THALASSEMIA CLINICAL RESEARCH NETWORK REGISTRY

地中海贫血临床研究网络注册中心

• 批准号: 7607256
• 负责人: ELLIS J NEUFELD
• 金额: $ 0.07万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-01 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7607256
• 关键词: American; Caring; Clinical; Clinical Research; Clinical Trials; Collaborations; Computer Retrieval of Information on Scientific Projects Database; Data; Disease; Funding; Grant; Hematological Disease; Institution; Numbers; Patients; Protocols documentation; Purpose; Range; Registries; Research; Research Personnel; Resources; Source; Thalassemia; United States National Institutes of Health

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The Thalassemia Clinical Research Network is a collaboration among five North American clinical centers to examine the blood disorder thalassemia. The Network will be comprised of a Registry and a number of separate clinical trials and studies relating to thalassemia and its complications. The purpose of the Registry is to collect routine clinical care baseline data on patients with thalassemia. Using these data, we will be able to describe this group of patients and the range of complications that they are afflicted with as a result of their disorder and treatment. Using the Registry data, we will also be able to determine how many patients are potentially eligible for other Thalassemia Clinical Research Network protocols.

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目和 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 研究中心，而研究中心不一定是研究者所在的机构。 地中海贫血临床研究网络是五个北美临床中心之间的合作，以检查血液疾病地中海贫血。 该网络将由一个登记处和若干与地中海贫血症及其并发症有关的单独临床试验和研究组成。 登记的目的是收集地中海贫血患者的常规临床护理基线数据。 使用这些数据，我们将能够描述这组患者以及他们因疾病和治疗而遭受的并发症的范围。 使用登记数据，我们还将能够确定有多少患者可能符合其他地中海贫血临床研究网络方案的条件。