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中文摘要
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描述(由申请人提供):虽然西班牙裔白人的癌症发病率普遍低于非西班牙裔白人的癌症发病率,但晚期诊断出的癌症比例更高。有必要制定解决办法,发展在文化上适当和对识字敏感的癌症筛查、早期发现和预防交流,并在西班牙裔社区有效传播这方面的信息。需要更多地了解社区成员的信息需求,以推动此类行动。目前,很少有可用的数据提供关于癌症认知和优先事项以及交流偏好和实践的基线信息,这对于在社区中开展相关的癌症交流活动是必要的。因此,这个为期两年的探索性项目的总体目标是制定一份适当的问卷来评估癌症信息需求,该项目名为REACH(西班牙裔相关教育和交流)。该项目建立在莫菲特癌症中心和波多黎各癌症中心之间现有的强大研究伙伴关系的基础上,并汇集了一个强大的跨学科团队,旨在积极影响服务不足的西班牙裔和低识字率人群的健康。具体目标是:开展和分析一系列焦点小组,以探索居住在佛罗里达州希尔斯伯勒县和波多黎各圣胡安的波多黎各人的癌症信息需求。预计从焦点小组获得的见解将为有关癌症信息需求和优先事项以及沟通偏好和实践的看法的问卷域的发展提供信息。采用系统的规划方法和一系列迭代过程,编制一份西班牙语/英语问卷。
英文摘要
DESCRIPTION (provided by applicant): While the cancer incidence among Hispanics is generally lower than the cancer incidence among non-Hispanic whites, the proportion of cancers diagnosed in advanced stages is greater. A need exists to create solutions for the development of culturally appropriate and literacy sensitive cancer communications regarding screening, early detection and prevention and to effectively penetrate this information within the Hispanic community. An increased understanding of community members' information needs is required to fuel such initiatives. Currently, there are few available data that provide baseline information with regard to cancer perceptions and priorities and communication preferences and practices, necessary to develop relevant cancer communication initiatives in the community. Therefore, the overarching goal of this two-year exploratory project, entitled REACH (Relevant Education and Communications for Hispanics), is to develop an appropriate questionnaire for assessing cancer information needs. This project builds upon an existing strong research partnership between the Moffitt Cancer Center and the Puerto Rico Cancer Center and brings together a strong interdisciplinary team that aims to positively impact the health of underserved Hispanic and low literacy populations. Specific aims are: To conduct and analyze a series of focus groups to explore cancer information needs among Puerto Ricans residing in Hillsborough County, Florida and San Juan, Puerto Rico. It is expected that insights gained from the focus groups will inform the development of the questionnaire domains relating to perceptions of cancer information needs and priorities and communication preferences and practices. To develop a draft of a Spanish/English questionnaire using systematic planning methods and a series of iterative processes. This will be accomplished through a review of existing questionnaires, relevant literature, infusion of key findings from focus groups, evaluation of content validity, and application of continual improvement steps including cognitive evaluation and learner verification techniques. It is expected that the use of systematic processes will yield information about understandability, cultural, literacy, and linguistic acceptability, validity, and attractiveness of the questionnaire. To pretest the questionnaire among a sample of Puerto Ricans in Hillsborough County, Florida and San Juan, Puerto Rico. It is expected that pretesting will yield important information about overall reliability (test-retest procedures) and questionnaire flow. It is anticipated that this project will yield a questionnaire that can be exported and used in larger community-based intervention studies with minor modifications.
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1/2 Southeast Partnership for Improving Research &Training in Cancer Health Disparities
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