PROGRAMS FOR INDIVIDUALS WITH SICKLE CELL DISEASE TO PROMOTE POSITIVE OUTCOMES

(改编自申请者的摘要)社区的态度 在患有慢性病的儿童和成人如何 生活通常是尽可能的。虽然有镰状细胞病，但没有 在智力上影响个人，许多人没有机会 大多数人认为这是理所当然的。调查人员已经确认了六名 对持镰刀的个人有重大影响的目标 细胞疾病在接下来的五年里。目标一：方案评价--至 继续加强和扩大教育、筛查、咨询和 通过系统的计划评估提供支持性服务。集合 数据将作为一个持续的过程出现。利用有组织的系统 用于设计或重新设计程序组件的评估程序数据将 最大限度地利用社区资源。目标二：镰刀状细胞 教育者/辅导员培训和认证计划-提供 对医护人员进行有关镰状细胞病的教育和培训 以及其他在镰状细胞疾病领域工作的个人。 目标三：对镰状细胞患者的病例管理干预 疾病-确保患有镰状细胞疾病的人在 基于社区的计划的服务区可以访问完整的 医疗、社会、教育和社区服务。的核心要素 案例管理计划将包括客户评估、 护理/服务计划制定/联系/协调服务，客户 宣传和重新评估/后续行动。目标四：预防性护理 为镰状细胞病患者(PCP)制定的计划-扩大 现有的教育模式，以促进提高 为患有镰状细胞病的客户提供 教育研讨会(PCP)。目标五：高危人群：A 关于镰状细胞病和性状的综合教育计划 扩大和加强现有的关于新生儿的产前教育计划 在现有地点筛查镰状细胞病并开发一种 针对目前正在接受服务的县的计划。目标六：教程和 为患有镰状细胞病的学生提供职业发展计划-TO 为患有镰状细胞的学龄儿童提供辅导服务 通过提供家庭作业在社区计划中登记的疾病 在学校学期期间提供帮助。我们的目标是创建一个 培养学生良好发展时增强自尊的环境 学习技能。

(Adapted from the Applicant's Abstract) The attitude of the community plays an important role in how children and adults with a chronic illness live is normally as possible. Although have sickle cell disease does not affect an individual intellectually, many are not given the opportunities that most take for granted. The investigators have identified six objectives which can have major implications for individuals with sickle cell disease the next five years. Objective I: Program Evaluations- To continue to enhance and expand education, screening, counseling and supportive services through systematic program evaluations. Collection of data will occur as an ongoing process. Utilization of an organized system of evaluation program data to design or redesign program components will maximize the use of community resources. Objective II: Sickle Cell Educator/Counselor Training and Certification Program- To provide education and training about sickle cell disease to health care providers and other individuals working in the field of sickle cell disease. Objective III: Case Management Intervention For Persons with Sickle Cell Disease - To ensure that persons with sickle cell disease within the community based program's service area have access to the full array of medical, social, educational and community services. The core elements of the case management program will consist of client assessment, care/services plan development/ linking/coordination of services, client advocacy, and reassessment/follow-up. Objective IV: Preventive Care Program for Persons with Sickle Cell Disease (PCP) - To expand the existing education model to facilitate an increased quality of life for clients with clients with sickle cell disease through the provision of educational seminars (PCP). Objective V: Individuals at Risk: A Comprehensive Educational Program for Sickle Cell Disease and Trait- To expand and enhance the existing prenatal education program on new born screening for sickle cell disease at existing sites and to develop a program for counties currently under served. Objective VI: Tutorial and Career Development Program for Students with Sickle Cell Disease - To function as a tutorial program for school age clients with sickle cell disease registered with the community based program by providing homework assistance during the academic school term. The goal is to create an environment that fosters increased self-esteem as students develop good study skills.