Engaging Roma women in the co-design of an antenatal care information resource (ERicar)

背景移民妇女在英国的经验不平等的健康和福祉，特别是，他们的怀孕和分娩的经验。来自中欧和东欧的罗姆妇女在原籍国和整个欧洲都面临医疗保健方面的障碍，导致她们无法参与医疗服务。此外，与其他移民妇女一样，她们往往不习惯联合王国的卫生服务工作方式。还存在语言和文化障碍、种族偏见和歧视，导致产前护理的接受率低。本研究旨在解决这个问题，通过创建一个共同设计的产前保健社区信息资源与一组这些妇女，通过了解他们的需求和偏好，对现有的产前保健信息，告知设计考虑不断发展的原型产前保健信息资源。目的与一群罗姆妇女一起探讨，与他们合作，评估在审查资源后选定的一系列现有产前信息资源的可获得性和可接受性，探索和讨论产前保健信息形式的选择，例如专门满足他们需求的数字资源，共同创建一个低成本的解决文件原型的一个社区为基础的产前保健信息资源，满足他们的需求方法第1-2个月：范围审查罗姆妇女的产妇需求，和？审查可公开获取的产前信息资源，以选择供妇女考虑的第3-5个月：利用基于设计的参与性方法，为罗姆妇女举办一系列长达8个小时的社区参与性讲习班，讨论保健和社会护理、家庭补救、怀孕期间的饮食和锻炼、吸烟和饮酒的影响以及与怀孕有关的健康问题，找出他们知识中的问题和差距。通过音频和视频数据收集方法提供了证据途径的说明。6-8个月：定性分析和项目报告编写，最终在利益攸关方参与讲习班，以确定与项目咨询小组的可扩展性，与其他边缘化的新来移民妇女群体的潜在转移见解。成果：a）与共同设计的产前保健信息资源原型一起提出的设计考虑因素，B）最终设计将在更广泛的罗姆妇女社区中扩大、试行和评估，c）采用包容性和参与性的最佳做法，可在其他边缘化移民社区群体中推广，e）改善罗姆妇女的围产期和孕产妇结局。

Background Migrant women in the UK experience inequalities in health and wellbeing and in particular, their experiences of pregnancy and childbirth. Roma women from Central and Eastern Europe suffer barriers to healthcare in their original countries and across Europe contributing to a lack of engagement with health services. Further, like other migrant women, they are often unaccustomed to the way health services work in the UK. Language and cultural barriers, racial bias and discrimination also exist, leading to low uptake of antenatal care. This study aims to address this issue by creating a co-designed accessible antenatal care community information resource with a group of these women, through understanding their needs and preferences regarding existing antenatal care information, to inform design considerations for an evolving prototype of an antenatal care information resource. Objectives To explore with a group of Roma women, their experiences of healthcare services and cultural beliefs about pregnancy and childbirth To work with them to assess the accessibility and acceptability of a range of available antenatal information resources selected following a review of resources To explore and discuss options for forms of antenatal care information for example digital resources catering specifically to their needs To co-create a low-resolution paper prototype of a community-based antenatal care information resource that meets their needs Methods Months 1-2: Scoping review on Roma women's maternity needs, and?review of publicly accessible antenatal information resources to produce a selection for the women to consider Months 3-5: A series of up to eight 2-hour community participatory workshops using design-based participatory methods with Roma women will discuss engagement with health and social care, home remedies, diet and exercise during pregnancy, the effects of smoking and alcohol, and pregnancy-related health problems, to identify issues and gaps in their knowledge. An account of the evidence pathway is provided through audio and visual data collection methods. Months 6-8: Qualitative analysis and project report writing, culminating in a stakeholder engagement workshop, to determine scalability with project advisory group, with potential transferable insights to other marginalised newly arrived groups of migrant women. Outcomes: a) design considerations presented alongside the co-designed prototype for an antenatal care information resource, b) final design to be scaled up, piloted and evaluated with the wider Roma community of women, c) an inclusive and participatory approach for best practice that can be replicated with other marginalised groups of migrant communities, e) improved perinatal and maternal outcomes for Roma women.