Outreach, Recruitment, and Engagement Core

外展、招聘和参与核心

• 批准号: 10264372
• 负责人: Darby Morhardt
• 金额: $ 47.42万
• 依托单位: NORTHWESTERN UNIVERSITY AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264372
• 关键词: Adult; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Awareness; Brain; Cities; Clinic; Clinical; Clinical Trials; Cognitive; Collaborations; Communities; Counseling; Dementia; Development; Disease; Education; Ensure; Evaluation; Family; Funding; Goals; Heterogeneity; Impaired cognition; Intervention; Leadership; Life; Memory; Mission; Neurology; Participant; Pathway interactions; Patient Recruitments; Patients; Primary Progressive Aphasia; Psychosocial Assessment and Care; Research; Research Priority; Role; Symptoms; Telephone; Therapeutic; Trust; Underrepresented Populations; Work; aging brain; behavioral variant frontotemporal dementia; caregiver education; community center; community engagement; community partnership; design; disease heterogeneity; diversity and equity; education resources; family caregiving; follow-up; innovation; intervention program; middle age; mild cognitive impairment; neurobehavior; novel; outreach; participant retention; patient oriented; programs; psychosocial; public education; recruit; research study; resilience

PROJECT SUMMARY - OUTREACH AND RECRUITMENT CORE The Outreach, Recruitment and Engagement (ORE) Core will contribute to the goals of the Northwestern ADRC with a focus on the theme of Heterogeneity in Aging and Dementia. The ORE Core will achieve its aims by leveraging the independently funded components of the Mesulam Center: the Neurobehavior Clinic, Clinical Trials and Observational Consortia, and Miller Family Life Enrichment & Non-Pharmacologic Intervention Programs. The ORE Core will focus outreach, community engagement and recruitment on Mesulam Center research priorities, i.e., primary progressive aphasia (PPA), behavioral variant frontotemporal dementia (bvFTD), mild cognitive impairment (MCI), healthy adults without cognitive impairment (“normal controls” and SuperAging), and Mid-life Onset Alzheimer’s Disease (MOAD), with a focus on recruiting underrepresented groups. The ORE Core will promote NIA and NAPA mandates specifically through the following goals: 1) Optimize recruitment of participants according to ADRC research priorities into the Clinical Core and academic research studies through the Neurobehavior Clinic and targeted community engagement. 2) Provide outreach and community engagement strategies for the recruitment and retention of underrepresented groups to the Northwestern ADRC according to center research priorities. 3) Support the engagement of research participants and their families, particularly those who live at a distance, through novel and adaptable life enrichment programs and tailored non-pharmacological interventions, maintaining our center’s long-term commitment to our approach of “therapeutic encounters.” 4) Initiate and coordinate public education programs in conjunction with city, state and national entities. The ORE Core will pursue these goals through the provision of disease education, counseling and support for the psychosocial needs of ADRC patients and caregiving families, the design and evaluation of innovative programs that support both patients’ and caregiving families’ strength and resilience, and the engagement of collaborative local community partnerships for the purposes of research recruitment and retention. We will continue our work through outreach and engagement of underrepresented groups, the Clinical Core and other center research teams, retention via non-pharmacological interventions and incorporation of a psychosocial pathway, direct ‘phone call only’ follow-up for later stage participants for retention and commitment to brain donation, and maintaining a leadership role in local and national collaborations and educational programs that focus on the heterogeneity of disease, symptoms and needs for patient support and caregiver education and resources.

项目概要-外联和再培训核心 外展，招聘和参与（ORE）核心将有助于西北的目标 ADRC专注于老龄化和痴呆症的异质性主题。ORE核心将实现其目标 通过利用Mesulam中心独立资助的组成部分：神经行为诊所，临床 试验和观察财团，以及米勒家庭生活丰富和非药物干预 程序. ORE核心将专注于Mesulam中心的外展，社区参与和招聘 研究重点，即，原发性进行性失语，行为变异型额颞叶痴呆 （bvFTD）、轻度认知损害（MCI）、无认知损害的健康成人（“正常对照”和 SuperAging）和中年阿尔茨海默病（MOAD），重点是招募代表性不足的人 组ORE核心将具体通过以下目标促进国家评估和国家适应行动方案的任务： 1)根据ADRC研究优先级优化参与者的招募，纳入临床核心， 通过神经行为诊所和有针对性的社区参与进行学术研究。 2)提供外联和社区参与战略，以招募和留住 代表性不足的群体，西北ADRC根据中心的研究重点。 3)支持研究参与者及其家人的参与，特别是那些居住在 距离，通过新的和适应性强的生活丰富计划和量身定制的非药物 干预措施，保持我们中心的长期承诺，我们的方法“治疗接触。” 4)与市、州和国家实体一起发起和协调公共教育计划。 ORE核心将通过提供疾病教育、咨询和支持来实现这些目标 ADRC患者和家属的心理社会需求，创新的设计和评估 支持患者和患者家庭力量和复原力的计划，以及 为了研究人员的招募和保留，与当地社区建立合作伙伴关系。我们将 继续我们的工作，通过外展和参与代表性不足的群体，临床核心和其他 中心研究团队，通过非药物干预和纳入心理社会学 路径，直接的“电话呼叫”后续阶段的参与者保留和承诺的大脑 捐赠，并在地方和国家合作和教育计划中发挥领导作用， 关注疾病、症状的异质性以及对患者支持和护理人员教育的需求， 资源