The Use of Diversity: Managing Race and Representation in Law, Politics, and the Biosciences

多样性的运用：管理法律、政治和生物科学中的种族和代表性

基本信息

批准号：
10652571
负责人：
JONATHAN KAHN
金额：
$ 4.64万
依托单位：
NORTHEASTERN UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-08-01 至 2024-07-31
项目状态：
已结题

项目摘要

Project Summary Over the past decade, “diversity” has become a sine qua non of genomic research through such programs as the Precision Medicine Initiative and related efforts to build massive genetic data bases. This book will examine the biomedical, social, legal, commercial, and policy implications of diversity’s emergence as a central organizing concept animating an array of programs and research agendas aimed at driving forward genomic innovation. As diversity has come to the fore as a central organizing concept of modern genomic research and policy, distinctions between social and biological rationales for foregrounding racial categories in genomic enterprises have become conflated, confused, and confounded. Such conceptual entanglements have profound implications both for our on-going understandings of the nature of human similarly/difference and for concomitant allocation of goods, resources, and status relating to race and race-relations in society today. These initiatives present a double-pronged re-reification of race as genetic: First, through the conflation of socially defined racial groups with distinctive and discrete genetic clusters; and Second, through the molecularization of social phenomena that disparately impact racial groups. The former threatens to reinvigorate dangerous, reductive, and racist constructions of race as genetic; the latter threatens to geneticize health disparities themselves, both blaming the victims and directing attention away from the social, legal, and political initiatives that need to be undertaken in order to address such problems. Diversity is a concept ready-made for conflating racial and genetic categories because diversity itself has roots in both worlds. Diversity is a useful concept, but like race itself, it can be hard to define and even harder to use in a productive way that avoids the dangers of genetic essentialism and racial reification. Hence the need to identify and address these challenges in each new manifestation as they arise. To do this, it is necessary to trace the stories of these different forms of diversity through a book-length treatment that will allow for a full exploration and analysis of the complexities of managing race and diversity at the intersections of law, politics, and biomedicine. Having traced the progression of the entanglements of diversities from the 1970s to the present-day, the book will draw practical lessons and propose concrete suggestions for the more careful, deliberate, and productive management of race and representation in the intersecting domains of biomedicine, law, and politics.

项目摘要在过去的十年中，“多样性”已成为基因组研究的正当程度计划作为精确医学计划和相关的努力，以建立大规模的遗传数据基地。本书将研究生物医学，社会，法律，商业和政策的影响多样性的出现是一种中心组织概念，使一系列程序和研究议程旨在推动前进的基因组创新。随着多样性的到来作为现代基因组研究和政策的核心组织概念，截然不同在基因组中的种族类别的社会和生物学理由之间企业已经变得混乱，混乱和混乱。这样的概念纠缠对我们对本质的持续理解具有深远的影响人类类似/差异以及伴随商品，资源和地位的分配与当今社会的种族和种族关系有关。这些举措呈现了种族的双臂重新化为遗传：首先，通过与具有独特和离散遗传簇的社会定义的种族群体相结合；和其次，通过社会现象的分子化，这些现象不同地影响种族组。前者威胁要恢复危险，减少和种族主义的建筑种族作为遗传；后者威胁要遗传健康分配本身，既指责令人恐惧而引导的关注远离需要的社会，法律和政治倡议为了解决此类问题而进行。多样性是将赛车和遗传类别融合在一起的概念，因为多样性本身在两个世界上都有根源。多样性是一个有用的概念，但是像种族本身一样，很难定义甚至更难以避免通用危险的产品方式使用本质主义和种族化。因此，需要在每种新的表现都出现。为此，有必要追踪这些故事通过书本长度的处理方式不同形式的多样性，这将允许进行全面探索以及分析法律交集中种族和多样性的复杂性，政治和生物医学。追溯了从 1970年代至今，这本书将吸引实用的课程和提案混凝土建议对种族的更谨慎，故意和产品管理以及在生物医学，法律和政治的相交领域中的代表。