先进的科学技术来衡量，包括生物启示和免疫参数，以衡量生物学反应。 后续测试将在SBP或SSG结束后2和4个月进行，以确定干预的长期有效性。 建议SBP是一种减少照料者所经历的压力水平并教导他们有效应对策略的一种方式。 假设的结果是情绪和身体健康的改善。 如果发现SBP在减轻压力，改善生活质量，促进放松和/或增强家庭护理人员的免疫能力方面比SSG更有效，那么这些发现可能具有重要的临床意义，可为一组经历巨大持续压力的人提供成本有效的健康促进策略。