Understanding Oral Diseases in Cystic Fibrosis to Develop Tailored Preventive Dental Interventions.

了解囊性纤维化中的口腔疾病以制定量身定制的预防性牙科干预措施。

• 批准号: 10664785
• 负责人: Donald Leslie Chi
• 金额: $ 2.49万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-04-13 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10664785
• 关键词: Address; Adolescent and Young Adult; Attention; Behavior Therapy; Behavioral; Carbohydrates; Caring; Communication; Conflict (Psychology); Cystic Fibrosis; Data; Dental; Diet; Disease; Doctor of Philosophy; Eating; Ensure; First Generation College Students; Fluorides; Food; Fruit; Future; Goals; Health Disparities Research; Healthcare; Hygiene; Individual; Intervention; Interview; Juice; Low income; Medical; Mexican Americans; Mouth Diseases; National Institute of Dental and Craniofacial Research; Nurses; Oral health; Outcome; Parents; Participant; Patients; Preparation; Preventive; Provider; Qualitative Research; Recommendation; Research; Research Training; Risk Factors; Scientist; Social Workers; Sociology; Surveys; Testing; Time; Training; Training Support; Vulnerable Populations; Weight Gain; care providers; career; career development; cystic fibrosis patients; disorder risk; experience; health data; health disparity; insight; lung health; medical specialties; member; physical therapist; programs; respiratory; respiratory health; response; skills; social; treatment planning

Abstract Individuals with cystic fibrosis receive routine medical care from a multi-specialty team of medical providers. Each CF care team member a patient interacts tends to be focused on a unique primary goal for their treatment plan. For example, pulmonologists are focused primarily on respiratory health and may overlook the individual’s oral health care needs. A dietician may be more focused on ensuring that the individual with CF is gaining weight, and thus will advise their patients to eat carbohydrate-rich foods and fruit juices. However, the absence of attention to oral health and advice that is in direct conflict with the goals of optimal oral health may create a scenario in which the individual receives inconsistent messaging from various providers, which could be harmful to their oral health and a factor that would need to be addressed in future oral health-focused interventions. In this project, I will conduct 60 interviews with CF care providers, including nurses, respiratory therapists, physical therapists, social workers, dieticians, and pulmonologists. This study is a supplement to a 5-year observational U01 parent study that investigates the behavioral risk factors for oral health disease for individuals with cystic fibrosis. The parent study is the largest and first longitudinal CF oral health study to date, and the first to evaluate respiratory outcomes associated with oral diseases in CF. We will compare our provider interview findings to the findings of the larger parent U01 study, which will consist of survey responses, qualitative interviews, oral health data, and lung health data for 210 study participants with cystic fibrosis. This supplemental study expands on the parent study by providing insight into what CF care providers are communicating to patients, and how this communication impacts oral health. This study will allow us to see risk factor connections across the data, in partnership with the first aim of the parent U01 study, and to develop behavioral interventions involving CF care providers that are aimed at promoting oral health in individuals with CF.

抽象的 囊性纤维化患者接受多专业团队的常规医疗护理 医疗提供者。与患者互动的每位 CF 护理团队成员往往都专注于 他们的治疗计划的独特主要目标。例如，肺科医生主要关注 呼吸系统健康，可能会忽视个人的口腔保健需求。营养师可能会 更加注重确保患有 CF 的人体重增加，因此会提出建议 他们的患者吃富含碳水化合物的食物和果汁。然而由于缺乏重视 口腔健康和与最佳口腔健康目标直接冲突的建议可能会产生 个人从不同提供商收到不一致消息的情况， 可能对其口腔健康有害，也是未来口腔中需要解决的一个因素 以健康为重点的干预措施。在这个项目中，我将对 CF 护理提供者进行 60 次采访， 包括护士、呼吸治疗师、物理治疗师、社会工作者、营养师和 肺科医生。这项研究是一项为期 5 年的观察性 U01 家长研究的补充，该研究 研究囊性纤维化患者口腔健康疾病的行为危险因素。 母研究是迄今为止最大的也是第一个纵向 CF 口腔健康研究，也是第一个 评估与 CF 口腔疾病相关的呼吸结果。我们将比较我们的 提供者访谈结果与更大的家长 U01 研究的结果相比较，其中包括 210 项研究的调查回复、定性访谈、口腔健康数据和肺部健康数据 患有囊性纤维化的参与者。这项补充研究在母研究的基础上进行了扩展 深入了解囊性纤维化护理提供者与患者沟​​通的内容以及如何沟通 沟通影响口腔健康。这项研究将使我们能够看到不同风险因素之间的联系 数据，与父U01研究的首要目标合作，并发展行为 涉及 CF 护理人员的干预措施，旨在促进个人口腔健康 与CF。