SCC-CIVIC-FA Track B: CaReDeX: Enabling Disaster Resilience in Aging Communities via a Secure Data Exchange

灾害对老年人的影响尤为严重，他们的死亡率上升；这些人通常生活在老年人友好社区和高级卫生设施中。在危机期间，由于一系列身体状况（需要维持生命的设备、行动能力受损）和认知疾病（如痴呆、阿尔茨海默病），老年人往往无法安全地在原地避难或自我撤离。协助老年人的急救人员可以从无缝、实时地获取有关生活设施（例如，楼层平面图、运营状况、居民人数）和居民个人（例如，透析、氧气需求等健康状况、减少焦虑的个人物品）的关键救生信息中受益。此类信息存在于组织日志中或由护理人员持有，在响应时无法访问和/或不可用。这一跨学科项目将信息技术、老年病学和抗灾能力专家与灾害响应机构和SHF提供商聚集在一起，为老年人建立信息准备和转变抗灾能力。该团队将设计、开发和部署CareDEX，这是一个由社区贡献的新型数据交换平台，使shf能够轻松地吸收、摄取、存储和交换先验和实时的信息，并与应对机构在极端事件中照顾老年人。CareDEX信息管道使卫生工作者能够获取有关不断变化的健康状况和个性化需求的个人信息，并与响应者分享，以帮助改善反应。与公民合作伙伴共同生产的信息将通过主动收集/更新工具识别和完善居民特定数据。鉴于个人信息（例如健康概况）的敏感性，CareDEX将纳入基于策略的信息共享机制，以平衡个人隐私需求和授权信息发布。CareDEX的混合云架构可以无缝地将数据安全地存储在本地（SHF）和云中，供应急人员和临时护理人员远程访问。老年人的重新安置需要区域信息（如道路状况、设施状态）——CareDEX将整合GIS工具，为第一反应者提供最新的区域级态势感知，以提供动态决策支持。CareDEX原型平台将与核心公民合作伙伴共同开发，例如Front Porch（一家全国性的老年护理提供商），并部署在加利福尼亚州阿纳海姆的SHF。与当地响应机构（洛杉矶、橙县、圣贝纳迪诺、圣地亚哥）和国家实体（联邦应急管理局、红十字会、NFPA/FPRF）合作，将应急响应人员与护理人员的需求结合起来。CareDEX将使用多种场景进行评估，包括引发重新安置的野火事件、野火与流行病相结合，以及预警时间短、不确定性增加的快速地震事件。公民创新挑战赛是能源部、国土安全部科学技术局、联邦紧急事务管理局（FEMA）和国家科学基金会的合作项目。该奖项反映了美国国家科学基金会的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

Disasters disproportionately impact older adults who experience increased fatality rates; such individuals often live in age-friendly communities and senior health facilities (SHFs). During a crisis, older adults are often unable to shelter safely in place or self-evacuate due to a range of physical conditions (need for life-sustaining equipment, impaired mobility) and cognitive afflictions (e.g. dementia, Alzheimer’s). First responders assisting older adults could benefit from seamless, real-time access to critical life-saving information about the living facilities (e.g., floor plans, operational status, number of residents) and about individual residents (e.g., health conditions such as need for dialysis, oxygen, personal objects to reduce anxiety). Such information, siloed within organizational logs or held by caregivers, is inaccessible and/or unavailable at the time of response. This interdisciplinary project brings together IT, geriatrics and resilience experts with disaster-response agencies and SHF providers to create information preparedness and transform disaster resilience for older adults.The team will design, develop and deploy CareDEX, a novel community contributed data-exchange platform, that empowers SHFs to readily assimilate, ingest, store and exchange information, both apriori and in real-time, with response agencies to care for older adults in extreme events. The CareDEX information pipeline enables SHFs to capture individual information about changing health conditions and personalized needs and share them with responders to help improve response. Information co-produced with civic partners will identify and refine resident-specific data via tools for proactive collection/update. Given the sensitive nature of personal information, e.g., health-profiles, CareDEX will incorporate policy-based information sharing mechanisms that balance needs for individual privacy with authorized information release. CareDEX’s hybrid-cloud architecture seamlessly enables data to be securely stored on-premise (at SHF) and in the cloud for remote access by responders and temporary caregivers. Relocation of older adults requires regional information (e.g. road-conditions, facility status) - CareDEX will integrate GIS tools to provide first-responders with uptodate region-level situational awareness for dynamic decision-support. The prototype CareDEX platform will be co-developed with core civic partners, e.g. Front Porch (a nation-wide senior-care provider) and deployed at a SHF in Anaheim, CA. Collaborations with local response agencies (Los Angeles, Orange County, San Bernardino, San Diego) and national entities (FEMA, Red Cross, NFPA/FPRF) will mesh needs of emergency responders with caregivers. CareDEX will be evaluated using diverse scenarios - a wildfire event triggering relocation, wildfires coupled with a pandemic, and rapid onset earthquake events with small warning times and increased uncertainty.The CIVIC Innovation Challenge is a collaboration with Department of Energy, Department of Homeland Security Science and Technology Directorate, Federal Emergency Management Agency (FEMA), and the National Science FoundationThis award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.