Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers

为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗

• 批准号: 10377774
• 负责人: James N. Dionne-Odom
• 金额: $ 17.02万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-07-01 至 2025-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10377774
• 关键词: Advanced Malignant Neoplasm; African American; Attitude; Award; Bereavement; Caregiver support; Caregivers; Cessation of life; Development; Diagnosis; Disease Progression; Doctor of Philosophy; Family; Family Caregiver; Feedback; Foundations; Goals; Health; Intervention; Interview; Knowledge; Lead; Leadership; Malignant Neoplasms; Methods; Outcome; Palliative Care; Parents; Patient Care; Patients; Persons; Phase; Qualitative Research; Reporting; Research; Research Personnel; Risk Factors; Training; base; cancer-related cognitive impairment; care recipients; community engagement; design; end of life; experience; family caregiving; improved; motivational enhancement therapy; psychological distress; public health priorities; skills; therapy development

SUPPLEMENT PROJECT SUMMARY This application (a Diversity Supplement to Dr. James N. Dionne-Odom’s parent award entitled, “Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers”) describes the background and experience of the applicant, Erin R. Harrell, PhD and her plan to acquire knowledge and training necessary to become a leading independent researcher in developing interventions that optimize bereavement outcomes in African American (AA) caregivers of persons with advanced cancer. The overall goal of this supplement is to gain advanced training in qualitative research, intervention development, and health coaching/motivational interviewing in order to explore components that could be included in an intervention to help African American caregivers cope with disease progression when a patient experiences cancer related cognitive impairment (CRCI). Specific training objectives during the supplement include (1) deepening understanding of patients and their families, to: 1a) augment knowledge and skills in health coaching and 1b) attain experience in stakeholder- informed intervention development; (2) acquiring new skills in advanced qualitative interviewing and advance understanding of community engagement in research using mixed methods to design and lead intervention development relevant to family caregiving; and 3) developing practical skills and scientific management and leadership to support development as an investigator and equity leader. The research aim during the supplement phase is to better understand how African American caregivers cope with CRCI and what they value as being helpful in improving bereavement outcomes to lessen psychological distress. To date, there has been little research examining how AA family caregivers cope with care recipient CRCI along the advanced cancer trajectory, from diagnosis, to end of life, to bereavement. Using a qualitative approach based on the Integrative Risk Factor Framework, one-on-one interviews will be conducted with 15-25 African American caregivers of patients with advanced cancer participating in the parent R37 (R37CA252868) to ascertain the needs and challenges related to their care recipients CRCI. Aim 1: Identify the experiences, needs, and attitudes of African American/Black family caregivers of patients with advanced cancer who currently are or may experience CRCI. Aim 2: Elicit feedback on potential support strategies that might help African American/Black family caregivers cope with caring for patients with advanced cancer who experience CRCI, including adjustment after death. Results from this study will be foundational to a K01 application to develop and pilot an intervention to support AA caregivers dealing with care recipient CRCI in order to help them better cope and adjust to their relative’s death in bereavement.

补充项目总结 本申请书(詹姆斯·N·迪翁-奥多姆博士的父母奖的多样性补充)，标题为 未得到充分服务的晚期癌症护理人员的早期姑息治疗“)描述了背景和经验 申请者Erin R.Harrell博士和她计划获得成为一名 领先的独立研究人员开发干预措施，优化非洲的丧亲结果 美国(AA)晚期癌症患者的照顾者。本增刊的总体目标是获得 在定性研究、干预开发和健康指导/激励方面的高级培训 面谈，以探索可以包括在帮助非裔美国人的干预措施中的组成部分 当患者经历癌症相关的认知障碍时，照顾者应对疾病的进展 (CRCI)。补充期间的具体培训目标包括：(1)加深对患者的了解和 他们的家人：1)增加健康指导方面的知识和技能，1)获得利益相关者的经验- 知情干预发展；(2)获得高级定性访谈和进阶的新技能 理解使用混合方法设计和领导干预措施的社区参与研究 与家庭照顾有关的发展；及3)发展实用技能和科学管理及 作为调查者和权益领导者，支持发展的领导力。增刊期间的研究目的 阶段是更好地了解非裔美国人照顾者如何应对CRCI以及他们认为 有助于改善丧亲结果，减轻心理痛苦。到目前为止，几乎没有 研究AA家庭照顾者如何应对晚期癌症患者的CRCI 轨迹，从确诊，到生命的终结，再到失去亲人。使用基于综合的定性方法 风险因素框架，将对15-25名非洲裔美国人照顾者进行一对一访谈 晚期癌症患者参与亲本R37(R37CA252868)，以确定需求和 与其护理对象CRCI相关的挑战。目标1：确定非洲人的经历、需求和态度 目前正在或可能经历CRCI的晚期癌症患者的美国/黑人家庭照顾者。 目标2：就可能帮助非裔美国人/黑人家庭照顾者的潜在支持战略获得反馈 应对经历CRCI的晚期癌症患者的护理，包括死亡后的调整。 这项研究的结果将成为K01应用程序的基础，以开发和试行干预以支持 AA照顾者与照顾者CRCI打交道，以帮助他们更好地应对和适应亲属的 在丧亲之痛中死亡。