Establish a Vision and Eye Health Surveillance System for the Nation

 描述(申请人提供)：这项研究将建立一个国家的视力和眼睛健康监测系统，满足一个重要的公共卫生需求。我们对国家新监测系统的愿景要求利用我们现有的流行病学知识和联邦调查资源，同时引入令人兴奋的新数据来源，根据在专家咨询小组监督下定义的新视力和眼睛健康指标进行协调和整合。我们将使用先进的统计方法，包括小区域估计和多重归因，以利用高水平的、有偏见的数据，包括流行病学研究、电子健康记录和索赔数据，以及较低水平的、具有全国代表性的调查数据，以创建详细的视力和眼睛健康患病率和眼睛护理使用率的稳健和详细的人口估计。我们将开发一个内容丰富、具有交互数据分析功能的综合性网站。在整个计划中，我们将通过结构化的传播战略进行广泛的公众宣传，发布年度出版物，将计划信息和结果整合为年度关注眼睛健康全国峰会、国会视力核心小组会议、专业组织会议和预防失明全国附属网络的专题演讲和小组讨论。我们已经建立了一支团队，拥有专注的专业知识和广泛的资源，以满足本合作协议的要求。在芝加哥大学的NORC在数据收集、协调和安全、分析和基于网络的传播方面带来了独特的经验。首席研究员David Rein和他的团队在CDC Vision Health Initiative的一系列先前项目中带来了丰富的经验，包括视觉和眼睛健康流行病学、预测和卫生经济学研究。预防失明是全国领先的视觉健康预防和传播组织。在疾病预防控制中心之前两项合作协议的PI杰夫·托德的指导下，预防失明将领导我们的外展和传播战略。威斯康星大学的罗纳德和芭芭拉·克莱因是美国视觉健康数据和指标方面的顶尖专家。我们的顾问Eve Mokotoff是全国公认的监控专家，拥有30年建立监控系统的经验。最后，我们的团队为该项目带来了三个创新的新数据源：VSP提供他们的国家数据系统，其中包括2亿多名患者的验光和眼科记录；美国眼科学会的IRIS注册表将提供全国80%眼科医生的专利级电子健康记录；以及NORC的ameriSak网络面板将提供低成本、可定制的数据收集，包括计算机化的视觉功能评估。

 DESCRIPTION (provided by applicant): This study will establish a vision and eye health surveillance system for the nation, fulfilling a vital public health need. Our vision for the natio's new surveillance system calls for harnessing our existing epidemiological knowledge and federal survey resources while introducing exciting new data sources, harmonized and integrated based on new vision and eye health indicators defined under the oversight of an Expert Advisory Panel. We will employ advanced statistical methodologies including small area estimation and multiple imputation to leverage high-level, biased data including epidemiological studies, electronic health record and claims data with lower-level, nationally representative survey data to create robust and detailed population estimates of detailed vision and eye health prevalence and eye care utilization rates. We will develop a comprehensive website with rich content and interactive data analysis functionality. Throughout the entirety of the program we will conduct an extensive public outreach with a structured dissemination strategy, releasing annual publications, integrating program information and results as featured presentations and panels at the annual Focus on Eye Health National Summits, in Congressional Vision Caucus meetings, at professional organization conferences, and through the Prevent Blindness national affiliate network. We have built a team with focused expertise as well as broad-based resources necessary to fulfill the requirements of this cooperative agreement. NORC at the University of Chicago brings exceptional experience in the areas of data collection, harmonization and security, analysis, and web-based dissemination. Principal Investigator David Rein and his team bring substantial experience working with the CDC Vision Health Initiative on a wide range of prior projects, including visual and eye health epidemiology, forecasting and health economics research. Prevent Blindness is the nation's leading visual health prevention and communications organization. Under the direction of Jeff Todd, the PI of two prior CDC cooperative agreements, Prevent Blindness will lead our outreach and dissemination strategy. The University of Wisconsin's Ronald and Barbara Klein are among the nation's leading experts on visual health data and indicators. Our consultant Eve Mokotoff is a nationally recognized expert in surveillance, with 30 years of experience establishing surveillance systems. Finally, our team brings three innovative new data sources to this project; VSP offers their national data system of over 200 million patient optometry and ophthalmology records, the American Academy of Ophthalmology's IRIS Registry will deliver patent-level electronic health records from 80% of the nation's ophthalmologists, and NORC's AmeriSpeak web-panel will provide low-cost, customizable data collection including computerized vision function assessment.