UNIVERSAL DATA AND SERUM SPECIMEN COLLECTION SYSTEM FOR HEMOPHILIA

血友病通用数据和血清样本采集系统

• 批准号: 7607273
• 负责人: ELLIS J NEUFELD
• 金额: $ 0.22万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-01 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7607273
• 关键词: Blood; Blood-Borne Pathogens; Caring; Centers for Disease Control and Prevention (U.S.); Clinical Data; Collaborations; Computer Retrieval of Information on Scientific Projects Database; Data; Disease; Funding; Future; Grant; Hemophilia A; Hemorrhage; Infection; Institution; Measurement; Monitor; Persons; Research; Research Personnel; Resources; Safety; Serum; Source; Specimen; System; Testing; United States National Institutes of Health; arthropathies; sample collection; treatment center

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. Specific Aims /Objectives: The Universal Data and Serum Specimen Collection System will extend CDC's collaboration with the Hemophilia Treatment Centers (HTC) by assisting with the analysis of a uniform set of clinical data routinely collected by HTCs. These data are used to monitor the extent of complications of congenital bleeding disorders in the U.S. Specific measurements will be analyzed to evaluate the degree of joint disease. In addition, free testing of serum specimens collected annually from persons receiving care in the HTCs for the presence of blood borne pathogens will be offered by CDC to assist HTCs in monitoring related infections. After testing, the remainder of each serum specimen will be used by the CDC to establish a serum bank for possible future use in evaluating the safety of blood products used by these persons.

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 具体目标/目标： 通用数据和血清样本收集系统将通过协助分析血友病治疗中心(HTC)常规收集的一套统一的临床数据，扩大CDC与血友病治疗中心(HTC)的合作。这些数据被用来监测美国先天性出血疾病的并发症程度。具体的测量将被分析以评估关节疾病的程度。此外，疾病控制与预防中心亦会免费测试每年从血液中心接受护理的人士的血清样本，以确定是否有血液传播的病原体，以协助血液中心监测相关的感染情况。检测后，每个血清样本的剩余部分将被疾病预防控制中心用来建立一个血清库，供将来评估这些人使用的血液产品的安全性时使用。