Understanding Oral Diseases in Cystic Fibrosis to Develop Tailored Preventive Dental Interventions.

摘要 囊性纤维化患者可以接受多专业团队的常规医疗护理， 医疗供应商。与患者互动的每个CF护理团队成员往往专注于 他们的治疗计划的唯一主要目标。例如，肺科医生主要关注 对呼吸系统健康的影响，可能会忽略个人的口腔保健需要。营养师可以 更专注于确保CF患者体重增加，因此会建议 他们的病人吃富含碳水化合物的食物和果汁。然而，缺乏关注 与最佳口腔健康目标直接冲突的建议可能会造成 个人从不同的提供商收到不一致的消息的情况， 可能会对他们的口腔健康有害，这是未来口腔护理中需要解决的一个因素。 以健康为重点的干预措施。在这个项目中，我将与CF护理提供者进行60次访谈， 包括护士、呼吸治疗师、物理治疗师、社会工作者、营养师， 肺科医生本研究是一项为期5年的观察性U01母研究的补充， 研究囊性纤维化患者口腔健康疾病的行为危险因素。 这项母研究是迄今为止规模最大的第一项纵向CF口腔健康研究，也是第一项 评估CF中与口腔疾病相关的呼吸结局。我们将比较我们的 提供者访谈结果与更大规模的母研究U01的结果相比较，该研究将包括 210项研究的调查答复、定性访谈、口腔健康数据和肺部健康数据 囊性纤维化患者。本补充研究对母研究进行了扩展， 深入了解CF护理提供者与患者沟通的内容，以及 沟通影响口腔健康。这项研究将使我们能够看到风险因素之间的联系， 数据，与母公司U01研究的第一个目标合作，并开发行为 涉及CF护理提供者的干预措施，旨在促进个人的口腔健康 关于CF

Abstract Individuals with cystic fibrosis receive routine medical care from a multi-specialty team of medical providers. Each CF care team member a patient interacts tends to be focused on a unique primary goal for their treatment plan. For example, pulmonologists are focused primarily on respiratory health and may overlook the individual’s oral health care needs. A dietician may be more focused on ensuring that the individual with CF is gaining weight, and thus will advise their patients to eat carbohydrate-rich foods and fruit juices. However, the absence of attention to oral health and advice that is in direct conflict with the goals of optimal oral health may create a scenario in which the individual receives inconsistent messaging from various providers, which could be harmful to their oral health and a factor that would need to be addressed in future oral health-focused interventions. In this project, I will conduct 60 interviews with CF care providers, including nurses, respiratory therapists, physical therapists, social workers, dieticians, and pulmonologists. This study is a supplement to a 5-year observational U01 parent study that investigates the behavioral risk factors for oral health disease for individuals with cystic fibrosis. The parent study is the largest and first longitudinal CF oral health study to date, and the first to evaluate respiratory outcomes associated with oral diseases in CF. We will compare our provider interview findings to the findings of the larger parent U01 study, which will consist of survey responses, qualitative interviews, oral health data, and lung health data for 210 study participants with cystic fibrosis. This supplemental study expands on the parent study by providing insight into what CF care providers are communicating to patients, and how this communication impacts oral health. This study will allow us to see risk factor connections across the data, in partnership with the first aim of the parent U01 study, and to develop behavioral interventions involving CF care providers that are aimed at promoting oral health in individuals with CF.