Outreach, Recruitment, and Engagement Core

外展、招聘和参与核心

• 批准号: 10469451
• 负责人: Darby Morhardt
• 金额: $ 37.81万
• 依托单位: NORTHWESTERN UNIVERSITY AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10469451
• 关键词: Adult; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Awareness; Brain; Cities; Clinic; Clinical; Clinical Trials; Cognitive; Collaborations; Communities; Counseling; Dementia; Development; Disease; Education; Ensure; Evaluation; Family; Funding; Goals; Heterogeneity; Impaired cognition; Intervention; Leadership; Life; Memory; Mission; Neurology; Participant; Pathway interactions; Patient Recruitments; Patients; Persons; Primary Progressive Aphasia; Psychosocial Assessment and Care; Research; Research Priority; Role; Symptoms; Telephone; Therapeutic; Trust; Underrepresented Populations; Work; aging brain; behavioral variant frontotemporal dementia; caregiver education; community center; community engagement; community partnership; design; disease heterogeneity; diversity and equity; education resources; family caregiving; follow-up; innovation; intervention program; middle age; mild cognitive impairment; neurobehavior; novel; outreach; participant retention; patient oriented; programs; psychosocial; public education; recruit; research study; resilience

PROJECT SUMMARY - OUTREACH AND RECRUITMENT CORE The Outreach, Recruitment and Engagement (ORE) Core will contribute to the goals of the Northwestern ADRC with a focus on the theme of Heterogeneity in Aging and Dementia. The ORE Core will achieve its aims by leveraging the independently funded components of the Mesulam Center: the Neurobehavior Clinic, Clinical Trials and Observational Consortia, and Miller Family Life Enrichment & Non-Pharmacologic Intervention Programs. The ORE Core will focus outreach, community engagement and recruitment on Mesulam Center research priorities, i.e., primary progressive aphasia (PPA), behavioral variant frontotemporal dementia (bvFTD), mild cognitive impairment (MCI), healthy adults without cognitive impairment (“normal controls” and SuperAging), and Mid-life Onset Alzheimer’s Disease (MOAD), with a focus on recruiting underrepresented groups. The ORE Core will promote NIA and NAPA mandates specifically through the following goals: 1) Optimize recruitment of participants according to ADRC research priorities into the Clinical Core and academic research studies through the Neurobehavior Clinic and targeted community engagement. 2) Provide outreach and community engagement strategies for the recruitment and retention of underrepresented groups to the Northwestern ADRC according to center research priorities. 3) Support the engagement of research participants and their families, particularly those who live at a distance, through novel and adaptable life enrichment programs and tailored non-pharmacological interventions, maintaining our center’s long-term commitment to our approach of “therapeutic encounters.” 4) Initiate and coordinate public education programs in conjunction with city, state and national entities. The ORE Core will pursue these goals through the provision of disease education, counseling and support for the psychosocial needs of ADRC patients and caregiving families, the design and evaluation of innovative programs that support both patients’ and caregiving families’ strength and resilience, and the engagement of collaborative local community partnerships for the purposes of research recruitment and retention. We will continue our work through outreach and engagement of underrepresented groups, the Clinical Core and other center research teams, retention via non-pharmacological interventions and incorporation of a psychosocial pathway, direct ‘phone call only’ follow-up for later stage participants for retention and commitment to brain donation, and maintaining a leadership role in local and national collaborations and educational programs that focus on the heterogeneity of disease, symptoms and needs for patient support and caregiver education and resources.

项目摘要 - 外展和招聘核心 外展、招聘和参与（ORE）核心将为西北大学的目标做出贡献 ADRC 的主题是老龄化和痴呆症的异质性。 ORE Core 将实现其目标 通过利用 Mesulam 中心独立资助的组成部分：神经行为诊所、临床 试验和观察联盟以及米勒家庭​​生活丰富和非药物干预 节目。 ORE 核心将重点关注 Mesulam 中心的外展、社区参与和招聘 研究重点，即原发性进行性失语症（PPA）、行为变异型额颞叶痴呆 (bvFTD)、轻度认知障碍 (MCI)、无认知障碍的健康成人（“正常对照”和 SuperAging）和中年阿尔茨海默病（MOAD），重点是招募代表性不足的人 组。 ORE 核心将特别通过以下目标促进 NIA 和 NAPA 的授权： 1) 根据ADRC临床核心研究重点优化参与者招募 通过神经行为诊所和有针对性的社区参与进行学术研究。 2) 提供外展和社区参与策略，以招募和留住人才 根据中心研究重点，向西北 ADRC 提供代表性不足的群体。 3) 支持研究参与者及其家人的参与，特别是那些居住在 距离，通过新颖且适应性强的生命丰富计划和量身定制的非药物治疗 干预措施，维持我们中心对“治疗接触”方法的长期承诺。 4) 与市、州和国家实体联合发起和协调公共教育计划。 ORE 核心将通过提供疾病教育、咨询和支持来实现这些目标 ADRC 患者和护理家庭的心理社会需求、创新方案的设计和评估 支持患者和护理家庭的力量和复原力以及参与的计划 当地社区合作伙伴关系，以招募和保留研究人员。我们将 通过外展和代表性不足的群体、临床核心和其他机构的参与来继续我们的工作 中心研究团队，通过非药物干预和社会心理干预来保留 途径，直接“仅电话”跟进后期参与者以保留和承诺大脑 捐赠，并在地方和国家合作及教育项目中保持领导作用， 关注疾病、症状的异质性以及患者支持和护理人员教育的需求， 资源。