CARERS IN THE 21ST CENTURY: DEVELOPING THE EVIDENCE BASE

这个创新和原创的研讨会系列将有助于提高生活质量和健康和福祉的那些在我们的社会谁给这么多的人谁需要照顾，没有谁，提供健康和社会护理可能无法持续。这群人是事业者。自20世纪80年代“照顾者”概念出现以来，关于照顾者和照顾问题的研究机构蓬勃发展，在日益提高对照顾者需求的认识方面发挥了关键作用，并有助于制定政策举措，以改善他们及其支持者的生活质量、健康和福祉。然而，护理人员在21世纪面临着新的挑战，这些挑战尚未得到解决。这方面的例子包括照顾者的情况发生变化，人口结构发生变化，家庭结构发生变化，导致多代/代际照顾，以及由于医疗进步，照顾的时间越来越长。此外，个性化等政策举措以及那些意味着护理人员有责任管理家中更大范围的健康状况的政策举措将对护理体验产生重大影响。这些变化和政策将重塑护理人员必须提供的“护理”的性质。为了确保护理人员的生活质量、健康和福祉在此时继续得到改善，需要更好地了解护理人员面临的这些挑战，并建立连贯的政策证据基础，在卫生和社会护理领域提供服务和干预措施，以提高护理人员及其所支持的人的生活质量。拟议的系列研讨会是由一个多机构研究人员和研究参与者组成的团队通过与主要利益相关者进行广泛协商，从事护理人员研究。这些利益攸关方包括服务使用者、照料者、主要学术研究人员以及来自第三部门、地方当局、卫生部和照料者常设委员会的代表。它的目的是为大约30名参与者提供一个论坛，在这个论坛上，可以严格评估现有知识的差距，并可以建立护理人员研究的未来议程及其成功和持久影响所需的工作方式。虽然重点将主要集中在英国，研讨会将包括国际捐助者，以最大限度地提高研讨会系列提供的机会，以获得新的观点和理解有关照顾者和照顾问题在这个国家。将有四个研讨会在关键地点与以下主题：照顾者和政策在21世纪世纪，政策在实践中，认识到不同的需要和有效的支持照顾者。发言人已经确定，会议名称已经商定，方案草案已经拟定。同意捐款的人来自不同的背景和学科;他们包括领先的学术研究人员、早期职业研究人员、护理人员、服务使用者、志愿组织、卫生部和就业和养老金部等政府部门的代表以及研究生。贡献者还将共同出席与照顾者和博士生谁参加了他们的研究。这项建议所体现的创造性办法，是为了确保那些在世纪必须应付护理需求的人取得积极成果，这项办法已得到广泛赞同。特别是建立了一个“照顾者研究网络”，被认为是推进照顾者研究议程的及时举措。此外，该系列研讨会与当前和未来的政策趋势保持一致，如质量，创新，生产力和预防议程（QIPP），护理人员战略（卫生部，2010年），迪尔诺特委员会报告（护理和支持资金委员会，2011年）和NICE（2011年）关于患者和公众参与的指导方针。

This innovative and original seminar series will contribute to improved quality of life and health and wellbeing for those in our society who give so much to those who need care and without whom, the delivery of health and social care might not be sustained. This group of people are CARERS. The body of research about carers and caring issues that has burgeoned since the emergence of the concept of the 'carer' in the 1980s has played a key role in the growing awareness of carers' needs and contributed to policy initiatives developed to improve their quality of life and health and wellbeing and that of those they support. However, carers face new challenges in the 21st century which have yet to be addressed. Examples of these are changes in carers' profiles, changing demographics and changing family structures resulting in multiple/inter-generational caring as well as the increasing timescale of caring because of medical advances. In addition, policy initiatives such as personalisation and those which mean carers have responsibility for managing a greater range of health conditions at home will impact significantly on the experience of caring. Such changes and policies will reshape the nature of the 'care' that carers will have to deliver.In order to ensure that the improvements to carers quality of life and health and wellbeing continue at this point in time there is a need for a better understanding of these challenges for carers and a coherent evidence base about policy, services and interventions within health and social care that can improve carers quality of life and those they support. The proposed seminar series has been developed by a team of multi institutional researchers and research participants engaged in carers research through a process of extensive consultation with key stakeholders. These stakeholders include service users, carers, leading academic researchers, and representatives from the third sector, local authorities, the Department of Health and the Standing Commission on Carers. It aims to provide a forum for around 30 participants in which the gaps in existing knowledge can be rigorously evaluated, and both the future agenda for carers research and the modus operandi required for its success and lasting impact can be established. Although the focus will mainly be on the UK, the seminars will include international contributors in order to maximise the opportunity provided by the seminar series to gain new perspectives and understandings about carers and caring issues within this country.There will be four seminars in key locations with the following themes: Carers and policy in the 21st Century, Policy in practice, Recognising different needs and Effective support for carers. Presenters have been secured, session titles agreed and a draft programme has been put together. Those who have agreed to contribute are drawn from a wide range of backgrounds and disciplines; they include leading academic researchers, early career researchers, carers, service users, voluntary organisations, representatives from government departments such as the Department of Health and Department for Work and Pensions, and postgraduate students. Contributors will also co-present with carers and PhD students who have participated in their research. The creative approach embodied in this proposal to securing positive outcomes for those who will have to deal with the demands of caring in the 21st century has been widely endorsed. The establishment of a 'carers research network' in particular has been commended as timely in progressing the carers research agenda. Furthermore, this seminar series is aligned with current and future policy trends such as the Quality, Innovation, Productivity and Prevention agenda (QIPP), the Carers Strategy (Department of Health, 2010), the Dilnot Commission Report (Commission on Funding of Care and Support, 2011) and NICE (2011) guidelines on patient & public involvement.