An intervention to improve the detection and management of Familial Hypercholesterolaemia in primary care

改善初级保健中家族性高胆固醇血症的检测和管理的干预措施

• 批准号: nhmrc : 1142883
• 负责人: A/Pr David Sullivan
• 金额: $ 35.05万
• 依托单位: The University of Notre Dame Australia
• 依托单位国家: 澳大利亚
• 项目类别: Partnerships
• 财政年份: 2017
• 资助国家: 澳大利亚
• 起止时间: 2017-01-01 至 2020-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/an-intervention-improve-primary-care/1319809
• 关键词: intervention; improve; detection; management; Familial

Familial hypercholesterolaemia (FH) is an inherited condition affecting 45,000 Australians, with 10% diagnosed. FH has been managed mainly through hospital clinics with the majority under-treated despite effective primary care treatment being available. The application integrates specialist and primary care management with data fed into the new national FH registry. It is a partnership between 7 Universities and 5 States: service providers; community organisations; policy managers and industry.

家族性高胆固醇血症（FH）是一种遗传性疾病，影响了45,000名澳大利亚人，其中10%被诊断出来。FH主要通过医院诊所进行管理，尽管有有效的初级保健治疗，但大多数人治疗不足。该应用程序集成了专家和初级保健管理，并将数据输入新的国家FH登记处。它是7所大学和5个州之间的伙伴关系：服务提供者；社区组织;政策经理和行业。