Core E: Outreach, Recruitment and Engagement Core

核心 E：外展、招聘和参与核心

• 批准号: 10264627
• 负责人: Eric Dennis Vidoni
• 金额: $ 19.69万
• 依托单位: UNIVERSITY OF KANSAS MEDICAL CENTER
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264627
• 关键词: Achievement; Address; African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Autopsy; Award; Awareness; Biological Markers; Brain; Caring; Clinical; Clinical Research; Cognitive; Collaborations; Communication; Communities; Community Health Education; Community Healthcare; Dementia; Diagnosis; Diet; Disclosure; Education; Educational Curriculum; Energy Metabolism; Enrollment; Etiology; Event; Family; Fostering; Genotype; Geography; Goals; Health; Health Personnel; Health Professional; Health system; Impaired cognition; Incubators; Individual; Infrastructure; Kansas; Latino; Life Style Modification; Location; Magnetic Resonance Imaging; Measures; Methods; Mission; Modeling; Monoclonal Antibody R24; Participant; Patient Recruitments; Physical activity; Physicians; Population; Positioning Attribute; Procedures; Provider; Readiness; Research; Research Personnel; Resources; Rural; Scholarship; Science; Services; Social Network; Social Work; Social Workers; Source; Testing; Training; Training Support; Underrepresented Populations; Universities; Work; brain health; cohort; community engagement; community organizations; dementia care; design; improved; innovation; novel; operation; outreach; programs; recruit; retention rate; rural dwellers; shared decision making; success

ABSTRACT: OUTREACH, RECRUITMENT, AND ENGAGEMENT (ORE) CORE The ORE Core connects the public, healthcare professionals, trainees, and investigators to facilitate aging and AD research, positioning the KU ADRC as a critical community asset for the region. In the last decade we have established a dynamic infrastructure to communicate scientific and health information to our stakeholders and incorporate their needs and requests into our programs. Our goal is to make our region more dementia capable and research ready. We accomplish this through regular, tailored community engagement and education, efficient research recruitment operations, and training and support of health care professionals. Our engagement of the lay public and healthcare professionals has been far-reaching. In the last 5 years we have provided ADRD education to more than 9800 individuals through 343 community talks, and trained 275 providers and other health care workers in dementia capable care. In accomplishing this, we have established and formalized partnerships with community organizations through shared decision making and resources. These efforts have led to increased ADRD and brain health awareness, and enrollment of 2138 participants in 54 studies. Our Clinical Cohort boasts high retention and a diverse enrollment consistent with our region. Over the next cycle, the ORE Core will test and implement new strategies to recruit participants, educate stakeholders, and support dementia capable care in the region. We will focus on enhancing trial and biomarker procedure participation especially amongst African American, Latino, and rural residents. In our last cycle, we led efforts to design culturally appropriate, and community-informed lifestyle modification (e.g. physical activity, diet) curricula that increased research participation. We will expand these offerings with our service agencies, community groups, and health system partners, building capacity with these community assets through trainings for ADRD care and research referral. Through its efforts and programs, the ORE Core has established the KU ADRC as the region's premier location for ADRD scholarship and care. In the next 5 years, we will expand on these successes by supporting existing programs and developing and testing new strategies that will help the KU ADRC and ADRC network achieve national research and care milestones.

摘要：外展、接纳和参与（ORE）核心 ORE核心连接公众，医疗保健专业人员，学员和调查人员，以促进老龄化 和AD研究，将KU ADRC定位为该地区的重要社区资产。在过去的十年里， 建立了动态的基础设施，向我们的利益相关者传达科学和健康信息 并将他们的需求和要求纳入我们的计划。我们的目标是让我们的地区更多的痴呆症患者 有能力和研究准备。我们通过定期、量身定制的社区参与来实现这一目标， 教育、有效的研究招募操作以及培训和支持医疗保健专业人员。 我们与非专业公众和医护专业人士的接触影响深远。在过去5年中 我们通过343次社区讲座为9800多人提供了ADRD教育， 275提供者和其他卫生保健工作者在痴呆症有能力的护理。为了实现这一目标，我们 通过共同决策与社区组织建立并正式建立伙伴关系， 资源这些努力提高了ADRD和大脑健康意识， 参与54项研究。我们的临床队列拥有高保留率和多样化的招募符合 我们的区域。 在下一个周期，ORE核心将测试和实施新的战略，以招募参与者，教育 利益相关者，并支持该地区的痴呆症护理能力。我们将专注于加强试验和生物标志物 程序参与，特别是非洲裔美国人，拉丁美洲人和农村居民。在上一个周期，我们 带头努力设计文化上适当的、社区知情的生活方式改变（如体育活动， 饮食）课程，增加了研究参与。我们将与我们的服务机构一起扩大这些服务， 社区团体和卫生系统合作伙伴，利用这些社区资产进行能力建设， ADRD护理和研究转诊培训。 通过其努力和计划，ORE核心已经建立了KU ADRC作为该地区的总理 ADRD奖学金和护理的位置。在未来5年，我们将通过支持 现有的计划和开发和测试新的战略，这将有助于KU ADRC和ADRC网络 实现国家研究和护理里程碑。