Establishing The Validity, Responsiveness, And Appropriateness Of Patient-Reported Outcome Measures For Adult Traumatic Brachial Plexus Injury
确定成人创伤性臂丛神经损伤患者报告的结果测量的有效性、反应性和适当性
基本信息
- 批准号:10613891
- 负责人:
- 金额:$ 18.45万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2021
- 资助国家:美国
- 起止时间:2021-04-05 至 2025-03-31
- 项目状态:未结题
- 来源:
- 关键词:AddressAdoptionAdultAffectAgeAssessment toolAttentionBiologicalBrachial plexus structureCaregiversCharacteristicsClinicalComparative StudyData CollectionDevelopmentDirect CostsDiseaseEmotionalEmploymentEsthesiaEventFacilities and Administrative CostsFamilyFinancial HardshipFrustrationFutureGoalsHandIncidenceInjuryInterviewLifeLiteratureMasksMeasuresMental HealthMethodologyMuscle functionMuscular AtrophyNerveNeurologicObservational StudyOperative Surgical ProceduresOutcomeOutcome AssessmentOutcome MeasurePainPatient Outcomes AssessmentsPatient-Focused OutcomesPatientsPerformancePopulationPredictive FactorProductivityProspective, cohort studyPsychological StressQuality of lifeQuestionnairesReconstructive Surgical ProceduresRecoveryReportingResearchResearch DesignSF-36Sample SizeSeveritiesShoulderSocial supportSocietiesSocioeconomic StatusSpinal CordStandardizationSubgroupSurgeonSurveysTraumaUnemploymentUpper ExtremityValidationWorkarmbiomedical referral centercohortdemographicsdisabilityeconomic implicationemotional traumaexperiencefunctional improvementimprovedinnovationinsightinstrumentlongitudinal, prospective studymembermetropolitanobservational cohort studyparticipant enrollmentpatient orientedpatient populationphysically handicappedpostoperative recoveryprogramsprospectivesocialtreatment effecttreatment strategyvolunteer
项目摘要
PROJECT SUMMARY/ABSTRACT
Adult traumatic brachial plexus injuries (BPI) have a devastating impact on patients, affecting multiple domains
(physical, social, and emotional) of their lives. Prior studies have focused on neurologic and biologic predictors
of severity of injury (such as extent of plexus injury), but little attention has been paid to other predictors of
recovery. A better understanding of how other factors (such as emotional trauma, mental health, pain, and social
support) influence recovery after BPI will provide new insight into ways to optimize outcomes for BPI patients.
The long-term goal of our research program is to develop a national multicenter prospective cohort study of
patients with BPI, assessing outcomes at standardized intervals using a patient-reported, disease-specific
outcome measure that captures the physical and emotional domains of recovery. The objectives of this
application are (1) to determine the outcome measures that best capture the experience of recovering from BPI
and (2) to establish a framework of prospective multicenter data collection that can be expanded in the near
future. We will use a prospective observational cohort study design, enrolling patients from five centers prior to
surgical reconstruction for adult traumatic BPI. We will examine the criterion validity, responsiveness, and
appropriateness of the DASH, SF-36, and a BPI-specific, patient-reported outcomes instrument that our group
recently developed (“Impact of BPI” questionnaire). After we have completed the expected research, we will
have a well-validated outcome measure for the BPI population along with the ability to define which surgical
treatments provide meaningful improvement to patients.
项目总结/文摘
项目成果
期刊论文数量(1)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Christopher John Dy其他文献
Christopher John Dy的其他文献
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{{ truncateString('Christopher John Dy', 18)}}的其他基金
Establishing The Validity, Responsiveness, And Appropriateness Of Patient-Reported Outcome Measures For Adult Traumatic Brachial Plexus Injury
确定成人创伤性臂丛神经损伤患者报告的结果测量的有效性、反应性和适当性
- 批准号:
10382337 - 财政年份:2021
- 资助金额:
$ 18.45万 - 项目类别:
Establishing The Validity, Responsiveness, And Appropriateness Of Patient-Reported Outcome Measures For Adult Traumatic Brachial Plexus Injury
确定成人创伤性臂丛神经损伤患者报告的结果测量的有效性、反应性和适当性
- 批准号:
10209232 - 财政年份:2021
- 资助金额:
$ 18.45万 - 项目类别:
Enhancing Patient Education through a 'Journey Guide' For Adult Traumatic Brachia! Plexus Injury
通过成人创伤性肱骨的“旅程指南”加强患者教育!
- 批准号:
10433825 - 财政年份:2021
- 资助金额:
$ 18.45万 - 项目类别:
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