Increasing Minority Population Awareness through Community Teaching for Improved Organ Donation (IMPACT for Improved Organ Donation)

摘要 美国的器官捐献率继续远远低于患者的需求， 终末期肾病和肝病。虽然纽约约占全国候补名单的10%， 目前，它在50个州的器官捐献者登记率中排名第50位。亚洲社区是 少数民族人口增长最快的国家，是最大的群体， 任何种族/族裔群体器官的需求和供应。纽约州皇后县， 在这个国家人口最稠密和最多样化的地区，亚洲人占25%以上， 是该国捐赠者登记率最低的国家之一（13%，全国平均水平为52% 目前）。了解文化，后勤和其他障碍，以捐助者登记， 亚裔美国人对改善这一群体的器官捐献者登记至关重要。增加 对器官捐献和移植以及改善器官的认识和意识 捐赠者登记率与随后的器官捐赠密切相关。我们的资助 建议：1）了解登记和捐赠的障碍， 皇后区法拉盛的亚洲人; 2）利用纽约长老会-哥伦比亚的资源 亚洲健康计划（NYP-CAHP）; 3）利用其与 法拉盛的亚裔社区和社区医生，以实现我们的目标，包括 增加对器官捐赠和登记的了解，影响登记为 捐助者，并提高实际捐助者登记率。我们将采用混合方法， 了解亚洲人登记为器官捐献者的障碍 医生和病人。从这项工作中获得的信息将用于制定印刷和 针对医生和患者的多媒体教育课程， 文化、宗教、语言和实用主义障碍。材料将在 然后是韩国人。个别教育和病人 将向法拉盛诊所的医生提供教育材料， 医生对患者发起的关于器官捐赠的对话做出反应的能力， 确保我们持久的教育材料产生可持续的长期影响。患者教育 将在NYP-CAHP医生合作研究中心进行，并将包括以下机会： 在一对一的教育后立即填写器官捐赠者登记表 会议由一名双文化/多语言研究小组成员主持。广泛传播 我们的教育材料的10个其他地区在该国有大亚洲 人口和捐助者登记率低将对全国的捐助者登记产生积极影响。

Abstract Organ donation rates in the United States continue to fall far short of the needs of patients with end stage renal and liver disease. While New York represents about 10% of the national waitlist, it ranks 50th of 50 states for organ donor registration rates currently. The Asian community is the fastest growing minority population in the country and is the group with the largest disparity in the demand and supply of organs of any racial/ethnic group. Queens County, NY, which is one of the most densely populated and most diverse areas in the country is over 25% Asian but has one of the lowest donor registration rates in the country (13% vs national average of 52% currently). Understanding the cultural, logistical and other barriers to donor registration among Asian Americans is essential to improve organ donor registration in this group. Increasing knowledge and awareness about organ donation and transplantation and improving organ donor registration rates are strongly associated with subsequent organ donation. Our grant proposes to: 1) develop an understanding of the barriers to registration and donation among Asians in Flushing, Queens; 2) utilize the resources of the New York Presbyterian-Columbia Asian Health Program (NYP-CAHP) and; 3) capitalize on their existing relationship with the Asian community and community physicians in Flushing to accomplish our goals that include increasing knowledge of organ donation and registration, influencing intent to register as a donor, and increasing actual donor registration rates. We will use a mixed methods approach to develop an understanding of the barriers to registration as an organ donor among Asian physicians and patients. The information gained from this effort will be used to develop print and multimedia educational curricula for physicians and patients that is tailored to the cognitive, cultural, religious, linguistic, and pragmatic barriers identified. The materials will then be introduced to the Chinese population followed by the Korean. Individual education and patient educational materials will be provided to the physicians at Flushing practices to increase the ability of physicians to respond to patient-initiated conversation about organ donation thereby ensuring a sustainable long-term impact of our enduring educational material. Patient education will be conducted at NYP-CAHP physician partner sites and will include the opportunity to complete an organ donor registration form immediately following a one-on-one educational session delivered by a bicultural/multilingual research team member. Widespread dissemination of our education materials to the 10 other regions in the country that have large Asian populations and low donor registration rates will positively impact donor registration nationally.