HTORR Rare Disease Diversity Supplement

项目负责人/主要研究者（最后，第一，中间）：Bell，托马斯，J。 人体组织和器官研究资源（HTORR）是美国国家组织和器官研究中心的一个部门。 疾病研究交流（NDRI），一个非营利性的NIH资助的组织，其使命是提供 生物医学研究社区与人体组织进行研究。HTORR支持多种疾病特异性 研究工作，包括常见病和罕见病。30多年来，NDRI一直接受NIH的资助， HTORR母补助金沿着几项行政补助赠款。到目前为止，我们的行政 补充奖的重点是扩大HTORR的范围和服务。此应用程序具有 支持正在与不可治愈的慢性罕见疾病作斗争的个人的职业发展的潜力。 这种应用的好处至少是双重的。这使HTORR有机会：1）支持 促进有健康残疾的个人的职业发展，2）扩大HTORR的劳动力，包括 一个人乐观地与罕见疾病作斗争，并继续追求他们的激情， 推进科学研究和教育。 相关性：促进科学工作队伍的多样性是科学界的一个重要问题， 包括NIH。这项行政补充申请的目的是扩大HTORR的工作范围 以及包括支持促进科学工作者多样性在内的举措。 OMB编号0925-0001/0002（修订版03/2020批准至02/28/2023）页码继续格式页码

Program Director/Principal Investigator (Last, First, Middle): Bell, Thomas, J. Project Summary: The Human Tissue and Organ Research Resource (HTORR) is a division of the National Disease Research Interchange (NDRI), a not-for-profit NIH-funded organization whose mission is to provide the biomedical research community with human tissues for research. HTORR supports numerous disease specific research efforts, including common and rare diseases. For over 30 years, NDRI has received NIH funding for the HTORR parent grant along with several administrative supplement grants. To date, our administrative supplement awards have focused on expanding the HTORR’s scope and services. This application has the potential to support the career development of an individual that is battling an incurable, chronic rare disease. The benefits of this application are at least two-fold. This provides HTORR the opportunity to: 1) support the advancement of a career of individual with a health disability and 2) expand the HTORR workforce to include the perspective of an individual that optimistically battled a rare disease and continues to pursue their passion for advancing scientific research and education. Relevance: Fostering diversity in the scientific workforce is an important issue for the scientific community, including the NIH. The objective of this administrative supplement application is to expand HTORR’s efforts and initiatives to include supporting the advancement of diversity in the scientific workforce. OMB No. 0925-0001/0002 (Rev. 03/2020 Approved Through 02/28/2023) Page Continuation Format Page