Peer i-Coaching for Activated Self-management Optimization in Adolescents and Young Adults with Chronic Conditions

同伴网络辅导可促进患有慢性病的青少年和年轻人的主动自我管理优化

• 批准号: 10573216
• 负责人: Sharron L Docherty
• 金额: $ 59.24万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-04-26 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10573216
• 关键词: Address; Adolescence; Adolescent and Young Adult; Adult; Advocacy; Age; Agreement; Behavior; Caring; Characteristics; Childhood; Chronic; Chronic Disease; Clinic; Collaborations; Complex; Control Groups; Data; Development; Emotional; Ethnic Origin; Future; Goals; Health; Health Personnel; Health system; Healthcare; Home; Individual; Intervention; Interview; Knowledge; Lead; Learning; Life Expectancy; Life Style Modification; Maintenance; Managed Care; Mediator; Medical; Medication Management; Methods; Modeling; Mood Disorders; Multi-Institutional Clinical Trial; Outcome; Parents; Participant; Patients; Pharmaceutical Preparations; Preparation; Program Reviews; Provider; Quality of life; Race; Randomized, Controlled Trials; Readiness; Regimen; Reporting; Schools; Secure; Self Care; Self Management; Severity of illness; Site; Symptoms; Telephone; Testing; Text; Time; Training; Work; attentional control; burden of illness; care systems; coping; critical period; design; efficacy evaluation; experience; health management; health related quality of life; improved; interest; interoperability; intrinsic motivation; mHealth; novel; patient engagement; patient oriented; peer; peer coaching; peer support; pilot test; primary outcome; psychosocial; secondary outcome; sex; skills; systematic review; theories

Project Summary Increases in life expectancy in almost all childhood-onset chronic conditions has brought unique challenges for adolescents and young adults (AYA) who struggle to deal with the associated disease burden, manage therapies, and thrive as they develop independent self-management skills, and become active and engaged patients. The challenges that influence the lives of AYAs are largely adaptive, such as making lifestyle modifications, adhering to complex medication regimens, and learning to navigate the adult health system. Adding to this complexity is the need for AYAs to progressively take over greater self-management responsibilities from parents. Promoting activated self-management is critically important given that this shift in health care management from parents and health care providers to the AYA is identified as key to successful adult outcomes. Peer support interventions are well-suited to address challenges theorized as critical to AYAs given the importance of peer relationships during this time. We propose a mixed-methods, five-year randomized controlled trial, that will include 225 AYAs (16-22 years) with COCCs, to test the Peer i-Coaching for Activated Self- Management Optimization (PICASO) versus an attention control group. This novel, mobile health intervention utilizes an established telephone/text based secure interface to allow AYAs access knowledge, experience, and instrumental/emotional support from a trained peer coach (18-26 years), who has already developed independence and is an active self-manager. We will determine the efficacy of the PICASO on self-management/health care navigation, patient activation, coping, emotional health and health-related quality of life across 12 months. We will explore whether age, sex, race/ethnicity, chronic condition, and/or disease severity moderate the trajectory of PICASO effects on self-management, patient activation, coping, emotional health and health-related quality of life. Lastly, we will explore mechanisms of the PICASO impact by describing AYA experiences with the intervention.

项目摘要 几乎所有童年发作的慢性状况的预期寿命增加都带来了独特的 努力应对相关的青少年和年轻人（aya）面临的挑战 疾病负担，管理疗法并在发展独立的自我管理时成长 技能，成为活跃和参与的患者。影响生活的挑战 AYA在很大程度上是适应性的，例如进行生活方式修改，坚持复杂 药物治疗方案，并学习浏览成人卫生系统。加上这个 复杂性是AYA需要逐步接管更大的自我管理 父母的责任。促进激活的自我管理至关重要 医疗保健管理从父母和医疗保健提供者到AYA的转变是 被确定为成功成人结果的关键。同伴支持干预措施非常适合 鉴于同伴关系的重要性，解决理论上对AYA至关重要的挑战挑战 在这段时间。我们提出了一个混合方法，五年的随机对照试验，将 与COCC一起包括225个AYA（16-22年），以测试同行I-教练以进行激活的自我 管理优化（PICASO）与注意力控制组。这本小说，移动 健康干预利用建立的基于电话/文本的安全界面来允许AYAS 训练有素的同伴教练的访问知识，经验以及工具/情感支持 （18-26岁），他已经发展了独立，并且是一个积极的自我经理。我们 将确定Picaso对自我管理/医疗保健导航的功效，患者 在12个月中的激活，应对，情绪健康和与健康相关的生活质量。我们将 探索年龄，性别，种族/种族，慢性病和/或疾病严重程度中等 Picaso对自我管理，患者激活，应对，情感的影响的轨迹 健康和与健康相关的生活质量。最后，我们将探索picaso的机制 通过描述AYA的干预体验来影响。

项目成果

Clinical Application of a Peer Coaching Intervention to Enhance Self-Management for Adolescents and Young Adults With Inflammatory Bowel Disease.

同伴辅导干预的临床应用，以增强患有炎症性肠病的青少年和年轻人的自我管理。

• DOI: 10.1037/cpp0000468
• 发表时间: 2022
• 期刊: Clinical practice in pediatric psychology
• 影响因子: 1.1
• 作者: Pollock,McLeanD;Brotkin,SamuelM;Denio,Erin;Dave,Sneha;Fisher,EdwinB;Docherty,SharronL;Maslow,GaryR
• 通讯作者: Maslow,GaryR