Motor Neurone Disease: Patient centred care for a progressive neurological disease - evidence driving policy.

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Motor neurone diseases (MNDs) are adult-onset neurodegenerative disorders where progressive motor weakness leads to death, usually from respiratory failure within 2-3 years. The aim of this project is to create a national data capture app that collects health information from patients that can be used by them and their healthcare providers to manage their own health needs and furthermore can be collated to inform research and in turn direct national policy.