Expanding effective report-back of environmental exposures among new researchers and clinic-based studies

项目总结 通过向研究参与者报告他们的个人生物监测和环境 暴露结果，研究人员可以提高环境健康素养(EHL)，增强 采取个人行动减少有害化学物质暴露，促进公民参与 制定政策，尊重知情权道德，改善招生和留学情况。 尽管有这份报告，但在环境健康方面，反馈尚未成为一种普遍的做法。我们 假设举报的障碍包括资金有限、缺乏经验和担忧 关于参与者的担忧。配合创新理论的扩散，我们期待着一次培训 该计划将扩大研究人员对报告伦理和方法的知识，并增加 他们愿意和有能力参与这种形式的基于社区的研究。我们也 假设让以前几乎没有环境健康培训的临床医生参与进来将导致 在广泛的累积收益方面，包括改善临床结果和临床医生-患者 人际关系，更高的研究参与度，以及对两位健康专业人员的EHL增加 和病人。这项研究将使用半结构化访谈和前后测试来进行 三个具体目标：1)找出阻碍和促进个别研究报告的因素 和联邦资助的项目；2)评估培训研究人员参与的计划 汇报；3)制订有效策略，吸纳健康从业员参与汇报及 评估临床医生和患者的结果。这项研究具有创新性，因为它是第一个 研究未报到的调查人员的考虑因素以及前景 以及支持这项研究的资助机构的经验，以便指导和工具能够 被开发和评估(目标1)。此外，我们的项目将创建一个报告模型 支持环境健康的大量联邦项目和资金 临床环境中的测量，包括像NIEHS的超级基金ECHO这样的大型队列 研究计划和NIH的我们所有人(目标2)。通过与怀孕和早期合作 儿童时期的队列研究集中在低收入人群和有色人种社区， 拟议的项目将使我们能够制定关于报告弱势群体的指导方针 和发展的敏感期，这是一个研究不足的领域。建议数 研究具有重要意义，因为它将增加研究人员和临床医生对报告- 返回，帮助克服采用它的障碍，开发新的方法来评估它的有效性， 鼓励制定关于报告的联邦指导和政策，并推动 NIEHS的战略目标是将数据转化为知识，转化为行动。

PROJECT SUMMARY By reporting back to study participants on their personal biomonitoring and environmental exposure results, researchers can advance environmental health literacy (EHL), empower individual actions to reduce harmful chemical exposures, activate civic engagement in policymaking, respect right-to-know ethics, and improve study recruitment and retention. Despite this report-back is not yet a widespread practice in environmental health. We hypothesize that barriers to report-back include limited funding, inexperience, and concerns about participant worry. In line with the diffusion of innovation theory, we expect that a training program will expand researcher knowledge of report-back ethics and methods and increase their willingness and ability to engage with this form of community-based research. We also hypothesize that involving clinicians with little previous training in environmental health will result in broadly accrued benefits, including improved clinical outcomes and clinician-patient relationships, heightened study engagement, and increased EHL for both health professionals and patients. This study will use semi-structured interviews and pre- and post-tests to pursue three specific aims: 1) Identify factors that hinder and promote report-back for individual studies and federally-funded programs; 2) Evaluate a program to train researchers to participate in report-back; 3) Develop effective strategies for engaging health practitioners in report-back and assess outcomes for clinicians and patients. This research is innovative because it is the first to study the considerations of investigators who do not report-back, as well as the perspectives and experiences of funding agencies that support this research, so that guidance and tools can be developed and evaluated (Aim 1). Furthermore, our project will create a model of report-back for the large number of federal programs and funding that support environmental health measurements in clinical settings, including mega-cohorts like ECHO, the NIEHS’ Superfund Research Program, and NIH’s All of Us (Aim 2). By partnering with pregnancy and early childhood cohort studies focused on low-income populations and communities of color, the proposed project will allow us to develop guidance on reporting back for vulnerable populations and sensitive periods of development, an understudied area of research. The proposed research is significant because it will increase researcher and clinician knowledge of report- back, help surmount barriers to its adoption, develop new methods to evaluate its effectiveness, encourage the development of federal guidance and policies on report-back, and advance NIEHS’ strategic goal to translate data to knowledge to action.