HUMAN GENOME PROJECT--SCIENCE, LAW, AND SOCIAL CHANGE

描述：在20世纪90年代，很明显， 生物医学科学，特别是人类基因组学，将极大地 影响我们的法律，医药，公共卫生和许多其他部门 社会。拟议的会议，人类基因组计划：科学，法律， 和21世纪的社会变革，将汇聚300-500 医生、律师、消费者、伦理学家和科学家共同探索 新的基因技术的影响，并为未来的挑战做好准备。 由怀特黑德生物医学研究所组织，协会 与美国法律、医学和伦理学会(ASLME)合作，会议 1998年4月23日和24日，将举行全体会议，讨论(1)信息 遗传学革命；(2)隐私和遗传歧视：对 个人和社会；以及(3)改变个人和社会的基因 人口。每届全体会议之后将举行相关的讲习班。 例如，第一次全体会议之后将举行题为 “与时俱进的基因测试：医生-患者面临的新挑战 关系、医疗记录、隐私和知情同意 《后基因组世界》和《遗传学对药物开发的影响：新 公司对患者记录的兴趣。由知名律师领导， 科学家、医生和伦理学家，这些研讨会将提供 研究界和专业人士之间的重要桥梁 刚刚开始领会新基因技术的潜在影响。 学员离开项目时将对当前的情况有一个清晰的看法 遗传学在各自领域提出的挑战，广泛的背景 材料、继续教育学分(医学、法律和护理)，以及 关于基因组学革命将如何影响社会的新见解 完整的。会议主办方将公布 通过由怀特黑德维护的互动网站召开会议 研究所；基因通讯(一份关于遗传学和公众的互联网通讯 根据美国能源部的拨款，于1996年7月开始投保)； ASLME法律、医学和伦理学杂志；提交给 领先的科学期刊，如《美国人类遗传学杂志》； 一张专门准备的光盘，免费分发给医务人员， 法律和全国各地的公共卫生图书馆；以及两个后续行动 会后6个月和12个月的通讯，包括最新情况 关于立法趋势、最近的司法裁决和变化的信息 与遗传学相关的公共卫生政策。

DESCRIPTION: During the l990s, it has become evident that advances in the biomedical sciences, especially in human genomics, will dramatically influence law, medicine, public health, and many other sectors of our society. The proposed conference, The Human Genome Project: Science, Law, and Social Change in the 21st Century, will bring together 300-500 physicians, lawyers, consumers, ethicists, and scientists to explore the impact of new genetic technologies and prepare for the challenges ahead. Organized by the Whitehead Institute for Biomedical Research, in association with the American Society of Law, Medicine & Ethics (ASLME), the conference on April 23 and 24, 1998, will offer plenary sessions on (1) The Information Revolution in Genetics; (2) Privacy and Genetic Discrimination: Effects on Individuals and Society; and (3) Altering Genes in Individuals and Populations. Each plenary session will be followed by relevant workshops. For example, the first plenary session will be followed by workshops titled "Keeping Abreast of Genetic Tests: New Challenges in the Doctor-Patient Relationship," "Medical Records, Privacy, and Informed Consent in the Post-Genome World," and "The Impact of Genetics on Drug Development: New Corporate Interest in Patient Records." Led by prominent lawyers, scientists, physicians, and ethicists, these workshops will provide an important bridge between the research community and professionals who are just beginning to grasp the potential impact of new genetic technologies. Participants will leave the program with a clear perspective on current challenges raised by genetics in their own fields, extensive background materials, continuing education credits (in medicine, law, and nursing), and new insights into how the genomics revolution will affect society as a whole. The conference organizers will disseminate the results of the conference through an interactive Web site maintained by the Whitehead Institute; The Gene Letter (an internet newsletter on genetics and public policy started in July 1996 under a grant from DOE); a special issue of ASLME's Journal of Law, Medicine & Ethics; review articles submitted to leading scientific journals, such as The American Journal of Human Genetics; a specially prepared CD-ROM to be distributed free-of-charge to medical, law, and public health libraries around the country; and two follow-up newsletters, six and twelve months after the conference, with up-to-date information about legislative trends, recent judicial decisions, and changes in public health policy related to genetics.