THALASSEMIA CLINICAL RESEARCH NETWORK REGISTRY

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 地中海贫血临床研究网络是北美五个临床中心合作检查血液疾病地中海贫血的组织。该网络将由一个登记处和一些与地中海贫血及其并发症有关的单独临床试验和研究组成。 该登记处的目的是收集地中海贫血患者的常规临床护理基线数据。使用这些数据，我们将能够描述这组患者以及他们因疾病和治疗而遭受的并发症的范围。使用注册中心的数据，我们还将能够确定有多少患者有可能符合其他地中海贫血临床研究网络方案的条件。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The Thalassemia Clinical Research Network is a collaboration among five North American clinical centers to examine the blood disorder thalassemia. The Network will be comprised of a Registry and a number of separate clinical trials and studies relating to thalassemia and its complications. The purpose of the Registry is to collect routine clinical care baseline data on patients with thalassemia. Using these data, we will be able to describe this group of patients and the range of complications that they are afflicted with as a result of their disorder and treatment. Using the Registry data, we will also be able to determine how many patients are potentially eligible for other Thalassemia Clinical Research Network protocols.