Colliding Categories: Haplotypes, Race & Ethnicity

碰撞类别：单倍型、种族

• 批准号: 6611898
• 负责人: JONATHAN KAHN
• 金额: $ 28.22万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2003
• 资助国家: 美国
• 起止时间: 2003-07-01 至 2005-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6611898
• 关键词: Internet; ethics; ethnic group; genetic mapping; genotype; meeting /conference /symposium; social class

DESCRIPTION: (provided by applicant) The aim of this project is to explore the ethical and legal ramifications of the impending collision between biological and regulatory classifications of population subgroups in American society. The project will examine the interaction between biological categories emerging from the effort to create a haplotype map of the human genome and preexisting categories specifying race and ethnicity embodied in the U.S. Office of Management and Budget's Directive 15, which governs collection of data by all federal agencies and in federally funded research. This two-year project will be led by researchers in the University of Minnesota's Consortium on Law and Values in Health, Environment & the Life Sciences with the collaboration of three Consortium members: the University's Center for Bioethics, Biomedical Genomics Center, and Institute of Human Genetics. The Project will also utilize a Working Group of scholars drawn from across the nation with expertise in law, pharmacology, human genetics, public health, anthropology, environmental health, sociology, and history. The Working Group will convene four times during a two-year period. The major goal of this project is to analyze how the information emerging from haplotype mapping will and should interact with preexisting social categories of race and ethnicity mandated by OMB Directive 15. The project will disseminate its findings through a consensus article, web-based materials, a national conference to be held during its second year, and a published symposium growing out of that conference.

描述：（由申请人提供）该项目的目的是探讨美国社会人口亚群的生物分类和监管分类之间即将发生的冲突的伦理和法律后果。该项目将研究创建人类基因组单倍型图谱的努力中出现的生物类别与美国管理和预算办公室第 15 号指令中具体规定种族和民族的现有类别之间的相互作用，该指令管理所有联邦机构和联邦资助的研究的数据收集。 这个为期两年的项目将由明尼苏达大学健康、环境和生命科学法律和价值观联盟的研究人员领导，并与该联盟的三个成员合作：明尼苏达大学生物伦理中心、生物医学基因组中心和人类遗传学研究所。该项目还将利用一个由来自全国各地具有法律、药理学、人类遗传学、公共卫生、人类学、环境健康、社会学和历史专业知识的学者组成的工作组。该工作组将在两年内召开四次会议。 该项目的主要目标是分析单倍型作图产生的信息将如何并且应该与 OMB 指令 15 规定的预先存在的种族和族裔社会类别相互作用。该项目将通过共识文章、基于网络的材料、将在第二年举行的全国会议以及该会议衍生的已发表的研讨会来传播其研究结果。