The Australia and New Zealand Fontan Registry: a Growing Population of Young Adults with Heart Failure

澳大利亚和新西兰 Fontan 登记处：患有心力衰竭的年轻人口不断增加

• 批准号: nhmrc : 607356
• 负责人: A/Pr Robert Weintraub
• 金额: $ 8.61万
• 依托单位: Murdoch Childrens Research Institute
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Project Grants
• 财政年份: 2010
• 资助国家: 澳大利亚
• 起止时间: 2010-01-01 至 2012-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/australia-new-zealand-heart-failure/100385
• 关键词: Australia; New; Zealand; Fontan; Registry

The Fontan procedure is an operation performed for all children with heart defects who cannot be repaired with 2 pumping chambers like a normal heart. It is expected that after 2 or 3 decades, these patients will either die or need a heart transplantation. We want to establish a registry to evaluate the number and status of this increasing patient population. This study may foresee and even prevent a sudden burden on the health system caused by their needs.

Fontan手术适用于所有有心脏缺陷的儿童，这些儿童不能像正常心脏一样用两个泵腔进行修复。预计在20或30年后，这些患者要么死亡，要么需要心脏移植。我们想建立一个登记处来评估这个不断增长的患者群体的数量和状况。这项研究可以预见甚至防止因他们的需求而对卫生系统造成的突然负担。