Full Inclusion of Persons with Disabilities in Self-Management Research

将残疾人充分纳入自我管理研究

• 批准号: 7814724
• 负责人: Shirley M Moore
• 金额: $ 39.98万
• 依托单位: CASE WESTERN RESERVE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-18 至 2011-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7814724
• 关键词: Address; Area; Cancer Grant Supplements (P30); Collaborations; Communication; Communities; Consultations; Core Facility; Data Collection; Disabled Persons; Discipline; Discipline of Nursing; Engineering; Environment; Evaluation; Funding; Goals; Health Promotion; Hearing; Ice; Intervention; Laboratories; Measures; Methods; Metric; Mission; Names; Nurses; Outcome; Persons; Prevention Research; Process; Recovery; Rehabilitation therapy; Research; Research Infrastructure; Research Personnel; Resources; Science; Self Management; Services; Specialist; Speech; Testing; Training; Translational Research; Universities; Vision; base; behavior measurement; college; design; health disparity; hearing impairment; ranpirnase; response; statistics; success; symptom management; teacher; therapy design

DESCRIPTION (provided by applicant): This Competitive Revision Application is in response to Notice Number (NOT-OD-09-058) - Recovery Act Funds for Competitive Revision Applications. In this competitive revision application, we are adding a new set of resources to an existing P30 grant, Center of Excellence in Self-Management Research (SMART Center) (P30 NR01 0676). A new laboratory proposed for the SMART Center, named FIND (Full INclusion of people with Disabilities), will offer a set of resources in our Methods & Statistics Core to provide resources to investigators about the use of Universal Design principles to design interventions and their delivery and data collection methods for fuller inclusion of people with disabilities. We will concentrate first on people with sight and hearing loss (people often excluded from research or from benefiting from being end-users of the interventions we are testing). In the FIND Laboratory, we will be FINDing out how people with disabilities can self-manage and we will be FINDing the people with disabilities who often are invisible to researchers now. As part of this new initiative, we have built new collaborations on several levels: (1) new disciplines (engineering, teachers and rehabilitation specialists of persons with disabilities, communication science), (2) new community agencies (Cleveland Sight Center and Cleveland Hearing and Speech Center), (3) new University Centers (Prevention Research Center, Behavioral Measurement Core Facility), (4) Universities (Lehman College of Nursing), and (5) across NINR-funded Self-Management Centers. A major goal of our SMART Center is not to replicate, but rather to expand, research infrastructure support by offering new services to researchers in the SMART Center and the collaborating universities and community agencies. The newly designed consultation and direct services related to the use of Universal Design Principles offered in the FIND Lab are unique and highly-needed infrastructure supports for researchers. A thorough evaluation of process and outcomes will assist us to measure the success of the FIND Lab and promote its sustainability as part of the SMART Center.

说明（由申请人提供）：本竞争性修订申请是对通知号 (NOT-OD-09-058) - 竞争性修订申请恢复法案资金的回应。在此竞争性修订申请中，我们在现有的 P30 拨款、自我管理研究卓越中心（SMART 中心）（P30 NR01 0676）的基础上添加了一组新资源。为 SMART 中心提议的一个名为 FIND（残疾人全面包容）的新实验室将在我们的方法和统计核心中提供一套资源，为研究人员提供有关使用通用设计原则来设计干预措施及其实施和数据收集方法的资源，以实现残疾人的全面包容。我们将首先关注有视力和听力损失的人（这些人经常被排除在研究之外或从我们正在测试的干预措施的最终用户中受益）。在 FIND 实验室，我们将寻找残疾人如何进行自我管理，我们将寻找现在研究人员常常看不见的残疾人。 作为这项新举措的一部分，我们在多个层面建立了新的合作：(1) 新学科（工程、教师和残疾人康复专家、传播科学），(2) 新的社区机构（克利夫兰视力中心和克利夫兰听力和言语中心），(3) 新的大学中心（预防研究中心、行为测量核心设施），(4) 大学（雷曼护理学院），以及 (5) NINR 资助的自我管理中心。 我们 SMART 中心的主要目标不是复制，而是通过向 SMART 中心以及合作大学和社区机构的研究人员提供新服务来扩展研究基础设施支持。 FIND 实验室提供的与通用设计原则的使用相关的新设计咨询和直接服务是研究人员急需的独特基础设施支持。对过程和结果的全面评估将帮助我们衡量 FIND 实验室的成功并促进其作为 SMART 中心一部分的可持续性。