Rare Dis Clin Res Consortia (RDCRC) for Rare Dis Clin Res Network (U54)

罕见疾病临床研究联盟 (RDCRC) 的罕见疾病临床研究网络 (U54)

• 批准号: 9145799
• 负责人: MICHIO HIRANO
• 金额: $ 16.27万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9145799
• 关键词: Accident and Emergency department; Clinic; Clinical; Clinical Research; Clinical Trials; Clinical Trials Design; Colorado; Complex; Databases; Development; Diagnosis; Diagnostic; Educational process of instructing; Exposure to; Faculty; Fellowship; Fellowship Program; Florida; Generations; Heterogeneity; Institution; Instruction; K-Series Research Career Programs; Medical; Medicine; Metabolic Diseases; Mitochondria; Mitochondrial Diseases; Molecular; Patients; Research; Research Personnel; Research Training; Scientist; Site; Specialist; Telemedicine; Training; Training Programs; Universities; Visit; Writing; body system; data sharing; design; experience; interest; novel; professor; programs; symposium; training opportunity; translational medicine

The NAMDC Fellowship Program offers a unique training opportunity to senior postdoctoral clinical fellows who we anticipate will move on to the attending/assistant professor level in an academic setting as well-trained clinician scientists. The focus remains on translational medicine, teaching of diagnostic expertise and the development of clinical trials expertise. We aim to train the first of a new generation of clinician scientists who will be well equipped to move the promising new treatments for mitochondrial disease into the clinical arena. We plan to expand the program from seven training sites to nine. Our current sites include; Columbia, San Diego, Seattle, Cleveland, Hamilton, CHOP, and University of Florida. In this proposal we wish to add Baylor and University of Colorado at Denver. All are leading institutions in the new field of mitochondrial medicine. Each site brings a novel set of training experiences. World renowned faculty are to be found at each site. The initial exposure to mitochondrial patients, diagnosis and treatment will be provided during 3 to 6 months at UCSD in the Mitochondrial and Metabolic Disease Center. In this period an intensive clinical trials training program is required through the CREST program. Fellows will then choose to visit two or more consortium sites for periods from 1 to 3 months where a rich and varied training experience will be provided. The program will continue to be held together by regular telemedicine WebEx conferences involving all consortium sites. Data sharing is underway at all sites through the NAMDC database which the fellows will be actively involved with both at the patient entry level and analytically. At the end of their training the fellows will be encouraged to write a K award application.

NAMDC奖学金计划为高级博士后临床研究员提供了独特的培训机会 我们期望的人将在学术环境中进入主教/助理教授级别以及训练有素 临床医生。重点仍然放在转化医学，诊断专业知识的教学上 以及临床试验专业知识的发展。我们的目标是培训新一代临床医生的第一台 将有能力将有希望的线粒体疾病的新疗法转移到的科学家 临床领域。我们计划将计划从七个培训站点扩展到九个。我们目前的网站 包括;哥伦比亚，圣地亚哥，西雅图，克利夫兰，汉密尔顿，Chop和佛罗里达大学。在这个 提案我们希望加入丹佛的贝勒和科罗拉多大学。所有人都是新的领先机构 线粒体医学领域。每个站点都带来了一系列新颖的培训经验。世界著名教师 在每个站点都可以找到。最初暴露于线粒体患者，诊断和治疗将是 在UCSD的线粒体和代谢疾病中心的3至6个月内提供。在此期间 通过CREST计划需要进行密集的临床试验培训计划。那时会 选择访问两个或多个财团地点，从1到3个月，在那里进行丰富而多样的培训 将提供经验。该计划将继续由常规远程医疗Webex合作 涉及所有财团地点的会议。通过NAMDC，所有站点都在进行数据共享 研究库将在患者入门级和分析中都积极参与。在 他们的培训结束，将鼓励研究员撰写K奖申请。