Communication, quality of life and advance care planning for people with motor neurone disease and their caregiver.

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People with motor neurone disease experience devastating deterioration in movement, communication, swallowing and ultimately breathing. Research is required to determine if the advance care planning (ACP) process for people with MND is impacted by communication impairment. This study will build evidence to improve the ACP process for this vulnerable patient group. It also aims to investigate the impact communication impairment has on caregivers’ quality of life in order to improve carer support.