Decision Support Training for Advanced Cancer Family Caregivers: The CASCADE Factorial Trial

晚期癌症家庭护理人员的决策支持培训:CASCADE 析因试验

基本信息

项目摘要

Project Summary/Abstract A priority in oncology and palliative care is preparing the 3.2 million U.S. family caregivers of persons with cancer to effectively support patients in health-related decision-making from diagnosis to the end of life, particularly in underserved settings. Over 70% of patients with cancer involve family in health decisions, including choices about treatments, surgery, location of care, accessing palliative care, and many others. Patients making these decisions with unprepared family caregivers may experience inadequate family decision support leading to heightened distress and receipt of care/treatments inconsistent with their values and preferences. This in turn may increase distress for family caregivers. There is a critical need to train cancer family caregivers to effectively support patient decision-making; however, few palliative care interventions have been tested to enhance caregiver skills in providing decision support. We have developed CASCADE (CAre Supporters Coached to be Adept DEcision partners), a lay navigator-led, telehealth early palliative care intervention to train advanced cancer caregivers how to effectively partner with patients in health decision- making. Evolving out of our prior early palliative care caregiving interventions, decision support relevant content for family caregivers includes principles of effective social support, communication, and Ottawa Decision Guide training; however we do not know which of these components and component interactions influences patient and caregiver decision-making outcomes. Traditional research approaches treat interventions as “bundled” treatment packages, making it difficult to assess definitively which intervention components can be reduced, eliminated, or replaced to improve efficiency. Hence, we propose a randomized 23 (2x2x2) factorial trial, the first such trial in oncology palliative care, using the Multiphase Optimization Strategy (MOST) to test components of CASCADE in order to assemble an optimized, scalable version of the intervention. 352 family caregivers of persons with newly-diagnosed advanced cancer will be randomized to receive one or more palliative care lay navigator-delivered decision partnering training components, based on the Ottawa Decision Support Framework and Social Support Effectiveness Theory: 1) psychoeducation on social support effectiveness in decision support (1 vs. 3 sessions); 2) decision support communication training (yes vs. no); and 3) Ottawa Decision Guide training (yes vs. no). We will determine CASCADE components (main effects/interactions) that contribute meaningfully to patient and caregiver outcomes, including patient healthcare utilization (Aim 1) and use those results to build a version of the CASCADE intervention that is maximally effective and scalable (Aim 2). To maximize recruitment, we will recruit from two NCI-designated comprehensive cancer centers in Birmingham, AL and Atlanta, GA. Using the innovative MOST framework will yield a highly novel and cost effective version of CASCADE primed for confirmatory RCT testing, scalability, and reproducibility.
项目总结/文摘

项目成果

期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)

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James N. Dionne-Odom其他文献

Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
  • DOI:
    10.1016/j.jpainsymman.2018.10.417
  • 发表时间:
    2018-12-01
  • 期刊:
  • 影响因子:
  • 作者:
    Erin Currie;Renee Boss;Joanne Wolfe;James N. Dionne-Odom;Deborah Ejem;Marie Bakitas
  • 通讯作者:
    Marie Bakitas
Oncology Providers’ Perceptions of Early/Concurrent Palliative Care (S727)
  • DOI:
    10.1016/j.jpainsymman.2015.12.030
  • 发表时间:
    2016-02-01
  • 期刊:
  • 影响因子:
  • 作者:
    Dilip Babu;James N. Dionne-Odom;Lisa Zubkoff;Tasha Smith;Marie Bakitas
  • 通讯作者:
    Marie Bakitas
Developing a “Toolkit” for Implementing Early, Concurrent Palliative Care in Community Cancer Centers (S733)
  • DOI:
    10.1016/j.jpainsymman.2015.12.036
  • 发表时间:
    2016-02-01
  • 期刊:
  • 影响因子:
  • 作者:
    Marie Bakitas;James N. Dionne-Odom;Dilip Babu;Elizabeth Kvale;Lisa Zubkoff
  • 通讯作者:
    Lisa Zubkoff
Context Matters: Exploring Intervention Dose and Dose-Related Outcomes in a Palliative Care Intervention for Patients with Heart Failure (SCI910)
  • DOI:
    10.1016/j.jpainsymman.2021.01.073
  • 发表时间:
    2021-03-01
  • 期刊:
  • 影响因子:
  • 作者:
    Rachel Wells;James N. Dionne-Odom;Harleah Buck;Andres Azuero;Sally Engler;Konda Keebler;Sheri Tims;Marie Bakitas
  • 通讯作者:
    Marie Bakitas
Family Caregiver Grief and Depression Outcomes from the ENABLE III Randomized Controlled Trial (FR440B)
  • DOI:
    10.1016/j.jpainsymman.2015.12.218
  • 发表时间:
    2016-02-01
  • 期刊:
  • 影响因子:
  • 作者:
    James N. Dionne-Odom;Andres Azuero;Kathleen Lyons;Jay Hull;Marie Bakitas
  • 通讯作者:
    Marie Bakitas

James N. Dionne-Odom的其他文献

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{{ truncateString('James N. Dionne-Odom', 18)}}的其他基金

Decision Support Training for Advanced Cancer Family Caregivers: The CASCADE Factorial Trial
晚期癌症家庭护理人员的决策支持培训:CASCADE 析因试验
  • 批准号:
    10451589
  • 财政年份:
    2021
  • 资助金额:
    $ 58.96万
  • 项目类别:
Decision Support Training for Advanced Cancer Family Caregivers: The CASCADE Factorial Trial
晚期癌症家庭护理人员的决策支持培训:CASCADE 析因试验
  • 批准号:
    10633116
  • 财政年份:
    2021
  • 资助金额:
    $ 58.96万
  • 项目类别:
Decision Support Training for Advanced Cancer Family Caregivers: The CASCADE Factorial Trial
晚期癌症家庭护理人员的决策支持培训:CASCADE 析因试验
  • 批准号:
    10770967
  • 财政年份:
    2021
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10524204
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10652356
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10214574
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10039631
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10377774
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer Caregivers
为服务不足的晚期癌症护理人员提供非专业教练主导的早期姑息治疗
  • 批准号:
    10449129
  • 财政年份:
    2020
  • 资助金额:
    $ 58.96万
  • 项目类别:
An Upstream Palliative Care Intervention for Rural Family Caregivers
针对农村家庭护理人员的上游姑息治疗干预措施
  • 批准号:
    9752668
  • 财政年份:
    2018
  • 资助金额:
    $ 58.96万
  • 项目类别:

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