Palliative Care Research Cooperative Group (PCRC): Caregiver Research Core

姑息治疗研究合作小组 (PCRC)：护理人员研究核心

• 批准号: 10438799
• 负责人: BETTY R FERRELL
• 金额: $ 11.83万
• 依托单位: UNIVERSITY OF COLORADO DENVER
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-28 至 2023-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10438799
• 关键词: Address; Area; Caregiver research; Caregivers; Childhood; Clinical Research; Clinical Trials; Collaborations; Common Data Element; Consult; Consultations; Data; Development; Economically Deprived Population; Elements; Engineering; Ensure; Faculty; Family member; Goals; Hospice Care; Informatics; Intervention; Investigation; Leadership; Libraries; Measurement; Measures; Mental Health; Mentors; Methodological Studies; Methodology; Mission; Multi-Institutional Clinical Trial; Outcome; Palliative Care; Palliative Care Nursing; Patients; Play; Population; Productivity; Recording of previous events; Reporting; Research; Research Design; Research Methodology; Research Personnel; Research Priority; Role; Science; Site; Special Population; Standardization; Training; Underrepresented Minority; United States National Academy of Sciences; Work; care providers; caregiving; end of life; health seeking behavior; improved; innovation; instrument; member; multiple chronic conditions; physical conditioning; recruit; research study; statistics; synergism; webinar

PROJECT SUMMARY/ABSTRACT The primary goals of this U2C application are to increase the productivity and impact of the Palliative Care Research Cooperative Group (PCRC) through facilitating conduct of high-quality, effective clinical research and expanding the number and expertise of palliative care researchers conducting multi-site clinical trials. In pursuit of these overall goals and objectives, the Caregiver Research Core, one of four Cores within the PCRC, strives to work closely with the other PCRC methodologic Cores (Data, Informatics and Statistics; Measurement; and Clinical Studies/Methodology) to help investigators propose and conduct the highest quality end of life and palliative care (EOLPC) caregiver research, addressing identified gaps in caregiver science and further the mission and goals of the PCRC. The Caregiver Core's specific aims are: (1) to facilitate the continuous development, refinement and conduct of rigorous multi-site EOLPC caregiver (including family members and providers of care) research studies; (2) to guide investigation into research priority areas of EOLPC caregiving, with a particular focus on underrepresented minorities and those who are economically disadvantaged, those with multiple chronic conditions, and pediatric populations; (3) to continue to recommend caregiver measures that will help establish Common Data Elements across EOLPC studies; (4) to collaborate with the three other Cores (Data, Informatics, and Statistics; Measurement; and Clinical Studies/Methodology) to promote synergy among the Cores and create consistency among studies that consult with the PCRC; and (5) to work closely with the Investigator Development Center to mentor and train PCRC members in rigorous EOLPC caregiver research. By achieving these aims, the Caregiver Core will standardize and advance this important element of EOLPC research.

项目总结/摘要 此U2 C应用程序的主要目标是提高姑息治疗的生产率和影响力 研究合作组（PCRC）通过促进高质量，有效的临床研究的进行 扩大进行多点临床试验的姑息治疗研究人员的数量和专业知识。在 追求这些总体目标和目的，护理人员研究核心，四个核心之一， PCRC，努力与其他PCRC方法学核心（数据，信息学和统计学; 测量;和临床研究/方法学），以帮助研究者提出和进行最高质量的 临终关怀和姑息治疗（EOLPC）护理人员研究，解决护理人员科学和 进一步实现PCRC的使命和目标。护理核心的具体目标是：（1）促进 不断发展、完善和指导严格的多地点EOLPC护理人员（包括家庭 （2）指导对研究优先领域的调查， EOLPC支持，特别关注代表性不足的少数民族和经济上处于弱势的人 弱势群体，患有多种慢性疾病的人和儿科人群;（3）继续建议 帮助建立EOLPC研究中的通用数据元素的护理人员措施;（4）合作 与其他三个核心（数据，信息学和统计学;测量;和临床研究/方法） 促进各核心研究之间的协同作用，并使与PCRC协商的研究保持一致;以及 (5)与研究者发展中心密切合作，指导和培训PCRC成员， EOLPC护理人员研究。通过实现这些目标，Caregiver Core将标准化和推进这一目标。 EOLPC研究的重要组成部分。