SCC-CIVIC-PG Track A:CaReDeX: Enabling Disaster Resilience in Aging Communities via a Secure Data Exchange

多年来的灾害表明，在极端事件中有不成比例的老年人伤亡。大量老年人生活在老年友好社区和促进独立生活的老年保健设施中。 在危机期间，由于一系列身体状况（需要维持生命的设备、行动能力受损）和认知障碍（如痴呆症、阿尔茨海默氏症），老年人往往无法安全地就地避难或自行撤离。无缝访问有关生活设施的信息（例如，平面图、操作状态、居民数量）和关于居民的信息（例如，健康状况，如需要透析、氧气、个人物品以减少焦虑）可以使第一反应者能够改善灾害期间的反应结果。这些信息通常由护理人员掌握，并保存在各组织的日志中，在作出反应时无法访问和/或无法获得。 该提案旨在创建一个名为CareDEX的新型社区贡献数据交换平台，该平台将使各组织能够随时吸收，摄取，存储和交换先验和实时信息，与响应机构一起保护和照顾极端事件中的老年人。使用CareDEX，SHF将能够分享有关个人不断变化的健康状况，个性化需求的信息，并确定需要专业分类和重症监护的人。 鉴于个人信息的敏感性，例如健康状况、能力状态，CareDEX将采用技术来平衡个人隐私的需要与在需要时向响应者授权发布信息的需要。为期4个月的试点规划工作将包括两个讲习班和一个示范试点研究，重点是使应急和老年人生活社区的利益攸关方确定具体的信息需求，设计收集和共享此类数据的协议，并探讨隐私/安全问题。研讨会和试点将解决模拟的紧急情况，例如需要疏散老年人的野火事件，以及在Covid 19等大流行期间发生火灾的复杂事件。研讨会的目标是帮助确定指导CareDEX研究、设计和开发的要求。 规划研讨会将吸引不同群体的学生和博士后研究人员参与，从而为下一代公民在与全球社区相关的跨学科主题方面的教育做出贡献。该项目是对轨道B - CIVIC创新挑战赛-的回应。与NSF和国土安全部合作的自然灾害恢复能力。该奖项反映了NSF的法定使命，通过使用基金会的知识价值和更广泛的影响审查标准进行评估，认为值得支持。

Disasters over the years have shown that a disproportionate number of older adults suffer fatalities and injuries during extreme events. A large number of older adults live in age-friendly communities and senior health facilities (SHFs) that promote independent living. During a crisis, older adults are often unable to shelter safely in place or evacuate on their own due to a range of physical conditions (need for life-sustaining equipment, impaired mobility) and cognitive afflictions (e.g. dementia, Alzheimer’s). Seamless access to information about the living facilities (e.g., floor plans, operational status, number of residents) and about the residents (e.g.,health conditions such as need for dialysis, oxygen, personal objects to reduce anxiety) can empower first responders to improve response outcomes during disasters. Such information, typically held by caregivers and in the logs maintained by the organizations, is inaccessible and/or unavailable at the time of response. This proposal seeks to create a novel community contributed data-exchange platform, entitled CareDEX, that will empower organizations to readily assimilate, ingest, store and exchange information, both apriori and in real-time, with response agencies to protect and care for the elderly in extreme events. Using CareDEX, SHFs will be able to share information about an individual’s changing health conditions, their personalized needs and identify those in need of specialized triage and critical care. Given the sensitive nature of personal information, e.g. health profiles, ability status, CareDEX will incorporate techniques to balance the need for individual privacy with authorized release of information to responders when needed. The pilot 4-month planning effort will involve 2 workshops and a demonstration pilot study that will focus on bringing stakeholders from the emergency response and senior living communities to identify specific information needs, design protocols for collection and sharing of such data, and explore privacy/security concerns. The workshops and pilot will address simulated emergency scenarios, e.g a wildfire event requiring evacuation of seniors and a complex event when the fire occurs during a pandemic such as Covid19. The goal of the workshops would be to help identify the requirements which will guide the research, design, and development of CareDEX. The planning workshops will engage a diverse group of students and postdoctoral researchers and thereby contribute to the education of the next generation of citizens in interdisciplinary topics that are relevant to communities worldwide.This project is in response to Track B - CIVIC Innovation Challenge - Resilience to Natural Disasters a collaboration with NSF and the Department of Homeland Security.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.