Establish a Vision and Eye Health Surveillance System for the Nation

建立国家视力和眼睛健康监测系统

• 批准号: 9320018
• 负责人: David B Rein
• 金额: $ 100万
• 依托单位: NATIONAL OPINION RESEARCH CENTER
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-30 至 2019-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9320018
• 关键词: Establish; Vision; Eye; Health; Surveillance

 DESCRIPTION (provided by applicant): This study will establish a vision and eye health surveillance system for the nation, fulfilling a vital public health need. Our vision for the natio's new surveillance system calls for harnessing our existing epidemiological knowledge and federal survey resources while introducing exciting new data sources, harmonized and integrated based on new vision and eye health indicators defined under the oversight of an Expert Advisory Panel. We will employ advanced statistical methodologies including small area estimation and multiple imputation to leverage high-level, biased data including epidemiological studies, electronic health record and claims data with lower-level, nationally representative survey data to create robust and detailed population estimates of detailed vision and eye health prevalence and eye care utilization rates. We will develop a comprehensive website with rich content and interactive data analysis functionality. Throughout the entirety of the program we will conduct an extensive public outreach with a structured dissemination strategy, releasing annual publications, integrating program information and results as featured presentations and panels at the annual Focus on Eye Health National Summits, in Congressional Vision Caucus meetings, at professional organization conferences, and through the Prevent Blindness national affiliate network. We have built a team with focused expertise as well as broad-based resources necessary to fulfill the requirements of this cooperative agreement. NORC at the University of Chicago brings exceptional experience in the areas of data collection, harmonization and security, analysis, and web-based dissemination. Principal Investigator David Rein and his team bring substantial experience working with the CDC Vision Health Initiative on a wide range of prior projects, including visual and eye health epidemiology, forecasting and health economics research. Prevent Blindness is the nation's leading visual health prevention and communications organization. Under the direction of Jeff Todd, the PI of two prior CDC cooperative agreements, Prevent Blindness will lead our outreach and dissemination strategy. The University of Wisconsin's Ronald and Barbara Klein are among the nation's leading experts on visual health data and indicators. Our consultant Eve Mokotoff is a nationally recognized expert in surveillance, with 30 years of experience establishing surveillance systems. Finally, our team brings three innovative new data sources to this project; VSP offers their national data system of over 200 million patient optometry and ophthalmology records, the American Academy of Ophthalmology's IRIS Registry will deliver patent-level electronic health records from 80% of the nation's ophthalmologists, and NORC's AmeriSpeak web-panel will provide low-cost, customizable data collection including computerized vision function assessment.

 描述（由申请人提供）：这项研究将为国家建立视力和眼睛健康监测系统，满足重要的公共卫生需求。我们对国家新监测系统的愿景要求利用我们现有的流行病学知识和联邦调查资源，同时引入令人兴奋的新数据源，并根据在专家咨询小组的监督下定义的新视力和眼睛健康指标进行协调和整合。我们将采用先进的统计方法，包括小区域估计和多重插补，以利用高水平、有偏见的数据，包括流行病学研究、电子健康记录和索赔数据，以及较低水平的全国代表性调查数据，以创建对详细视力和眼健康患病率以及眼保健利用率的稳健而详细的人口估计。我们将开发一个具有丰富内容和交互式数据分析功能的综合网站。在整个计划中，我们将采用结构化的传播策略进行广泛的公众宣传，发布年度出版物，将计划信息和结果整合为年度重点眼健康国家峰会、国会视力核心小组会议、专业组织会议以及通过预防失明国家附属网络的特色演示和小组讨论。我们已经建立了一支拥有专业知识和广泛资源的团队，以满足该合作协议的要求。芝加哥大学的 NORC 在数据收集、协调和安全、分析以及基于网络的传播领域拥有卓越的经验。首席研究员 David Rein 和他的团队带来了与 CDC 视觉健康计划合作开展一系列先前项目的丰富经验，包括视觉和眼睛健康流行病学、预测和健康经济学研究。 Prevent Blindness 是美国领先的视觉健康预防和交流组织。在之前两项 CDC 合作协议的 PI Jeff Todd 的指导下，Prevent Blindness 将领导我们的外展和传播策略。威斯康星大学的罗纳德·克莱因和芭芭拉·克莱因是美国视觉健康数据和指标领域的顶尖专家。我们的顾问 Eve Mokotoff 是全国公认的监控专家，拥有 30 年建立监控系统的经验。最后，我们的团队为这个项目带来了三个创新的新数据源； VSP 提供包含超过 2 亿患者验光和眼科记录的国家数据系统，美国眼科学会的 IRIS 登记处将提供来自全国 80% 眼科医生的专利级电子健康记录，NORC 的 AmeriSpeak 网络面板将提供低成本、可定制的数据收集，包括计算机视觉功能评估。