UNIVERSAL DATA AND SERUM SPECIMEN COLLECTION SYSTEM FOR HEMOPHILIA

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This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. 2. A. Specific Aims /Objectives The Universal Data and Serum Specimen Collection System will extend CDC¿s collaboration with the Hemophilia Treatment Centers (HTC) by assisting with the analysis of a uniform set of clinical data routinely collected by HTCs. These data are used to monitor the extent of complications of congenital bleeding disorders in the U.S. Specific measurements will be analyzed to evaluate the degree of joint disease. In addition, free testing of serum specimens collected annually from persons receiving care in the HTCs for the presence of blood borne pathogens will be offered by CDC to assist HTCs in monitoring related infections. After testing, the remainder of each serum specimen will be used by the CDC to establish a serum bank for possible future use in evaluating the safety of blood products used by these persons.