Pilot Project

项目概要：生物库是收集、储存和处理人体组织和/或其他生物标本（生物标本），通常与医疗和个人信息相结合，用于研究。研究表明，大多数人对生物银行知之甚少，可能对其目的存在误解。由于缺乏有效的工具来评估对生物标本捐赠和银行的知识和态度，更好地了解人们对生物银行的看法受到阻碍。 坦帕湾社区癌症网络（TBCCN）最近通过ARRA资助的TBCCN社区对生物库项目的看法发起了生物库的研究，该项目旨在设计和制作教育交流启动工具（例如，小册子、录像带），为健康的社区成员提供生物标本收集和储存的信息。拟议中的项目是一系列研究的下一步，旨在测试 英语和西班牙语教育启动工具在促进生物样本收集和银行正在通过TBCCN社区对生物银行项目的看法开发的有效性。本研究的具体目标是：（1）：开发和试点测试工具，测量对生物标本采集和生物库的知识和态度，以及登记和捐赠标本的意愿 一个生物银行（2）进行一项试点测试，评估教育沟通启动工具在改善患者对癌症相关生物库的知识和态度以及向生物库捐赠生物标本的意愿方面的作用;（3）探索教育沟通启动工具是否会增加同意向生物库献血的比例。拟议的项目通过制定和验证文书来弥补差距， 测量对生物样本捐赠和银行的知识和态度，以及向生物库捐赠生物样本的意图（第1阶段）。一旦开发完成，这些工具将用于通过一项小型随机对照试验（第2期）评估TBCCN社区对生物库项目的看法期间开发的教育启动工具。本试验将评估患者对生物库的态度、生物库知识、参与生物库的意愿以及同意向生物库献血的变化，这些变化提供了以下两种情况之一：1）开发了关于生物库的教育沟通启动工具 在TBCCN社区对生物库项目的看法，或2）国家癌症研究所的小册子，题为“提供你的组织的研究：你需要知道什么。“拟议的试点研究将提供初步数据，以支持一项更大规模的研究，即教育沟通启动工具在改善患者对生物标本收集和生物库的看法方面的优越性。

Project Summary: Biobanking is the collection, storage, and processing of human tissue and/or other biological specimens (biospecimens), often combined with medical and personal information, for research. Research indicates that most people have little knowledge about biobanking and may hold misconceptions about its purpose. A better understanding of people's perceptions of biobanking is hampered by the lack of validated instruments to evaluate knowledge about and attitudes towards biospecimen donation and banking. The Tampa Bay Community Cancer Network (TBCCN) has recently initiated research in biobanking, through the ARRA funded TBCCN Community Perceptions on Biobanking Project, which aims to design and produce educational communication priming tools (e.g., booklets, videos) about biospecimen collection and banking for healthy community members. The proposed project is the next step in a line of research aimed at testing the efficacy of English and Spanish language educational priming tools in promoting biospecimen collection and banking being developed through the TBCCN Community Perceptions on Biobanking Project. The specific aims of the proposed study are to: (1): develop and pilot test instruments measuring knowledge of and attitudes toward biospecimen collection and biobanking, as well as intention to enroll in and donate specimens to a biobank; (2) conduct a pilot test evaluating educational communication priming tools in improving patients' knowledge of and attitudes towards cancer-related biobanking, as well as intention to donate biospecimens to a biobank; and (3) explore whether educational communication priming tools increase the rate of consent to donate blood to a biobank. The proposed project addresses gaps by developing and validating instruments to measure knowledge of and attitudes towards biospecimen donation and banking, as well as intention to donate biospecimens to a biobank (Phase 1). Once developed, these instruments will be used to evaluate the educational priming tools developed during the TBCCN Community Perceptions on Biobanking Project through a small randomized controlled trial (Phase 2). This trial will evaluate changes in attitudes toward biobanking, knowledge regarding biobanking, intention to participate in a biobank, and consent for donating blood to a biobank from patients provided either 1) educational communication priming tools about biobanking developed in the TBCCN Community Perceptions on Biobanking Project, or 2) the National Cancer Institute's brochure entitled "Providing Your Tissue for Research: What You Need to Know." The proposed pilot study will provide preliminary data to support a larger study of the superiority of the educational communication priming tools in improving patients' perceptions of biospecimen collection and biobanking