Untimely heart disease. Time structures of good life in psychocardiology

该分项目考察了受早产儿心脏病影响的人们对美好生活的感知和设计的变化，从而主观上常常“过早”地“早逝”心脏病。该项目将与这些人和一群近亲一起调查(1)心脏病如何影响时间的体验和组织(例如，时间主权、代际关系和过去、现在和未来的观点)，(2)时间体验的改变是否以及如何导致这些人通常观察到的心理社会问题和精神障碍的发生率增加，(3)时间体验反过来是否受到这些心理社会问题的影响，以及(4)受影响者的生活质量如何，这越来越被认为是医疗的中心目标，可以理解为一种整体的美好生活概念，放在时间的视角下。为此目的，在对基本术语和概念进行跨学科改进之后，将设计和进行一项以定性为主的横断面实证研究。通过基于现象学精神病理学和可操作性精神动力学诊断学等方法的访谈，这项研究将及时为这些人提供一幅关于美好生活的想法的多层面图景，显示现有的医学生活质量测量工具的不足，以及受影响者的支持和治疗需求未得到充分覆盖，并概述进一步开发生活质量评估工具和有针对性的干预措施的前景。在致力于理论基础的第一阶段，分项目将与战略规划1(哲学)密切协调，随后将为检验其理论假设提供经验材料。对性别影响的有针对性的审议，例如在心脏病青年男女计划生育领域，将提供与战略规划4(社会学/社会心理学)和战略规划5(生殖医学伦理)对生殖医学的关注的联系。将与SP 2(电影/电视)合作，对与他们的风景材料和叙述进行的视频采访进行评估。视频访谈还将通过文本分析方法进行分析，利用SP 4(社会学/社会心理学)和SP 6(普通医学)的方法能力。从临床观察可知，中青年心脏病患者对早衰的看法提出了一些问题，这些问题可以借助SP 7(老年医学伦理学)的概念工具加以解决，并与SP 6(全科医学)的经验结果相比较。

The subproject examines changes in the perception and design of a good life for persons affected by premature and thus subjectively often "untimely" heart disease. The project will investigate, on and with these persons and a group of close relatives, (i) how heart disease influences the experience and organization of time (for example aspects of time sovereignty, intergenerational relationships and the view of the past, present and future), (ii) whether and how the altered experience of time contributes to the increased incidence of psychosocial problems and mental disorders typically observed in these persons, (iii) whether in turn the experience of time is influenced by those psychosocial problems, and (iv) how the quality of life of those affected, which is increasingly accepted as a central goal of medical therapy, can be understood as a holistic concept of good life, placed in a time perspective. For this purpose, after an interdisciplinary refinement of the underlying terms and concepts, a cross-sectional, predominantly qualitative empirical study will be designed and carried out. By means of interviews based on phenomenological psychopathology and operationalised psychodynamic diagnostics, among other approaches, the study will provide a multidi-mensional picture of ideas of good life in time for these persons, show deficits of established instruments for measuring quality of life in medicine as well as insufficiently covered support and treatment needs of affected persons and outline perspectives for the further development of quality oif life assessment tools and targeted interventions. In the first phase, dedicated to the theoretical foundation, the subproject will closely coordinate with SP 1 (Philosophy), to which it will subsequently provide empirical material to test its theoretical assumptions. The targeted consideration of gender effects, for example in the area of family planning of young women and men with heart disease, will provide links to the focus on reproductive medicine in SP 4 (Sociology / social psychology) and SP 5 (Ethics of reproductive medicine). The video interviews with their scenic material and narratives will be evaluated in cooperation with SP 2 (Film / television). Video interviews will also be analyzed by text analytic methods, harnessing the methodological competence available in SP 4 (Sociology / social psychology) and SP 6 (General practice). The perception of premature old age by people suffering from heart disease in young or middle age, which is expected from clinical observations, raises questions that can be addressed with the help of the conceptual tools of SP 7 (Ethics of geriatric medicine) and in comparison with the empirical findings of SP 6 (General practice).