Epilepsy Self-Management in Older Adults: A Qualitative Descriptive Study

老年人癫痫自我管理：定性描述性研究

• 批准号: 7915055
• 负责人: Wendy Renee Miller
• 金额: $ 3.35万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-05-01 至 2013-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7915055
• 关键词: Adult; Age; Behavior; Chronic Disease; Clinical; Complex; Data; Development; Diagnosis; Disease; Doctor of Philosophy; Educational workshop; Elderly; Epilepsy; Face; Future; Goals; Health behavior; Healthcare; Incidence; Individual; Interdisciplinary Study; Intervention; Knowledge; Life; Mission; Monitor; National Institute of Nursing Research; Outcome; Population; Quality of life; Research; Research Personnel; Resources; Seizures; Self Management; Structure; Training; United States; base; career; design; effective intervention; experience; improved; meetings; middle age; mortality; public health relevance; skills; symposium

DESCRIPTION (provided by applicant): In the United States, older adults have the highest incidence of new-onset seizures, or epilepsy. Because epilepsy is a chronic disease for which there is no cure, older adults are required to independently manage their epilepsy. Self-management refers to a set of behaviors-actions and tasks-carried out by individuals with chronic diseases in order to manage their diseases, associated treatments, and overall impact on daily life. The self-management of epilepsy has been shown to be complex and also related to important societal and clinical outcomes such as healthcare resource utilization, quality of life, and mortality. While researchers have investigated the epilepsy self-management experiences of young and middle-aged adults with epilepsy, no studies examining the self-management experiences of older adults with epilepsy have been executed. Understanding the impact of epilepsy on the lives of older adults and the challenges they face in managing this disease is necessary to develop effective interventions to improve epilepsy self-management, and thus clinical outcomes, for this population. Thus, there is a need to investigate the epilepsy self-management experiences of older adults. The specific aims of this study are to describe epilepsy self-management experiences from the perspective of older adults (those diagnosed at age 60 years or older) and, when applicable, their significant others. A descriptive qualitative design will be used, with narrative data being analyzed via content analysis. Findings generated from this study will ultimately inform the development of future interventions to enhance or facilitate the epilepsy self-management behaviors and experiences of older adults with epilepsy. PhD coursework, conferences, workshops, participation in interdisciplinary research teams, participation in health behavior seminars, and close monitoring by the applicant's sponsors on a bi-weekly basis is proposed in the structured plan to achieve the study aim. Consistent with the mission of the National Institute of Nursing Research, the proposed training plan is designed to enhance the development of essential knowledge and research skills necessary for the applicant to meet the career goal of becoming an established researcher, in a research-intensive academic setting, focused on investigating older adults with epilepsy and their self- management. PUBLIC HEALTH RELEVANCE: Many older adults in the United States suffer from epilepsy and must take steps to manage this disease on their own. This research will provide information which will help to plan interventions aimed at improving older adults' epilepsy self-management experiences.

描述（由申请人提供）：在美国，老年人新发癫痫发作或癫痫的发病率最高。由于癫痫是一种无法治愈的慢性疾病，因此老年人需要独立治疗癫痫。自我管理是指慢性病患者为管理其疾病、相关治疗以及对日常生活的总体影响而进行的一系列行为（行动和任务）。癫痫的自我管理已被证明是复杂的，并且还与重要的社会和临床结果相关，例如医疗资源利用、生活质量和死亡率。虽然研究人员调查了青壮年癫痫患者的自我管理经验，但尚未进行研究检查老年癫痫患者的自我管理经验。了解癫痫对老年人生活的影响以及他们在治疗这种疾病时面临的挑战，对于制定有效的干预措施来改善癫痫的自我管理，从而改善该人群的临床结果是必要的。因此，有必要调查老年人的癫痫自我管理经验。本研究的具体目的是从老年人（60 岁或以上诊断的人）及其重要他人（如适用）的角度描述癫痫自我管理经验。将使用描述性定性设计，并通过内容分析来分析叙述性数据。这项研究的结果最终将为未来干预措施的制定提供信息，以增强或促进老年癫痫患者的癫痫自我管理行为和经历。为了实现研究目标，结构化计划中提出了博士课程、会议、研讨会、参与跨学科研究团队、参加健康行为研讨会以及申请人申办者每两周进行的密切监测。与国家护理研究所的使命相一致，拟议的培训计划旨在加强申请人所需的基本知识和研究技能的发展，以实现成为一名成熟研究员的职业目标，在研究密集型学术环境中，重点研究患有癫痫的老年人及其自我管理。 公共卫生相关性：美国许多老年人患有癫痫症，必须采取措施自行控制这种疾病。这项研究将提供有助于规划旨在改善老年人癫痫自我管理经验的干预措施的信息。