DATAMIND: Data Hub for Mental health INformatics research Development

DATAMIND：心理健康信息学研究发展的数据中心问题是什么？心理健康状况不佳会在不同程度上影响每个人的生活。这是健康不良的最大原因，而身体和精神健康不良之间的联系往往被忽视。精神疾病患者不太可能参加或继续参加通常类型的研究，无论是关于身体或精神健康的研究，还是他们被积极排除在外。这意味着我们对精神疾病的了解并不是基于受影响最严重的人。然而，英国有一些世界上最好的数据来研究如何预防心理疾病，保持和改善人们的心理健康。真实世界的数据，通常但不总是在人们日常生活中定期收集，为克服这些问题提供了强大的解决方案。我们应该使用它们，但目前，它们很难找到，申请使用它们是乏味的，使用它们可能是艰苦的工作。此外，从事身体健康（如心脏病）和心理健康工作的人往往分开工作，不看链接或分享他们的工作。我们该怎么办？我们希望通过改变NHS，慈善机构，行业和研究人员使用和分享已经存在的信息的方式来改善人们的心理健康。我们将创建一个中心，研究人员和其他人可以在其中查找和使用心理健康数据，使患者和公众受益并改善护理。我们将与人们、患者和有心理健康个人经历的人合作，了解他们对谁感到满意，并信任谁使用他们的数据，并开发人们可以在心理健康方面共同努力的方法。我们还将与研究人员、政策制定者、慈善机构和业界人士合作，了解他们认为什么样的数据可以回答他们想问的问题。我们计划寻找、列出和分享人们通常不寻找心理健康数据的地方--比如关于心脏病的试验。我们将让所有投资于心理健康的人更容易以安全、可靠、有时甚至是新的方式使用数据。我们的中心由英国四个国家领导，因此心理健康数据将与每个人相关。该中心将允许未来的工作使用来自常规医疗保健以外的地方的数据，例如学校或慈善机构等新地方。它将确保每个人的声音都能被听到-即使是那些通常不参加研究的人。我们还计划与其他人密切合作，与我们做同样的工作，但在不同的领域，如糖尿病，这样我们就可以理解的联系和分享学习。这将如何受益人呢？通过让人们更容易了解数据需求以及如何使用它，该中心将以尖端的方式支持优秀的研究，从而改善英国精神健康状况不佳的人的生活。我们从一开始就让病人和公众参与进来，并将继续这样做-这就是为什么有病人和公众成员与我们合作开发这个项目。我们已经召集了一组来自多所大学的研究人员，他们在从事这类工作方面有丰富的经验，旨在预防和改善所有人的心理健康。

DATAMIND: Data Hub for Mental health INformatics research Development What is the problem?Poor mental health affects everyone at some point in their lives to varying degrees. It is the biggest cause of ill-health and the links, both ways, between physical and mental ill-health are often overlooked. People with mental illness are less likely to take part in or remain in usual types of research studies, be they about physical or mental health, or they are actively excluded. This means that much of what we know about mental illness is not based on the very people who are worst affected. However, the UK has some of the best data in the world to look at how to prevent mental ill-health and maintain and improve people's mental health. Real-world data, often but not always collected routinely as people go about their everyday lives, offers powerful solutions to overcome these issues. We should use them but at the moment, they are hard to find, applying to use them is tedious, and using them can be hard work. Also, people working on physical health, like heart disease, and mental health tend to work apart, without looking at the links or sharing their work.What will we do about it?We want to improve people's mental health by changing the way the NHS, charities, Industry and researchers use and share information that's already out there. We will create a Hub where researchers and others can find and use mental health data to benefit patients and the public and improve care. We are going to work with people, patients and people with personal experience of mental health to understand who they are happy with and trust to use their data, and develop ways people can work together on mental health. We are also going to work with researchers, policy makers, charities and people in industry to understand what sort of data they think can answer the questions they want to ask.We plan to find, list and share where people do not usually look for mental health data- like in trials about heart disease.We will make it easier for everyone invested in mental health to use data in safe, secure and sometimes new ways. Our Hub is led from across the four nations of the UK so that mental health data will relate to everyone. The Hub will allow future work to happen using data from places outside of usual health care e.g. in new places like schools or from charities.It will ensure everyone's voice is heard- even those who do not usually take part in research.We also plan to work closely with others doing the same sort of work as us but in different areas like diabetes so we can understand the links and share learning.How will this benefit people?By making it easier to know where the data need may be and how to use it the Hub will support excellent research in cutting-edge ways that will improve the lives of people living with poor mental health in the UK. We have involved patients and the public from the very start and will continue to do so - this is why there are patient and public members who have worked with us on developing this. We have assembled a group of researchers across a number of universities who have lots of experience in doing this sort of work with the view of preventing and improving mental health for all.