Genomic data sharing: issues in law, research ethics and society

该项目旨在为澳大利亚基因组数据共享的最佳实践监管和治理提供建议。基因组数据的共享对于生物医学研究和临床实践至关重要。将使用各种设想方案来描绘法律的和准法律的促进者问题，包括分享的障碍，并使用循证程序和法律改革方法来评估他们在促进公众信任方面的作用。 制定更有效和高效的基因组数据共享法规将促进公众信任，鼓励更广泛的数据共享，促进科学进步和精准医疗的提供。

This project aims to provide recommendations for best practice regulation and governance of genomic data sharing in Australia. Sharing of genomic data is essential to biomedical research and clinical practice. Scenarios will be used to map legal and quasi legal facilitators issues including barriers to sharing, and to assess their role in promoting public trust, using evidence-based processes and law reform methodology. Developing more effective and efficient regulation of genomic data sharing will promote public trust and encourage broader data sharing, facilitating scientific progress and delivery of precision medicine.