Admin-Core

管理核心

• 批准号: 10251983
• 负责人: Scott D Halpern
• 金额: $ 39.86万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10251983
• 关键词: Advance Care Planning; Advisory Committees; American; Area; Assisted Living Facilities; Behavior; Behavior Therapy; Behavioral Research; Caregivers; Characteristics; Clinical Research; Collaborations; Committee Members; Communication; Community Health Systems; Data; Data Analytics; Data Linkages; Data Science; Data Set; Dementia; Development; Doctor of Philosophy; Education; Effectiveness; Electronic Health Record; Ensure; Environment; Ethics; Faculty; Fostering; Goals; Grant; Health; Health system; Healthcare; Human Subject Research; Incentives; Infrastructure; Institutes; Interdisciplinary Study; Intervention; Knowledge; Machine Learning; Measurement; Medicare/Medicaid; Memory; Natural Language Processing; Nursing Homes; Outcome Measure; Palliative Care; Pathway Analysis; Patients; Persons; Pilot Projects; Positioning Attribute; Principal Investigator; Private Sector; Problem Solving; Research; Research Personnel; Resource Sharing; Resources; Services; Testing; Translating; Work; advanced disease; behavior test; behavioral economics; biomedical informatics; care systems; career; computing resources; dementia care; design; experience; health care service organization; improved; member; mobile computing; palliative; pragmatic trial; symposium; symptom management

The Management and Administrative Core of this proposed Roybal Center will be led by Overall Principal Investigator Scott Halpern, MD, PhD, with assistance from the other members of the Center's Steering Committee. The central goal of this Core is to provide the infrastructure and expertise necessary to support the design, testing, and dissemination of behavioral interventions that improve palliative care for persons with dementia (PWD) and their caregivers in long-term services and support (LTSS) facilities across the U.S. Several characteristics of the Center and its investigators position us uniquely well to achieve this goal. First, we have partnered with dozens of external, non-academic healthcare organizations during the past decade, and have thus learned how to align our work with institutional priorities, problem-solve in unfamiliar environments, and assist organizations that are not accustomed to conducting research in ensuring appropriate safeguards and human subjects research protections. This experience will enable us to capitalize on our tremendous opportunity to produce generalizable evidence of the effectiveness of scalable interventions by conducting our pilot projects within LTSS facilities owned by Genesis HealthCare, the nation's largest LTSS company. Second, we have considerable experience developing and testing behavioral interventions to improve advance care planning, symptom management, and other palliative care services for PWD in LTSS facilities including nursing homes and assisted-living facilities. Third, several Center investigators are among the world leaders in the design, conduct, and ethics of large, pragmatic trials, particularly trials testing behavioral interventions. Fourth, our investigators include leaders of several other NIA-supported Centers, facilitating collaborations, shared resources, and other efficiencies in conducting impactful research. Finally, this new Roybal Center will directly leverage the existing resources of two robust, multidisciplinary research centers at Penn: the Palliative and Advanced Illness Research (PAIR) Center, and the Penn Memory Center. We will also benefit from formal linkages with Penn's hubs for behavioral economics (the Center for Health Incentives and Behavioral Economics) and biomedical informatics (the Institute for Biomedical Informatics). To achieve its overall goal, this Core has seven specific aims, including to: plan, implement, and coordinate all Center activities such as the annual Symposium; engage and manage the Center's Advisory Committee; develop new strategic collaborations with other LTSS companies; grow our national network of Affiliated Investigators working to improve residential palliative care for PWD; foster collaborations with other NIA-supported Centers; oversee data linkages that will enhance the efficient measurement of the effects of our interventions; and disseminate the Center's findings through a coordinated communications strategy.

拟建的罗伊巴尔中心的管理和行政核心将由总校长领导 调查员Scott Halpern，医学博士，中心指导的其他成员的协助 委员会审议阶段。此核心的中心目标是提供必要的基础设施和专业知识，以支持 设计、测试和传播行为干预措施，以改善对患有癌症患者的姑息治疗 痴呆症(PWD)及其照顾者在美国各地的长期服务和支持(LTSS)设施中。 该中心及其调查人员的几个特点为我们实现这一目标提供了独特的有利条件。 首先，在过去，我们与数十个外部、非学术的医疗保健组织建立了合作伙伴关系 十年，并因此学会了如何使我们的工作与机构优先事项保持一致，在不熟悉的情况下解决问题 环境，并帮助不习惯进行研究的组织确保 适当的保障措施和人体研究保护措施。这一经历将使我们能够利用 关于我们提供可推广干预措施有效性的概括性证据的巨大机会 通过在美国最大的LTSS Genesis Healthcare拥有的LTSS设施内实施我们的试点项目 公司。其次，我们有相当多的开发和测试行为干预措施的经验 改善LTSS中对PWD的高级护理计划、症状管理和其他姑息护理服务 设施，包括养老院和辅助生活设施。第三，几名中心调查人员在 在大型实用试验的设计、实施和道德方面处于世界领先地位，特别是试验测试 行为干预。第四，我们的调查人员包括NIA支持的其他几个中心的领导人， 促进协作、共享资源和其他效率，以开展有影响力的研究。 最后，这个新的罗伊巴尔中心将直接利用两个强大的多学科的现有资源 宾夕法尼亚州立大学研究中心：缓解期和晚期疾病研究(Pair)中心，以及宾夕法尼亚记忆 中心。我们还将受益于与宾夕法尼亚大学行为经济学中心(The Center For Behavior Economics)的正式联系 健康激励和行为经济学)和生物医学信息学(生物医学研究所 信息学)。为了实现其总体目标，该核心有七个具体目标，包括：计划、实施和 协调中心的所有活动，如年度研讨会；参与和管理中心的咨询 委员会；与其他LTSS公司发展新的战略合作；扩大我们的全国网络 附属调查人员致力于改善残疾患者的住院姑息治疗；促进与其他人的合作 NIA支持的中心；监督数据链接，以增强对我们的 并通过协调一致的传播战略传播中心的调查结果。