Core E: Outreach and Recruitment Core

核心 E：外展和招聘核心

• 批准号: 9171898
• 负责人: Darby Morhardt
• 金额: $ 28.61万
• 依托单位: NORTHWESTERN UNIVERSITY AT CHICAGO
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9171898
• 关键词: Address; Aging; Alzheimer' s Disease; Alzheimer' s Disease Core Center; Caregivers; Cities; Clinic; Clinical; Clinical Management; Clinical Trials; Collaborations; Communities; Dementia; Development; Education; Educational Activities; Ensure; Evaluation; Faculty; Family; Geographic Locations; Heterogeneity; Intervention; Leadership; Life; Mission; Modification; Office of Administrative Management; Participant; Patient Selection; Patients; Philosophy; Primary Progressive Aphasia; Psychosocial Assessment and Care; Quality of life; Recruitment Activity; Research; Research Priority; Role; Staging; Structure; Technology; Time; Underrepresented Groups; Work; aging brain; behavioral variant frontotemporal dementia; clinical care; community partnership; data management; dementia care; design; education research; evidence base; follow-up; healthy volunteer; innovation; meetings; neurobehavior; novel; novel strategies; outreach; programs; public education; resilience; symposium

PROJECT SUMMARY – OUTREACH AND RECRUITMENT CORE The structure of the Northwestern ADC is designed to maximize the impact of the Outreach and Recruitment (OR) Core. The OR Core is configured to synergistically work with the other cores of the Northwestern ADC in ways that serve the national mandates of diversity recruitment, outreach, and retention at the same time that it promotes the central theme of the ADC on the heterogeneity of aging and dementia. Over the next 5 years, this mission will be pursued through the following three Specific Aims: 1) Optimize the recruitment of subjects into the Clinical Core and their retention through novel non-pharmacological interventions; 2) Provide outreach and educational programs for the recruitment of underrepresented groups to the Northwestern ADC; and 3) Initiate and coordinate public education programs in conjunction with city, state and national entities. The OR Core will pursue this mission through the establishment of collaborative local community partnerships, recognition and support for the psychosocial needs of Clinical Core patients and families, and the design and evaluation of innovative programs that support patients’ and families’ strength and resilience. This work will be accomplished through the following mechanisms: 1) The development of outreach, engagement and recruitment programs directed to underrepresented groups utilizing community engaged research philosophy; 2) Close collaboration with the Clinical Core to recruit subjects that fit research priorities via monthly operational meetings; 2) Targeted recruitment of cognitively healthy volunteers as control subjects and for clinical trials using a community engaged research approach; 3) Focused retention of Clinical Core subjects through evidence-based quality of life enrichment and non-pharmacological interventions; 4) Introduction of technology to increase access of non-pharmacological and life enrichment interventions to research participants outside of the local geographic area; 5) Retention of later stage patients and families no longer able to come into the ADC by providing ‘phone call only’ follow-up; 6) Contribution of leadership in city and state initiatives that promote NAPA priorities such as the Dementia Capable State and Alzheimer’s Disease State Plan; and 7) Collaborations that promote educational programs for families and the general community with a special emphasis on healthy brain aging and young-onset, non-amnestic dementias such as primary progressive aphasia (PPA) and behavioral variant frontotemporal dementia (bvFTD). During the next 5-year cycle, the OR Core will continue activities that have proven their value for outreach, recruitment, retention and life-enrichment while also introducing innovative modifications addressing national and local priorities.

项目概要-外联和再培训核心 西北ADC的结构旨在最大限度地发挥外联和招聘的影响 (OR)核心OR核心被配置为与西北ADC的其他核心协同工作， 服务于国家多样性招聘任务的方式，外联，并保留，同时，它 促进ADC关于老龄化和痴呆症异质性的中心主题。在接下来的五年里， 这一使命将通过以下三个具体目标来实现：1）优化受试者的招募 纳入临床核心，并通过新的非药物干预措施保留; 2）提供外展服务 和教育计划，为西北ADC招募代表性不足的群体;以及3） 与市、州和国家实体一起发起和协调公共教育计划。所述或 核心将通过建立当地社区合作伙伴关系来实现这一使命， 识别和支持临床核心患者和家庭的心理社会需求，以及设计和 评估支持患者和家庭力量和复原力的创新方案。这项工作将 通过以下机制实现：1）发展外联、参与和 利用社区参与的研究理念，针对代表性不足的群体的招聘计划; 2)与临床中心密切合作，通过每月招募符合研究优先事项的受试者 2）有针对性地招募认知健康的志愿者作为对照受试者， 采用社区参与研究方法的临床试验; 3）集中保留临床核心受试者 通过循证生活质量丰富和非药物干预; 4）引入 技术，以增加非药物和生命丰富干预措施的研究机会 参与者在当地地理区域之外; 5）保留晚期患者和家庭不再 能够通过提供“仅电话”的后续服务进入ADC; 6）城市领导的贡献， 促进国家适应行动方案优先事项的国家举措，如痴呆症能力状态和阿尔茨海默病 国家计划;以及7）促进家庭和一般社区教育方案的合作 特别强调健康的大脑老化和非遗忘性痴呆，如原发性 进行性失语（PPA）和行为变异性额颞叶痴呆（bvFTD）。在接下来的5年里， 在这一周期内，OR核心将继续开展已证明其在外联、征聘、留用和 丰富生活的同时，也引入创新的修改，解决国家和地方的优先事项。