Transforming residential palliative care for persons with dementia through behavioral economics and data science

通过行为经济学和数据科学改变痴呆症患者的住院姑息治疗

• 批准号: 10657602
• 负责人: Scott D Halpern
• 金额: $ 73.87万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10657602
• 关键词: Accountability; Address; Admission activity; Advance Care Planning; American; Area; Arts; Assisted Living Facilities; Behavior; Behavior Therapy; Behavioral; Benchmarking; Businesses; Caregivers; Caring; Collaborations; Communication; Computers; Conflict (Psychology); Data; Data Science; Dementia; Dementia caregivers; Discipline of Nursing; Disease; Electronic Health Record; Engineering; Faculty; Family; Family Caregiver; Fostering; Funding; Future; Goals; Grant; Health Policy; Healthcare; Hospitalization; Hospitals; Institution; Intervention; Intervention Studies; Knowledge; Life; Link; Machine Learning; Measures; Mechanical ventilation; Mentors; Methodology; Methods; Modeling; Monitor; Natural Language Processing; Nurses; Nursing Homes; Online Systems; Outcome; Outpatients; Palliative Care; Pathway Analysis; Patient Preferences; Patients; Pennsylvania; Persons; Physicians; Pilot Projects; Positioning Attribute; Pragmatic clinical trial; Qualitative Methods; Research; Research Personnel; Research Support; Residential Treatment; Resources; Risk; Schools; Science; Scientist; Services; Site; Social Network; Societies; Specialist; Surveys; System; Testing; Translating; United States National Institutes of Health; Universities; Variant; Work; acceptability and feasibility; advanced disease; behavior change; behavioral economics; care delivery; care outcomes; care systems; caregiver interventions; cost; dementia care; effective intervention; effectiveness trial; efficacy study; electronic health data; end of life; health economics; hospice environment; implementation efforts; implementation science; improved; innovation; insight; intervention delivery; medical schools; novel; palliative; peer; person centered; pragmatic implementation; pragmatic trial; process improvement; provider behavior; social; statistics; success; symptom management; therapy development; tool

The central goal of this proposed Roybal Center is to develop, test, and implement novel interventions that bridge the dramatic gap between the supply of and need for palliative care services among persons with dementia (PWD) living in long-term services and support (LTSS) facilities, as well as their family caregivers. Several innovative aspects of this proposed Center position us to succeed in this challenging but increasingly important space. First, we have assembled a team comprising more 50 investigators and staff from 5 schools within the University of Pennsylvania, and the most accomplished investigators of palliative approaches to care for PWD from 11 peer institutions. These investigators possess content knowledge and tremendous expertise in leading all Stages of behavioral intervention development as defined by the NIH Stage Model. Second, we will support these behavioral scientists by linking them with Center faculty with expertise in several key methodologic areas including behavioral economics, data science, statistics, qualitative methods, health policy and economics, and implementation science. Our focus on translating behavioral economic insights to change the behaviors of clinicians and caregivers involved in the care of PWD builds on our recent success using similar approaches to improve palliative care delivery in outpatient and hospital settings. Our focus on using machine learning, natural language processing, and network methods will enable us to (a) identify mechanisms of clinician behavior that account for aggressive care for PWD, (b) identify PWD with the greatest unmet palliative care needs so as to sustainably target intervention delivery, and (c) more efficiently measure person-centered outcomes in the context of large, pragmatic trials of the most promising interventions. Third, this Center is being launched in partnership with Genesis HealthCare, the nation's largest owner of LTSS facilities, with 401 nursing homes and assisted living facilities across the U.S. These facilities provide ideal settings within which to develop and test interventions that will be effective and sustainable in the real world. Further, by developing and testing the interventions in these settings, while continually increasing our collaborations with other owners of LTSS facilities, we will be ideally positioned to implement effective interventions in the places in which the majority of Americans with dementia are cared for near the end of life. This Center will be directed by a Steering Committee, and will include a Management and Administrative Core housed within Penn's existing Palliative and Advanced Illness Research (PAIR) Center. A Pilot Core will select, guide, and monitor pilot projects chosen for funding each year. We propose two pilots for funding in the first year: a Stage I study that seeks to adapt a web-based advance care planning platform for use among PWD and their caregivers in LTSS settings, and a Stage 0 study that will use data science methods to identify clinician behaviors associated with hospitalization risk among PWD, yielding targets for future interventions.

这个提议的皇家中心的中心目标是开发、测试和实施新的干预措施