CONSENT-ASL Toolkit for Deaf and Hard of Hearing People

迫切需要一个以用户为中心的、可访问的知情同意工具包。这个 此G08应用程序的目的是开发和部署可访问的知情同意应用程序- 基于工具包，支持两个目标受众：1)希望参与 研究和2)临床研究协调员(CRCs)和首席研究员(PI) 谁没有资源使他们的知情同意材料可供 失聪的潜在参与者。 这个项目风险低，影响大，因为它建立在领导团队的 与医疗服务不足的聋人社区进行研究。从课程中学到的知识 因此，拟议的活动将有很大潜力为聋人带来有用的、可用的资源。 签字人和希望参与研究或临床试验的人。 最后，由此产生的资源将填补NLM战略目标1和2中优先考虑的空白 计划目标，因为提议的工作将通过信息支持研究 加强研究参与和信息传递的传播战略 对未得到充分服务、被忽视的群体，如使用ASL的聋人的知情同意。

There is a critical need for a user-centered, accessible informed consent toolkit. The purpose of this G08 application is to develop and deploy an accessible informed consent app- based toolkit to support two target audiences: 1) deaf patients who wish to participate in research studies and 2) clinical research coordinators (CRCs) and principal investigators (PIs) who do not have the resources to make their informed consent materials accessible to prospective participants who are deaf. This project is low-risk and high in impact because it builds on the leadership team’s research with the medically underserved Deaf community. Knowledge gained from the proposed activities will therefore have great potential to bring useful, usable resources to deaf signers and who wish to participate in research or clinical trials. Finally, the resulting resources will fill a gap prioritized in Goals 1&2 of NLM's Strategic Plan Goals because the proposed work will support research through information dissemination strategies that enhance information delivery of research participation and informed consent to underserved, overlooked groups such as deaf people who use ASL.