COPING WITH CRITICALLY ILL CHILDREN--AN INTERVENTION

描述(改编自《调查者摘要》)：病情危重 儿童有短期和长期负面行为、学业方面的风险 和情感上的结果。最近也有报道称， 有文献表明，患有危及生命的疾病的儿童和他们的 父母患创伤后应激障碍的风险很高 无序。大量的研究已经证明了 包括父母在内的孩子的心理准备 有计划的小手术和程序。然而，目前还不知道是否 类似的方法对于经历严重疾病的儿童来说是有价值的 疾病和他们的父母。出于这个原因，还有一个事实是， 缺乏对危重儿童及其子女的实验研究 家长、临床医生和研究人员强调，迫切需要 制定和评估干预措施，以提高应对措施的效果 人口。这项研究的主要目的是提高应对能力。 危重青年的心理和功能结果 儿童及其母亲在住院期间和之后。一个 理论驱动、以家长为中心的护理干预计划 将利用集成的信息和行为组件。这个 本研究的主要目的是评估联合治疗的短期和长期效果 实验性干预计划(COPE：为 父母赋权)对母婴应对过程和结果的影响 身患重病。第二个目标是检验一个拟议的模型。 旨在解释COPE干预计划对 母婴应对方式使用的过程和结果 自我调节理论、控制理论与情绪传染 假设。184名母亲有2到6岁的孩子， 危重儿童将被随机分配到对照组或 试验组分别在两个研究地点。各种有效的和 可靠的措施，包括自我报告和无偏见的观察评级； 将评估干预计划在第1、3和3天的效果 入院后6个月。

DESCRIPTION (Adapted from the Investigator's Abstract): Critically ill children are at risk for short- and long-term negative behavioral, academic and emotional outcomes. There also have been recent reports in the literature that children who experience life-threatening illnesses and their parents are at high risk for the development of post-traumatic stress disorder. Numerous studies have demonstrated the positive effects of including parents in the psychological preparation of their children for planned, minor surgeries and procedures. However, it is not known whether similar approaches would be valuable for children experiencing serious illnesses and their parents. For this reason and the fact that there is a paucity of experimental studies with critically ill children and their parents, clinicians and researchers have emphasized the urgent need to develop and evaluate interventions to enhance coping outcomes in this population. The major objective of this research is to improve coping outcomes, both psychological and functional, in critically ill young children and their mothers during and following hospitalization. A theoretically driven, parent-focused, nursing intervention program that integrates informational and behavioral components will be utilized. The primary aim of this study is to evaluate the short- and long-term effects of an experimental intervention program (COPE: Creating Opportunities for Parent Empowerment) on the process and outcomes of maternal and child coping with critical illness. The secondary aim is to examine a proposed model developed to explain the effects of the COPE intervention program on the process and outcomes of maternal and child coping through use of self-regulation theory, control theory and the emotional contagion hypothesis. One hundred eighty-four mothers with two- to six-year old, critically ill children will be randomly assigned to a control or experimental group at each of two study sites. A variety of valid and reliable measures, including self-report and non-biased observation ratings, will assess the effects of the intervention program during and at 1, 3, and 6 months following hospitalization.