Addressing the Personal Health Information Management Needs of Older Adults

说明(申请人提供)：老年人是医疗保健的最大消费者，需要支付最大比例的医疗保健费用。老年人如何管理他们的健康对健康提供系统、医疗保健支出和公共健康具有深远的影响。面对功能的变化、慢性病和生活状况的转变，老年人需要有组织地获取他们的健康信息，以做出与健康有关的重大决定。老年人的个人健康信息管理(PHIM)系统已经存在，但很少有老年人使用它们。限制包括较差的健康素养、较差的计算机技能以及身体或认知障碍。这项研究的目标是通过促进我们对老年人及其利益相关者的PHIM需求、实践和偏好的理解，改进针对老年人的PHIM系统的设计。运用综合的社会技术方法，我们的多学科研究团队将进行一系列定性访谈、焦点小组、调查和可用性研究，以更深入地了解老年人个人健康信息管理的需求和背景。本研究将致力于以下目标：1)描述来自不同社会经济群体和不同居住环境的老年人的个人健康信息管理(PHIM)需求和实践；2)考察主要利益相关者在老年人个人健康信息管理中所扮演的角色；3)使用平衡理论框架对老年人的个人健康信息需求和实践进行建模；4)开发一套设计概念、设计和设计指南，以满足已确定的PHIM需求和偏好。这项工作的长期目标是改进健康信息管理系统的设计和开发，以支持老年人的健康和独立。

DESCRIPTION (provided by applicant): Older adults are the largest consumers of health care and require the greatest portion of health care costs. How older adults manage their health has profound consequences for health delivery systems, health care expenditure, and public health. Faced with changes in functioning, chronic diseases and transitions in living situation, older adults require organized access to their health information to make significant health-related decisions. Personal health information management (PHIM) systems for older adults exist, but few older adults use them. Limitations include poor health literacy, poor computer skills, and physical or cognitive disabilities. The goal of this research is to improve the design of PHIM systems for older adults through advancing our understanding of the PHIM needs, practices and preferences of older adults and their stakeholders. Using an integrative sociotechnical approach, our multidisciplinary research team will conduct a series of qualitative interviews, focus groups, surveys and usability studies to gain a deeper understanding of older adult personal health information management needs and context. This research will address the following aims: 1) Characterize the personal health information management (PHIM) needs and practices of older adults from diverse socioeconomic groups and in a variety of residential contexts, 2) Examine the roles which key stakeholders play in personal health information management for older adults, 3) Use the Balance Theory framework to model the personal health information needs and practices of older adults and 4) Develop a set of design concepts, design and design guidelines to meet the identified PHIM needs and preferences. The long term goal of this work is to improve the design and development of health information management systems that support the health and independence of older adults.