Developing, implementing, and disseminating best practices for enhanced collection of sexual identify and gender orientation among cancer patients to catalyze innovative cancer control research.

制定、实施和传播最佳实践，以加强收集癌症患者的性认同和性别取向，以促进创新的癌症控制研究。

• 批准号: 10640466
• 负责人: CANDACE S JOHNSON
• 金额: $ 15万
• 依托单位: ROSWELL PARK CANCER INSTITUTE CORP
• 依托单位国家: 美国
• 财政年份: 1997
• 资助国家: 美国
• 起止时间: 1997-06-16 至 2024-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10640466
• 关键词: Address; Administrative Supplement; Adoption; Advocate; Belief; Cancer Center; Cancer Control Research; Cancer Patient; Caring; Catchment Area; Clinical; Collaborations; Collection; Communication; Communities; Community Health; Comprehensive Cancer Center; Data; Detection; Development; Diagnosis; Educational Intervention; Electronic Health Record; Evaluation; Funding; Gender; Gender Identity; Health; Health Insurance; Health Personnel; Healthcare; Heterosexuals; Lesbian Gay Bisexual Transgender Queer; Libraries; Malignant Neoplasms; Measures; Modification; Patient Care; Patient Education; Patients; Policies; Population; Positioning Attribute; Procedures; Provider; Public Health; Quality of life; Questionnaires; Research; Resources; Risk Factors; Screening for cancer; Sex Orientation; Sexual and Gender Minorities; Site; Standardization; Testing; Training; Work; base; cancer care; cancer prevention; cancer risk; care delivery; care providers; cisgender; data quality; evidence based guidelines; health care service organization; improved; innovation; insight; intervention program; medically underserved; member; neoplasm registry; person centered; ranpirnase; response; screening; transgender; trend; underserved community; web page

Project Abstract Patients who identify as sexual and gender minorities, or LGBTQ+, are critical members of cancer center's catchment areas, yet there remain substantial gaps in providing person-centered care to these patients, most critically because we don't have universal best practices for collecting information to help us identify these patients. Limited data show that members of the LGBTQ+ community are more likely to be diagnosed with late-stage cancer, less likely to receive routine healthcare and screening, less likely to have health insurance, more likely to have higher rates of modifiable cancer risk factors, and more likely to have a lower quality of life compared to their cisgender and heterosexual counterparts. A standardized approach is critical to collect accurate data to best serve the patients' cancer care needs, represent the cancer trends among these patients in cancer registries, address their needs in cooperative group trials, and advocate for equitable funding resources to support relevant research. The overall objective of this project is to understand acceptability, feasibility, as well as assets and challenges around implementation of standardized sexual orientation and gender identity (SOGI) measures at the patient, provider, and organizational level at Roswell Park Comprehensive Cancer Center, a NCI-designated comprehensive cancer center, and to develop and disseminate best practices, lessons learned, and implementation guides with training materials around the importance of expanded SOGI measures through a research-based resource library for other healthcare organizations and comprehensive cancer centers. In the proposed P30 supplement, we will fill several critical gaps by 1) conducting a rigorous evaluation of data quality to understand the impact of modifications made to the Roswell Park electronic health record (EHR) to collect SOGI measures; 2) understanding beliefs and barriers of collecting SOGI information from patients and clinicians to inform development of clinician and patient communications and trainings around these data; and 3) disseminating best practices to accelerate the adoption of these best practices in collection of SOGI measures in cancer care delivery. At the end of this NCI administrative supplement project period, we will have evidence-based recommendations on collecting SOGI data to inform cancer care that meets the needs of this medically underserved community. As a result of this project, Roswell Park will be better positioned to expand this assessment and promote collaborations with our own Roswell Park CARE Network satellite sites across NY and other NCI-designated comprehensive cancer centers. Data capturing SOGI information is vital to understanding how cancer centers, including Roswell Park, can help improve cancer care for sexual and gender minorities and enhance tailored community-based efforts in this population to maximize the effect of cancer prevention, education, and intervention programs.

项目摘要 确定为性和性别少数群体或LGBTQ+的患者是癌症中心的关键成员。 然而，在为这些患者提供以人为本的护理方面仍然存在很大差距， 关键是因为我们没有通用的最佳实践来收集信息，以帮助我们识别这些 患者有限的数据显示，LGBTQ+社区的成员更有可能被诊断为 晚期癌症，不太可能接受常规医疗保健和筛查，不太可能有健康保险， 更有可能有更高的可改变的癌症风险因素，更有可能有较低的生活质量 对比他们的顺性和异性恋者。标准化方法对于收集 准确的数据，以最好地服务于患者的癌症护理需求，代表这些患者的癌症趋势 在癌症登记处，在合作组试验中解决他们的需求，并倡导公平的资金 支持相关研究。本项目的总体目标是了解可接受性， 可行性，以及围绕实施标准化性取向和 在罗斯威尔公园的患者、提供者和组织层面的性别认同（SOGI）测量 综合癌症中心，一个NCI指定的综合癌症中心，并开发和 传播最佳做法、经验教训和实施指南，并提供培训材料， 通过基于研究的资源库扩展SOGI措施的重要性 组织和综合癌症中心。在拟议的P30补充中，我们将填补几个关键的 通过1）对数据质量进行严格评估，以了解修改对 罗斯韦尔公园电子健康记录（EHR）收集SOGI措施; 2）了解信念， 从患者和临床医生处收集SOGI信息的障碍，以告知临床医生的发展， 围绕这些数据的患者沟通和培训;以及3）传播最佳实践，以加速 在收集癌症护理提供中的SOGI措施时采用这些最佳实践。在本NCI结束时， 行政补充项目期间，我们将有收集SOGI的循证建议 数据，以告知癌症护理，满足这个医疗服务不足的社区的需求。由于这种 项目，罗斯威尔公园将更好地定位，以扩大这一评估，并促进合作，我们的 在纽约和其他NCI指定的综合癌症中心拥有自己的罗斯威尔公园护理网络卫星站点 中心.获取SOGI信息的数据对于了解包括罗斯韦尔公园在内的癌症中心， 可以帮助改善性和性别少数群体的癌症护理，并加强有针对性的社区工作 在这一人群中，以最大限度地发挥癌症预防，教育和干预计划的效果。