Core A - Admin Core

摘要 行政核心为MDSRC提供活动的整合和管理。它促进 研究和患者/宣传界之间的互动和沟通， 和地方一级。行政核心维护我们的网站，以传达中心的使命和 通过我们的共享科学资源核心提供培训机会和服务。的 核心还协调会议与我们的中心咨询委员会（CAC），有科学，临床和 病人的辩护律师CAC每年举行一次面对面和/或电子会议。的 行政核心还与我们的中心成员合作，以促进对肌肉的认识， 营养不良研究和Wellstone中心计划在病人/倡导社区。我们 行政核心组织开展了外联活动以及会议、研讨会、网上信息， 以及实验室图尔斯参观，包括患者及其家属与我们的研究人员互动。行政核心 还管理我们从内部和患者倡导团体收到的配对资金。

Abstract The Administrative Core provides integration and management of activities for the MDSRC. It promotes interactions and communications between the research and patient/advocacy communities on both a national and local level. The Administrative Core maintains our website to communicate the Center's mission and the availability of training opportunities and services available through our Shared Scientific Resource Core. The core also coordinates meetings with our Center Advisory Committee (CAC) that has scientific, clinical and patient advocate representation. The CAC meets in-person and/or electronically once a year. The Administrative Core also works in conjunction with our Center members to promote awareness of muscular dystrophy research and the Wellstone Centers program in the patient/advocacy communities. Our Administrative Core has developed outreach activities as well as meetings, seminars, web-based information, and lab tours involving patients and their families interacting with our investigators. The Administrative Core also manages the matching funds we have received both internally and from patient advocacy groups.