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中文摘要
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描述(由申请人提供):虽然西班牙裔美国人的癌症发病率通常低于非西班牙裔白人的癌症发病率,但晚期诊断的癌症比例更高。需要创造解决方案,以发展文化上适当的和识字敏感的癌症沟通有关筛查,早期发现和预防,并有效地渗透在西班牙裔社区的信息。需要更多地了解社区成员的信息需求,以推动这些举措。目前,有几个可用的数据,提供有关癌症的看法和优先事项和沟通的偏好和做法,必要的发展相关的癌症沟通倡议在社区的基线信息。因此,这个为期两年的探索性项目的总体目标,题为REACH(西班牙裔相关教育和通信),是制定一个适当的问卷调查,以评估癌症信息的需求。该项目建立在莫菲特癌症中心和波多黎各癌症中心之间现有的强有力的研究伙伴关系的基础上,并汇集了一个强大的跨学科团队,旨在积极影响服务不足的西班牙裔和低识字率人口的健康。具体目标是:开展并分析一系列焦点小组,以探索居住在佛罗里达希尔斯伯勒县和波多黎各圣胡安的波多黎各人的癌症信息需求。预计从重点小组获得的见解将告知有关癌症信息需求和优先事项以及沟通偏好和做法的看法的问卷领域的发展。利用系统规划方法和一系列反复过程,拟订西班牙文/英文调查表草稿。 这将通过审查现有的问卷调查,相关文献,重点小组的主要研究结果,内容有效性的评估,并应用持续改进的步骤,包括认知评估和学习者验证技术。预计使用系统的过程将产生的信息的可理解性,文化,识字,语言的可接受性,有效性和吸引力的问卷。在佛罗里达希尔斯伯勒县和波多黎各圣胡安的波多黎各人样本中对问卷进行预测试。 预计预测试将产生有关总体可靠性(重测程序)和问卷流程的重要信息。预计这一项目将产生一份调查表,可导出并在稍做修改后用于更大规模的基于社区的干预研究。
英文摘要
DESCRIPTION (provided by applicant): While the cancer incidence among Hispanics is generally lower than the cancer incidence among non-Hispanic whites, the proportion of cancers diagnosed in advanced stages is greater. A need exists to create solutions for the development of culturally appropriate and literacy sensitive cancer communications regarding screening, early detection and prevention and to effectively penetrate this information within the Hispanic community. An increased understanding of community members' information needs is required to fuel such initiatives. Currently, there are few available data that provide baseline information with regard to cancer perceptions and priorities and communication preferences and practices, necessary to develop relevant cancer communication initiatives in the community. Therefore, the overarching goal of this two-year exploratory project, entitled REACH (Relevant Education and Communications for Hispanics), is to develop an appropriate questionnaire for assessing cancer information needs. This project builds upon an existing strong research partnership between the Moffitt Cancer Center and the Puerto Rico Cancer Center and brings together a strong interdisciplinary team that aims to positively impact the health of underserved Hispanic and low literacy populations. Specific aims are: To conduct and analyze a series of focus groups to explore cancer information needs among Puerto Ricans residing in Hillsborough County, Florida and San Juan, Puerto Rico. It is expected that insights gained from the focus groups will inform the development of the questionnaire domains relating to perceptions of cancer information needs and priorities and communication preferences and practices. To develop a draft of a Spanish/English questionnaire using systematic planning methods and a series of iterative processes. This will be accomplished through a review of existing questionnaires, relevant literature, infusion of key findings from focus groups, evaluation of content validity, and application of continual improvement steps including cognitive evaluation and learner verification techniques. It is expected that the use of systematic processes will yield information about understandability, cultural, literacy, and linguistic acceptability, validity, and attractiveness of the questionnaire. To pretest the questionnaire among a sample of Puerto Ricans in Hillsborough County, Florida and San Juan, Puerto Rico. It is expected that pretesting will yield important information about overall reliability (test-retest procedures) and questionnaire flow. It is anticipated that this project will yield a questionnaire that can be exported and used in larger community-based intervention studies with minor modifications.
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1/2 Southeast Partnership for Improving Research &Training in Cancer Health Disparities
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