Recordable Cards for Optimizing Outcomes and Reducing Disparities after ED Discharge: The RECORD-ED Pilot Study
用于优化结果并减少 ED 出院后差异的可记录卡:RECORD-ED 试点研究
基本信息
- 批准号:10056976
- 负责人:
- 金额:$ 24.57万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2020
- 资助国家:美国
- 起止时间:2020-08-11 至 2022-07-31
- 项目状态:已结题
- 来源:
- 关键词:Accident and Emergency departmentAcuteAddressAdherenceAnxietyAsthmaCaregiversCaringChildChild HealthChild health careClinicalCommunicationComprehensionDay SurgeryDiagnosisEducationEffectivenessElectronic MailEnglish LanguageEnrollmentEnsureFamilyFutureGoalsHealthHealthcareHealthcare SystemsHome environmentHospitalsHuman ResourcesInstructionIntentionInterventionInterviewJointsLanguageLimited English ProficiencyLinguisticsLow incomeMeasuresMedicalModelingNursesOutcomePaperParentsPatternPediatric HospitalsPharmaceutical PreparationsPharmacistsPilot ProjectsPrimary Health CareProtocols documentationProviderQuality of lifeRandomizedRandomized Controlled TrialsReportingResearchResearch PersonnelRiskSiteSourceStandardizationSurveysSystemTelephoneTestingTimeUncertaintyVisitVulnerable Populationsacute careadverse outcomearmasthma exacerbationbasedisparity reductioneconomic evaluationevidence baseexperiencefollow-uphealth care disparityhealth care service utilizationhealth literacyimprovedimproved outcomeinnovationintervention costliteracymedication complianceparticipant retentionpatient home careprimary outcomereading abilitysatisfactionskillstooltreatment as usualtrial designusabilityuser-friendly
项目摘要
Project Summary
Families with low income and/or limited English proficiency (LEP) experience multiple communication- and
comprehension-related barriers to receiving high quality, safe, and effective medical care when their children
are ill. Limited education and low literacy also contribute, leading to difficulties understanding and implementing
discharge instructions. Few system-based interventions exist to improve discharge instruction comprehension
and most that exist rely on some combination of reading ability, health literacy, and English language skills,
limiting their ability to reach the families most at risk for poor understanding and adverse outcomes.
Paper-based, audio-recordable greeting cards offer a low-tech, inexpensive, and readily available
approach to addressing comprehension-based disparities. Cards can be shared with multiple caregivers,
including those not present at discharge, and can remain with the ill child for quick reference. The overall goal
of this study is to determine the feasibility, acceptability, and potential effect of the RECORD-ED intervention,
which consists of usual care augmented by a card with audio-recorded instructions in the parent's preferred
language for care (English or Spanish). The recorded instructions were developed collaboratively with parents
and clinical personnel, to ensure the information is useful and culturally and linguistically tailored. The goal is to
improve parent comprehension, recall, and implementation of discharge instructions, as families transition from
care in the emergency department (ED) to managing the child's medical care at home. The specific aims of the
study are to: 1) test the feasibility, acceptability, and potential effectiveness of the RECORD-ED intervention for
improving parent, child, and utilization outcomes among low-income children with asthma and their parents,
with and without LEP; and 2) characterize parent and provider experience with the RECORD-ED intervention,
to inform future implementation. To accomplish these aims, the investigators propose a pilot randomized
controlled trial, enrolling 100 families of children with asthma being discharged home from Seattle Children's
Hospital ED. Families will be contacted to complete telephone or email surveys two days, one week, and three
months after ED discharge. Intervention feasibility and acceptability will be primary outcomes, as
recommended for pilot studies. Potential effectiveness will be determined by assessing for clinically important
differences in instruction recall, medication adherence, comfort with home care, quality of life, primary care
follow-up, asthma control, and 3-month re-utilization between assigned study arms, in an intention-to-treat
analysis. Providers and nurses will be surveyed regarding intervention acceptability and perceived effect.
Parents and nurses will be interviewed to understand experiences using the card-based instructions. Study
results will inform a multi-site R01 proposal to rigorously determine the effect of the RECORD-ED intervention
on parent comprehension, adherence to discharge instructions, and child asthma control and healthcare
utilization.
项目摘要
低收入和/或英语水平有限(LEP)的家庭经历了多种沟通,
与理解相关的障碍,以获得高质量,安全,有效的医疗保健时,他们的孩子
生病了。教育程度有限和识字率低也是原因之一,导致难以理解和执行
出院指示很少有基于系统的干预措施可以提高出院指导的理解
大多数存在依赖于阅读能力、健康素养和英语语言技能的某种组合,
限制了他们接触最有可能缺乏理解和产生不利后果的家庭的能力。
纸质的、可录制音频的贺卡提供了一种低技术含量、廉价且容易获得的
解决基于理解的差异的方法。卡片可以与多个护理人员共享,
包括那些出院时不在场的人,并可以留在生病的孩子身边,以便快速参考。总目标
本研究的目的是确定RECORD-ED干预的可行性、可接受性和潜在影响,
它包括通常的护理,并辅以一张卡片,上面有父母喜欢的录音说明。
护理语言(英语或西班牙语)。记录的指令是与父母合作开发的
和临床人员,以确保信息是有用的,文化和语言定制。目标是
提高父母的理解,回忆和执行出院指示,因为家庭从
从急诊科(艾德)的护理到管理儿童的家庭医疗护理。该委员会的具体目标
研究的目的是:1)测试记录干预的可行性、可接受性和潜在有效性,
改善低收入哮喘儿童及其父母的父母、儿童和利用结果,
有和没有LEP;和2)描述父母和提供者对RECORD-ED干预的经验,
为今后的实施提供信息。为了实现这些目标,研究人员提出了一个试点随机
对照试验,招募100个从西雅图儿童医院出院回家的哮喘儿童家庭。
医院急诊室。家庭将联系完成电话或电子邮件调查两天,一周,三
艾德出院后3个月。干预的可行性和可接受性将是主要结果,
建议进行试点研究。将通过评估临床重要的
在指令回忆、药物依从性、家庭护理舒适度、生活质量、初级保健方面的差异
随访、哮喘控制和3个月重复使用,在意向治疗中
分析.提供者和护士将接受调查,对干预的可接受性和感知效果。
父母和护士将接受采访,以了解使用基于卡片的指示的经验。研究
研究结果将为多地点R 01方案提供信息,以严格确定RECORD-ED干预的效果
对父母理解、遵守出院指示以及儿童哮喘控制和医疗保健的影响
利用率
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Katherine Casey Lion其他文献
Katherine Casey Lion的其他文献
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{{ truncateString('Katherine Casey Lion', 18)}}的其他基金
The Family Bridge Program to Address Communication and Navigation-Related Inequities for Minority Children and Families: A Randomized Controlled Trial
解决少数族裔儿童和家庭与通讯和导航相关的不平等问题的家庭桥梁计划:一项随机对照试验
- 批准号:
10650280 - 财政年份:2022
- 资助金额:
$ 24.57万 - 项目类别:
The Family Bridge Program to Address Communication and Navigation-Related Inequities for Minority Children and Families: A Randomized Controlled Trial
解决少数族裔儿童和家庭与通讯和导航相关的不平等问题的家庭桥梁计划:一项随机对照试验
- 批准号:
10365525 - 财政年份:2022
- 资助金额:
$ 24.57万 - 项目类别:
Mobile Video interpretation to Optimize Communication Across Language barriers: mVOCAL
移动视频口译可优化跨语言障碍的沟通:mVOCAL
- 批准号:
10299517 - 财政年份:2021
- 资助金额:
$ 24.57万 - 项目类别:
Mobile Video interpretation to Optimize Communication Across Language barriers: mVOCAL
移动视频口译可优化跨语言障碍的沟通:mVOCAL
- 批准号:
10491101 - 财政年份:2021
- 资助金额:
$ 24.57万 - 项目类别:
Mobile Video interpretation to Optimize Communication Across Language barriers: mVOCAL
移动视频口译可优化跨语言障碍的沟通:mVOCAL
- 批准号:
10630872 - 财政年份:2021
- 资助金额:
$ 24.57万 - 项目类别:
Targeted Inpatient Navigation to Improve Care for Minority Children and Families
有针对性的住院导航,以改善对少数民族儿童和家庭的护理
- 批准号:
9104176 - 财政年份:2014
- 资助金额:
$ 24.57万 - 项目类别:
Targeted Inpatient Navigation to Improve Care for Minority Children and Families
有针对性的住院导航,以改善对少数民族儿童和家庭的护理
- 批准号:
8762875 - 财政年份:2014
- 资助金额:
$ 24.57万 - 项目类别:
Targeted Inpatient Navigation to Improve Care for Minority Children and Families
有针对性的住院导航,以改善对少数民族儿童和家庭的护理
- 批准号:
9309011 - 财政年份:2014
- 资助金额:
$ 24.57万 - 项目类别:
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